Re: [MOL] Barb Auslander Update [00576] Medicine On Line


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Re: [MOL] Barb Auslander Update



Dear Elizabeth,

I know that God hears all the concerns and prayers. I know He/She heard
your wishes. Thank you.

God Bless YOu
marty and Barb auslander

Elizabeth Patterson wrote:
> 
> Dear Marty,
> I am so sorry Barb is continuing to have all these complications. We
> are glad to hear from you when you can send an update, but you are
> right, Barb is your first concern and we all know that is as it
> should be.
> 
> We all are hoping and praying that Barb will be able to turn the
> corner and experience wellness once again.
> Liz
> 
> >Good morning All,
> >
> >Where do I begin? So darn many issues and concerns. Pls indulge me and
> >have patience as I may go off in tangents as these medical issues are as
> >strange and bewildering and complex to me as they seem to be to the
> >Doctors. Barb is a unique medical specimen. She was first diagnosed back
> >in 1994 with a very rare adeno carcinoma of an UNKNOWN primary which
> >spread Stage IV to lymph glands. So if that is rare, it has been a very
> >complicated journey these past 5 years as the side effects and various
> >conditions similarly have been rare. But we have dealt with each issue
> >and will continue to do so until she is well. So here goes.
> >
> >SAw the Neurosurgeon with results of  brain cat scan for post operative
> >follow-up. No noticeable after effects of brain blood or hemorrhaging.
> >Good news.
> >
> >Saw Barbs primary Doctor yesterday as Barb is experiencing continued
> >nausea and leg pains. The leg pains are a result from the surgery of the
> >head and back and as the Doc put it, may go away in time. Barb is trying
> >to overcome with progressive walking therapy as per Physical therapist.
> >The nausea is another concern. We had taken Barb off all medications and
> >pain pills and supplements and vitamins over the past four days and the
> >nausea continues. The Doctor did a cursory physical exam and called for
> >an endoscopy. The Doctor told me that she consulted with Oncologist and
> >they both feel that it is not cancer related. WE will see Primary Doctor
> >once again on the 20th to get results of the endoscopy but in the
> >meantime prescribed Compozine for nausea. As for the all the other
> >medications and supplements, Barb decided to stay off until the nausea
> >goes away.
> >
> >Barb had an ultrasound of her neck and chest. The concern is that Barb
> >is off coumadin a blood thinner and we needed to know where the blood
> >clots are in order to have a boiler plate point of confirmation whether
> >to eventually go back to a blood thinner. As it turns out, There is a 5
> >cm clot in the right basillic vein, there is also a defect or clot in
> >the distal left subclavian, left axiallary and the proximal left basilic
> >vein. These are also consistent with thrombus or blood clotting. So Barb
> >has blood clots on both sides left and right veins to the heart. She is
> >not a candidate for blood thinner at this time as she is healing from
> >brain surgery and going back on a blood thinner would be quite risky. So
> >each day, I measure her arms and and wrists to see if there is no
> >significant change in size. Should there be some swelling, then we would
> >have no choice than to use blood thinner. I have just called to make an
> >appointment with a vascular Surgeon at UCI for 2nd opinion. We need to
> >get those clots open if possible.
> >
> >NOw for the cancer issue. There are rising cancer cells. Last ca-125
> >tumor marker rose from 62 to 65. Normal is 35 or under. We will take
> >another in two weeks and get the results on the 25th of this month.
> >Barbara is not a candidate at this time for chemotherapy as that also is
> >very risky after brain and back surgery as it may once again cause for
> >brain hemorrhaging. I have just made an appointment with two
> >Oncologists, one gynecological and one medical to seek 2nd opinions. I
> >am hoping that there are therapies that are less toxic, say gene or
> >vaccine or immuno. Will know more when we see them at the end of this
> >month.
> >
> >Now, Barb is in discomfort. She has lost weight, but she is one hell of
> >a fighter, as you all know. In the meantime, we are making our 2 year
> >plans as we always do that encompasses wellness. We feel that is what
> >got her to 5 years to begin with. She meditates, she prays, she eats
> >well, we are back into walking. WE love each other and we have many
> >friends and relatives that love her. So, with that formula we will, God
> >willing, overcome.
> >
> >NOw, also, I am researching like heck for leads and alternatives. Have
> >many thanks to many friends. Barb and I promised that we would sit down
> >each day and go over some of these things and will pursue further.
> >
> >so, Pls continue to pray for us. I have not written as much as I should
> >and need to write more, but every day is a battle, every day there is so
> >much to take care of and keeps me away from the chores that need to be
> >taken care of personally and business. But, pls be patient with me.
> >First priority is my Barb and I will always keep you posted, if not
> >everyday. I will not lie to you. Its tough. It has been tough, but we
> >will never, ever give up. I know Barb feels the same. Thank you all for
> >your love.
> >
> >God Bless and pls continue to be in touch as I will  you.
> >marty and Barb
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