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I have beenin contact with Dr. Burzynski's clinic and have their complete paperwork in my hands. We've gone back and forth on whether or not to seek treatment here. I will give you the website following. Two different onco's went balistic when I mentioned his name, clinic etc. and it makes me extremely uncertain. They say it is a scam and he's in it totally for the money and doesn't have anything to prove his work. Julian Whittaker (doctor out of California) says he would take himself and/or his family at the first hint of cancer he believes so completely in his work. I do know it is extremely expensive and unlikely to be covered by health insurance. I called and talked directly to one of the doctors and he tells me we would know in 4 to 6 weeks whether or not their treatment was working. He's located in Houston, Texas. I know I'm rambling, but I'm trying to say as much as I can and get this out to you asap.
If anyone reading this has any first hand knowledge of this clinic I really need to hear from you.
Peggy Hall
Good luck Peggy W, please keep me informed if you go for it or not. If you need to talk about anything, I would be more than happy to talk with you. Peggy H
http://www.cancermed.com/bri.htm
Wesener Peggy wrote:
I'm looking for Dr. Burzinski. It was suggested that I try to contact him and see if he can give me some guidance with the problem noted below.
Thank you.
I'm looking for guidance. I was in a Health Food Store the other day and
>picked up your book IP-6 with Inositol Question and Answer Book. My
>husband is a 48 year old, healthy male who was diagnosed with pelvic
>sarcoma in March of 1999. The tumor is high grade and they do not know if
>it originated from the bone or the tissue. He had pain in his leg for the
>last two years prior to be diagnosed, however, it was nothing that a few
>aspirins didn't help and then the pain went away for a few
>months. Therefore, he assumed it was from all the bending that he did at
>work. Last March his leg swelled at work and after going to the doctor
>for tests, they found that he had a tumor in his pelvic area. After
>numerous scans/biopsies, etc. they told him that the only cure would be a
>hemi-pelvectomy to remove the tumor. We then seeked other doctor's
>opinions and went to Milwaukee. There they started him on chemo for about
>six months. He was in hospital every four weeks for a one week
>period. This reduced the tumor about 20%, but they continued to say that
>the only cure would be operating and removing the tumor. They said it was
>a fast growing tumor and if he did not have surgery that he would die.
>After more opinions and careful thought, we thought to save his life, he
>would go through the hemipelvectomy. In December, 1999 we scheduled the
>surgery. During surgery they found that the tumor had spread to his lower
>back area. Now..they are now sure if the tumor was always there and the
>scans did not pick it up or if it had grown. To date, they still are not
>sure. He now is doing radiation for five weeks (he's in his third
>week). They're doing radiation so that they possibly can reduce the tumor
>but so that they can do radiation during surgery to insure that the tumor
>does not have a chance to spread. However, before they can do the
>hemipelvectomy, they want to do a prior surgery moving his bladder and
>rectum to one side so that they can get at the tumor that is located in
>the lower back area. Now we are running into many risks which are two
>major surgeries, possibly having a bag for your bladder, a bag for your
>rectum and dysfunction of these organs in addition to sexual
>dysfunction. Then, they want to later do the hemipelvectomy. They cannot
>give us a percentage of success rate and they don't know how close this
>tumor is laying to the spinal area which may cause more problems with him
>even to walk with his good leg. Therefore, we are having major second
>thoughts about not going ahead with the surgeries and we were looking for
>alternative plans. At the health store a clerk recommended your book. My
>husband is on numerous herbs, vitamins and the IP6 with inositol. We're
>now not looking to cure the tumor but to prevent it for spreading. This is
>where I need your help. Do you feel the IP6 with Inositol would be
>something he should take in quantity and would help prevent the spreading
>of the tumor. Any help you could give me in this matter would be greatly
>appreciated. We're at a lose, and do not know which way to turn at this
>time. I would appreciate a quick response to this E-mail.
>
> Thank you in advance.
>
> Peggy Wesener My E-mail address
> is: peggy.wesener@kohlerco.com
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