[MOL] Kathy Q [00042] Medicine On Line


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[MOL] Kathy Q



Kathy, I will add your Tommy to our prayer list. He has shown tremendous
courage and we very much hope he will come through this procedure with a
complete cure. God bless, Jeanne

"Argila, June" wrote:
> 
> Kathy Q.  I will pray for Tommy.  Love from your friend June A.
> 
> -----Original Message-----
> From: Qksk@AOL.COM [mailto:Qksk@AOL.COM]
> Sent: Tuesday, February 29, 2000 11:43 PM
> To: mol-cancer@lists.meds.com
> Subject: [MOL] An update on Tommy...
> 
> Hello fellow Molers,
> 
> Get comfortable... this is a long one...
> 
> I've waited a while to post on what was happening with Tommy.  For those
> of
> you who have joined the forum since I last posted... Welcome!  I will
> give
> you a (very) brief summary of what's happened so far.
> 
> My nephew Tommy was diagnosed Sept. 27, 1999 with Acute Myeloid Leukemia
> 
> (AML).  It was centered in his nervous system and brain and the
> prognosis was
> very scary.  He went through 21 days of intensive chemo... and spent the
> 
> better part of the next 6 weeks trying to recover from that.  He had
> numerous
> infections and at the end of the first round of treatment, the tests
> showed
> he was not in remission.  We were even more frightened.  At that time
> they
> also spelled out that they thought he might have a second condition...
> myelodysplasia.  This looked to be a really serious double whammy.
> Well...
> he went home to his wife and twin boys (he's 24, she's 23 and the twins
> at
> the time were about 18 months old) and began to heal.
> 
> My nephew has an incredible attitude.  He and his wife have a very
> strong
> religious belief and belong to a wonderfully supportive church.  When
> everyone kept throwing survival percentages at him he had a simple
> response.
> He said "It seems to me in God's eyes you are either 100% alive or 100%
> not.
> I am 100% alive and feel as though God still has much for me to do.  So
> I
> will fight this thing, with his help, and eventually beat it so I can
> finish
> the work he put me here to do."  Wow.  It still chokes me up to think
> about
> his conviction and courage.
> 
> Within a few weeks he went back to the hospital for another bone marrow
> biopsy.  Much to everyone's surprise, the test results not only showed
> he'd
> gone into remission, but that they had misdiagnosed the myelodysplasia
> rx.
> He was now clearly only dealing with just the one diagnosis.  This was
> no
> small thing, but certainly better than having both conditions to contend
> 
> with.  Shortly after that, we were notified with the promising news that
> a
> bone marrow transplant donor had been located.
> 
> He went through a round of consolidation chemo in January and after
> fighting
> off more infections again gained back his strength.  He has maintained
> his
> positive attitude, regardless of the ups and downs of the roller coaster
> he's
> been on.  Don't get me wrong.  He's been scared, depressed, worried and
> upset
> about all the people he thinks he's letting down while he's been
> struggling
> with the effects of this disease.  And he was having to deal with the
> reality
> of feeling so sick for so long.  Tommy, prior to this illness was a very
> 
> healthy, strong young man.   But he has maintained a core of strength,
> which
> is based in his faith, that has sustained not only him, but all of us
> around
> him.  He just doesn't realize it.  All he's been doing from his point of
> view
> is coping with whatever keeps coming up.
> 
> So now to the latest!  We found out late last week that they have
> verified
> the donor is 100% match and they have scheduled the bone marrow
> transplant
> for March 9.  Now the going will really get tough.  They will bring him
> to
> the brink of death with the full body radiation and the chemo, in order
> to
> kill all of his current bone marrow to make way for the donor's clean
> bone
> marrow.  There were some questions as to whether or not his heart had
> been
> too damaged by the treatment so far to accept the full-blown treatment,
> but
> we got word today that they believe he can take the complete course of
> treatment.  Anything less would have put him at greater risk for
> rejection.
> 
> As Lillian knows...  :-))  I am not a particularly religious person.  I
> don't
> attend a church or anything like that.  But I do have a sense that there
> is a
> balance to life and have a faith of sorts that understands and
> empathizes
> with a lot of the folks on this forum who are lucky enough to be able to
> make
> the leap of faith that I have not been able to make.  Thanks to many of
> you I
> have begun to pray (in my own way) and as I've read about what is
> happening
> with my fellow Molers, have included you in my thoughts and prayers.
> 
> So now, Tommy is entering an intensive phase of treatment.  From March
> 5-30,
> he will be pretty much in isolation because of how severely his immune
> system
> will be compromised due the transplant.  After that we will have 2-4
> months
> of follow-up treatment where he will have to live near the hospital
> (Stanford).  This is all filled with much risk.  But so many of you have
> 
> faced this same risk and have shared your story and inspired others to
> find
> the strength to hang in there and keep hanging on until you've conquered
> the
> demon.  ... Or at least this round with the demon.
> 
> I guess the reason I'm writing this is to thank you all for sharing your
> 
> lives with me (and my nephew and his family) and to let you all know
> what a
> strong bond and responsibility I feel towards helping others who will
> also
> ride this roller coaster.
> 
> Thank you from the bottom of my heart, my friends.
> 
> Warmly,  Kathy Q ( from CA)
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