Dear Dusti,
Thank you so very much for your kind note. Actually it is each and all
of you that inspire me to be the best one can be. While we are all
facing this disease and any major condition, we start out with the
uncertainties and anxieties seeking the hope that is needed. For HOPE
provides us some assurance that there are ways to overcome these fears
and helplessness, it is a forum of which I am inspired by each and
everyone that provides that much needed hope. I am inspired by the hard
work of the Lils, the Jeannes, the Joicys, the Nancys, the Dustis, PJs,
the Lizs, the Johns, the Carlas, the Barbara S, and the so many I have
not mentioned. Each day is a learning day for me and if I can just pass
on those things that I have learned frome each of you, then it is what
we call a "Mitzvah" a blessing.....For I have been blessed.
God Bless You,
marty auslander
"Barham, Dusti # IHTUL" wrote:
>
> Marty, just wanted to tell you that I really enjoy when you post. You are a
> diplomat & very much a gentlemen.
>
> Dusti
>
> > ----------
> > From: Martin Auslander[SMTP:fitecancer@earthlink.net]
> > Reply To: mol-cancer@lists.meds.com
> > Sent: Wednesday, January 05, 2000 10:21 AM
> > To: mol-cancer@lists.meds.com
> > Cc: Jeanne/James Kissinger; Lil Jennings
> > Subject: Re: [MOL] Vit C and iron in hemachromatosis
> >
> > DEar All,
> >
> > May I just for a moment butt my two cents in here about Vitamin C.
> > Generally there are two sides to each report and story. May I suggest to
> > hear the Vitamin C side of the story is to log on to the Vitamin C
> > foundation website as they will also provide you with a toll free phone
> > number that may rebuttal or help unconfuse the issue of whether vitamin
> > C supplements are beneficial for those with cancer. I am seeing both
> > sides of the issues and I am becoming overwhelmed as each of you are.
> >
> > One more thing to keep as a reminder. The issue is with anti-oxidants or
> > Vitamin C and Vitamin E as SUPPLEMENTS, not as the basis of nutrition
> > essentials. No one or no Doctor refutes the significance or benefits of
> > Vitamin C and/or E and Iron in its natural state. For instance those
> > vitamins contained in the basic nutrients.....Oranges, melons, yams,
> > green leafy vegetables, etc, etc. These basic nutrients are found by all
> > physicians and scientists to be the healthiest and even when supplements
> > are not taken, when these basic nutrients are the tend to replenish and
> > support the immune system with the vitality it requires. Now, if one
> > believes that taking a supplement will help fortify that basic nutrient,
> > then one must judge for themselves and by hearing both sides of the
> > story from the scientists who refute the claims of benefit and the
> > Vitamin C and E foundations that support their many years of findings.
> > But pls do not confuse supplements with basic nutrients which do fight
> > cancer and/or prevent cancer.
> >
> > HOpe this is informative and not argumentative. I wish not to be that at
> > all. I say this with the research I have accumulated over the years and
> > currently. I am not a scientist, but one of you who longs for the day
> > when there is no more cancer.
> >
> > God Bless You All,
> > marty auslander
> >
> > Jeanne Kissinger wrote:
> > >
> > > Thanks, Lil, I would appreciate seeing the pages where cancer feeds off
> > > iron! I know that people with iron overload metabolism do not process
> > > iron properly and this process is slow but eventually affects every cell
> > > in the body. This metabolic abnormality does not apply to normal people
> > > though. So still stick with my own opinion that normal people should
> > > toss out their vit C yet or avoid iron. God bless, Jeanne
> > > Lillian wrote:
> > > >
> > > > Jeanne: Even an anemic person can have iron overload. The iron
> > settles
> > > > into organs such as the liver and yes can cause cancer in particular
> > the
> > > > liver. Cancer feeds off of iron.according to the hundreds of pages I
> > have
> > > > collected. The body has it's way of keeping the amount of iron that
> > is
> > > > needed and eliminating what is not needed, if this is not working
> > properly
> > > > then it collects into various organs causing severe damage. Keep in
> > mind
> > > > that just about all foods that are not fresh have iron supplements in
> > them
> > > > and even our natural products have iron.
