Hi Lilian,
After I spoke with you we got some discouraging news. He is having chest
pains and an EKG showed an irregular heart beat right now. The doc is coming
in tonight to start him on oxygen. His doc is pure gold. Works seven days a
week and always has time to look in on him. I will continue to let you know
how he is doing.
I did find out some specifics about his treatment so far. Although my
spelling may be wrong, during the first 7 days of active treatment he
received a mixture of IDR/idurubicin and ARA-C. He has also received two
spinal infusions of Methatraxine and will receive 3 more over the next 2-3
weeks. The preliminary reports came back that the cancer has decreased
considerably in his spinal fluid. They did the bone marrow biopsy today and
we should hear by Thursday what the results of the IDR and ARA-C treatments
have produced. Although the right side of his face is still paralyzed, the
problem with his left eye being stuck at midline has totally dissappeared,
and the masses on his spine have decreased from 8CM to 4CM. So most
everything so far seems to be going in the right direction.
For anyone out there who has been diagnosed with early AML, is there any
chance he'll get off with just one chemo treatment? Or is two standard, and
maybe three? Also, because it's centered in his brain, what's the liklihood
of him needing a bone marrow transplant? Is that also a given, or just a
maybe?
It was very nice to talk to you Lillian... you are just as caring and warm on
the phone as you are in these mails zinging back and forth! Thank you so
much for your help and support.
Your friend, Kathy Q
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