Bess, did you read the postings from Wanda. She is participating in a
Combrestatin trail. She has ACUP also.I talked to the trial nurse and
can give you her e-mail address if you wish. Jeanne
BesTom@AOL.COM wrote:
>
> Dear Bob:
> My husband was initially diagnosed through the fluid in his pleural
> effusion. He had numerous mets to both lungs and therefore was not a
> candidate for surgery or radiation. He was also given a diagnosis of ACUP but
> I persisted and after we saw the head of thoracic oncology at Dana Farber who
> had come up from NCI, he said he would absolutely say it was primary to the
> lung given the heavy tumor burden there and at that point nowhere else. We
> decided to treat the pleural effusion permanently. They recommended a talc
> poudrage procedure which was done and thus far (8 months later) the fluid has
> not returned signicantly --what procedure did you have done to treat the
> pleural effusion permanently? We did chemo for 8 months but have now stopped
> due to signicant progression--we don't want to go from chemo to chemo. We
> are trying an alternative formula and looking for a possible trial. All the
> best. Bess
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