> > > >
> > > > I regret that many practitioners who are treating someone who is
> > anemic does
> > > > prescribe iron without doing the iron overload testing. The problem
> > with
> > > > iron overloading is that we don't normally have symptoms until the
> > damage is
> > > > being done. The testing is inexpensive; yet rarely provided without
> > asking
> > > > for it.
> > > >
> > > > I have many sites that I could send the URL's to that would help
> > everyone
> > > > understand this and perhaps it may be wise to do so. I will also try
> > to get
> > > > my Vit. C. contact to again give us the scope. Thanks, love ya,
> > lillian
> > > >
> > > > > Hi, Lillian, I don't think any responsible health practitioner
> > advises
> > > > > any iron supplements these days. Iron does not cause cancer is my
> > belief
> > > > > and we do need the stuff to make hemoglobin. Iron is poorly
> > assimilated
> > > > > without the help of vitamin C. In addition, Vitamin C does not feed
> > > > > cancer but it is an anti-oxidant that helps keep cancer at bay.
> > > > > I would not advice anyone to do this until they are definitely
> > tested as
> > > > > having iron overload disease. I agree with June, I wish we could
> > get to
> > > > the bottom of vit. C.
> > > > >
> > > > > As Marty says, my opinion only. God Bless, Jeanne
> > > > >
> > > > > > Lillian wrote:
> > > > > >
> > > > > > Tonight as I researched for information for our fellow Molers, I
> > got
> > > > > > side tracked and researched "hemochromatosis", it has recently
> > been
> > > > > > discovered that our littlest grand daughter has this.
> > > > > > Now, you ask, what does this have to do with cancer? I have
> > included
> > > > > > the material needed for you to understand all of this.
> > > > > > Hemochromatosis is a recessive gene, iron overload is what it
> > > > > > creates. There are some 32 million Americans with this; so
> > definitely
> > > > > > common; yet few know they have it. One must ask for specific
> > tests to
> > > > > > find it. However; the damage it does is unreal and here is the
> > > > > > corker! Cancer feeds off of iron! Yes friends, and don't we all
> > try
> > > > > > to push those iron supplements into us? The advice given to
> > control
> > > > > > iron overload is not to take Vitamin C, not to take iron
> > supplements
> > > > > > and to eat very little meat. Please, do yourself a favor and get
> > > > > > tested. Your friend, lillian
> > > > > >
> > > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> > > > > >
> > > > > > People diagnosed with iron disorders, their family members and
> > loved
> > > > > > ones share a common ground: the need to better understand the
> > > > > > complexities of iron.
> > > > > >
> > > > > > Highly regarded organizations dedicated to health concerns,
> > Centers
> > > > > > for Disease Control and Prevention (CDC), The National Institutes
> > of
> > > > > > Health (NIH) and the American Medical Association (AMA), all
> > confirm
> > > > > > that hemochromatosis/iron overload is emerging as one of the most
> > > > > > important medical issues today.
> > > > > >
> > > > > > According to the AMA's published Resolution 525, hemochromatosis
> > (iron
> > > > > > overload) a condition of abnormal metabolism of iron, is one of
> > the
> > > > > > most common genetic disorders in the Northern Hemisphere affecting
> > > > > > more than a million Americans or one in two hundred who carry the
> > > > > > double gene mutation and may affect as many as 32 million
> > Americans
> > > > > > who have the single gene mutation.
> > > > > >
> > > > > > The CDC, NIH and AMA clearly state that excess iron, left
> > untreated,
> > > > > > can lead to disease such as arthritis, heart attack, diabetes,
> > > > > > impotence, depression, liver disease and cancer.
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > > Fact Sheet
> > > > > > 1. Undetected and untreated excess iron kills after inflicting
> > > > > > injury to a variety of body organs.
> > > > > >
> > > > > > 2. The patient's and physician's concern must be to detect any
> > > > > > excess iron instead of establishing
> > > > > > a diagnosis of hemochromatosis.
> > > > > >
> > > > > > 3. A complete physical must include: Total Iron Binding Capacity
> > > > > > (TIBC) and Serum Iron (SI).
> > > > > > Divide the SI by TIBC for percentage of Transferrin Saturation TS.
> > > > > > Normal range: 12-45%.
> > > > > >
> > > > > > 4. If TS is outside normal range, use the same blood to measure
> > > > > > Serum Ferritin (SF). Normal range: 5-150. If an individual is
> > > > > > outside the normal range on Serum Ferritin, a phlebotomy
> > > > > > program should be started to bring the SF below 10. Ferritin is
> > the
> > > > > > closest measure of stored iron.
> > > > > >
> > > > > > 5. To reduce elevated iron levels, the patient should be given a
> > > > > > prescription for weekly or twice weekly bloodlettings at a blood
> > bank
> > > > > > to confirm or rule out iron overload. The hematocrit cutoff
> > should be
> > > > > > set between 30-35. Anemic patients might benefit from B complex
> > > > > > vitamins with folic acid.
> > > > > >
> > > > > > 6. A liver biopsy is not necessary to confirm diagnosis.
> > > > > >
> > > > > > 7. If iron tests low, the cause should be found: the bleeding
> > ulcer,
> > > > > > cancer, or chronic infection. It is dangerous to medicate with
> > iron
> > > > > > without 1. testing iron and 2. knowing the reason for the
> > deficiency.
> > > > > >
> > > > > > 8. In the matter of DNA testing, we are not recommending this
> > > > > > approach. All of the genes that can cause an overload are not yet
> > > > > > discovered - about 15% yet outstanding. Jerome Sullivan MD PhD
> > > > > > explains that possession of the gene " will confirm but will not
> > > > > > exclude the diagnosis. "
> > > > > >
> > > > > > 9. Diagnosis not followed by vigorous treatment is useless. The
> > > > > > patient must be motivated to unload the iron as fast as possible
> > by
> > > > > > weekly or twice weekly phlebotomies at the blood bank. Goal:
> > ferritin
> > > > > > below 10 or even 0.
> > > > > >
> > > > > > 10. All blood relatives of the patient must be evaluated and
> > > > > > monitored. They should all be checked for iron overload at each
> > and
> > > > > > every physical for the rest of their lives.
> > > > > >
> > > > > > 11. Iron overload cannot be controlled with diet. High iron
> > foods
> > > > > > also contain other nutrients needed to repair body damage. We do
> > not
> > > > > > recommend a low iron diet. Caution: avoid over-the-counter
> > vitamin C
> > > > > > and additives of such. Avoid raw seafood, which kills a number of
> > > > > > people every year, mostly those whose excess iron is undetected.
> > > > > >
> > > > > > 12. Symptoms vary too much to help with diagnosis. Chronic
> > fatigue,
> > > > > > arthritis, heart disease, cirrhosis, cancer, diabetes, thyroid
> > > > > > disease, impotence, sterility. In other words excess iron is
> > toxic
> > > > > > and can injure every part of the body, including the brain.
> > Elevated
> > > > > > liver enzymes must not be ignored. Anemia can be a symptom. Some
> > > > > > anemias are iron-loading. Hemoglobin level does not indicate iron
> > > > > > status.
> > > > > >
> > > > > > 13. Excess iron lowers the immune system. Many diseases will
> > show a
> > > > > > poor outcome unless excess iron is removed: AIDS, cancer, and
> > > > > > hepatitis, for example.
> > > > > >
> > > > > > 14. Iron does cross the blood brain barrier, contrary to an old
> > > > > > belief. Excess iron stored in the brain has been found to trigger
> > or
> > > > > > exacerbate severity in Alzheimer's, multiple sclerosis, ALS,
> > > > > > Parkinson's and other diseases. Psychological problems have even
> > been
> > > > > > linked to excess iron.
> > > > > >
> > > > > > 15. Hereditary hemochromatosis is only one of several iron
> > loading
> > > > > > diseases. But its double gene frequency alone is 1 in 200 and 13%
> > of
> > > > > > the US population have the single gene expression.. It is the
> > most
> > > > > > common genetic disease, and tragically the most undiagnosed.
> > > > > >
> > > > > > 16. The goal of medicine is to provide maximum preventative care
> > at
> > > > > > the least expense. Patients must be aware of iron overload for
> > their
> > > > > > own protection. IOD honors the increasing number of physicians
> > who
> > > > > > are updating their information on iron overload.
> > > > > >
> > > > > > IOD
> > > > > > 433 Westwind Drive
> > > > > > North Palm Beach FL 33408-5123 561-840-8512 fax
> > > > > > 561-842-9881
> > > > > > iod@ironoverload.org
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > > Hemochromatosis is a disorder in which the body
> > absorbs
> > > > > > too much iron from food. Normally, any iron that
> > the
> > > > > > body doesn't need is excreted. But in
> > hemochromatosis,
> > > > > > the excess iron is stored throughout the body,
> > > > > > including in the pancreas, liver, and skin. The
> > iron
> > > > > > deposits damage these organs and tissues.
> > > > > >
> > > > > > Hemochromatosis is a hereditary disease and is
> > > > > > sometimes called hereditary hemochromatosis, or
> > HHC.
> > > > > > Symptoms include fatigue, abdominal pain, jaundice
> > > > > > (yellowing of skin and eyes), and a change in skin
> > > > > > color to bronze or gray. Over time, hemochromatosis
> > can
> > > > > > cause liver disease, liver failure, liver cancer,
> > heart
> > > > > > disease, and diabetes.
> > > > > >
> > > > > > Hemochromatosis is diagnosed through blood tests
> > that
> > > > > > measure iron levels. Sometimes a liver biopsy is
> > done
> > > > > > to check for the amount of iron in the liver and
> > for
> > > > > > liver damage.
> > > > > >
> > > > > > Hemochromatosis is treated by drawing blood to
> > remove
> > > > > > excess iron from the body and keep it from building
> > up
> > > > > > in organs. For the first 18 months, blood is drawn
> > once
> > > > > > or twice a week. After that, blood is drawn once
> > every
> > > > > > 2 to 6 months for the rest of the person's life.
> > > > > >
> > > > > > Information is also available from:
> > > > > >
> > > > > > American Liver Foundation, 1425 Pompton Avenue,
> > Cedar
> > > > > > Grove, NJ 07009; tel: (800) 223-0179 or (201)
> > 256-2550.
> > > > > >
> > > > > > Hemochromatosis Foundation Inc., P.O. Box 8569,
> > Albany,
> > > > > > NY 12208; tel: (518) 489-0972.
> > > > > >
> > > > > > Iron Overload Diseases Association Inc., 433
> > Westwind
> > > > > > Drive, N. Palm Beach, FL 33408; tel: (407)
> > 840-8512.
> > > > > >
> > > > > > Additional Information from the Combined Health
> > > > > > Information Database (CHID)
> > > > > >
> > > > > > The National Digestive Digestive Diseases
> > Information
> > > > > > Clearinghouse collects resource information on
> > > > > > digestive diseases for CHID. CHID is a database
> > > > > > produced by health-related agencies of the Federal
> > > > > > Government. This database provides titles,
> > abstracts,
> > > > > > and availability information for health information
> > and
> > > > > > health education resources.
> > > > > >
> > > > > > To provide you with the most up-to-date resources,
> > > > > > information specialists at the clearinghouse
> > created an
> > > > > > automatic search of CHID. To obtain this
> > information
> > > > > > you may access the CHID Online web site at
> > > > > > http://chid.nih.gov.
> > > > > >
> > > > > >
> > --------------------------------------------------------
> > > > > >
> > > > > > This e-text is not copyrighted. NIDDK encourages
> > users
> > > > > > to duplicate and distribute as many copies as
> > needed.
> > > > > >
> > > > > >
> > --------------------------------------------------------
> > > > > >
> > > > > > e-text posted: 12 February 1998
> > > > >
> > ------------------------------------------------------------------------
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