Re: [MOL] Deb/tamoxifen [00303] Medicine On Line


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Re: [MOL] Deb/tamoxifen




Well Deb, the next stage is moving on with life; so you are almost there and
in reality kid your ahead of schedule!  Good luck, your friend, lillian


----- Original Message -----
From: deb grodin <debg@home.com>
To: <mol-cancer@lists.meds.com>
Sent: Wednesday, July 07, 1999 12:31 PM
Subject: Re: [MOL] Deb/tamoxifen


> Dear Lillian,
> I really appreciate your input. I am not sure if tamoxifen is right for
> me or not, but I feel that I need to give it a try. I never want to look
> back and say what if.... if only.....why didn't I.... If I have a
> reoccurrence at least I did all I could to prevent it. If I decide that
> the tamoxifen is not for me at least I tried it. It is not a sure fire
> safety net, meaning I know that I still need to have all the follow ups
> and mammograms. Look I have done a SBE since I was 18, 28 years, once a
> month in three different places, in order to find my cancer it would
> take another 10 to 15 years of these exams. There is no proven safety
> zone.
> I am making a list of all the tests etc. I think that they check the
> liver through blood? She did mention regularly scheduled blood tests,
> but I don't remember. Know I have to go back to her end next month after
> mammogram. So much for being ready to go to Doctor alone! Guess I need
> to find the tape recorder or drag my husband.
> Think I am entering the next phase, getting angry that this had to
> happen to me, getting angry that my energy level stinks, and most of all
> I still can't run!!!!!!!!!!!!!!Sorry.
> Love,
> Debby
> P. S. Any word on Barb. I am also angry that they can't seem to win and
> while I'm at it, I'm angry that the garbage men through my can in the
> middle of the street and someone hit it.
>
> Lillian wrote:
> >
> > I have been very good and not saying anything nasty about tamoxifen for
a
> > week now, this is most difficult for me.  I went and really studied your
> > situation and I would have to be incline to feel that your doctor is
right
> > on track for your treatment.    Were I  you, the main thing I would look
for
> > is a head pain right where the soft spot is, this was my first
indication of
> > allergic reaction.  I would insist on the liver ensigns checked
regularly
> > with the report sitting right in my own little hands.  The last is for
all
> > Tamoxifen users, please, do not feel because you are on this drug you
are in
> > the total safety zone, be diligent about your health, a friend of mine
has
> > had reoccurring cancer while on Tamoxifen.  Now, I will shut my
> > mouth....love you all, lillian
> >
> > ----- Original Message -----
> > From: suzanne new <susienew@flash.net>
> > To: <mol-cancer@lists.meds.com>
> > Sent: Thursday, July 08, 1999 8:54 AM
> > Subject: Re: [MOL] Tamoxifen
> >
> > > deb: I will have an ultrasound every 6 months, blood checked every 4
> > > months for the first 2 years then every 6 months. Believe me you will
> > > know a hot flash if and when you get one. It feels like nothing else I
> > > have ever experienced! Good Luck!
> > > Suzanne
> > >
> > > deb grodin wrote:
> > > >
> > > > Dear Suzanne,
> > > > Thank you for the information. Are you also getting ultrasounds done
as
> > > > well as liver checks and how often are having blood drawn? Guess
I'll
> > > > know what a hot flash feels like if I get one.
> > > > Debby
> > > >
> > > > suzanne new wrote:
> > > > >
> > > > > Hi deb: I started on Tamoxifen about 3 months ago. Like you I had
a
> > lot
> > > > > of thinking to do before I decided to take it. I got most of my
> > > > > information over the form and as you know this drug is not without
> > risk!
> > > > > So far so good. The worst side effects I have experienced so far
ar
> > hot
> > > > > flashes and water retention (I can live with that). I started soy
> > > > > protein shakes for the hot flashes, parsley and celery for water
> > > > > retention. The hot flashes and water retention seem better. I also
> > will
> > > > > inform my GYN doc that I am on tamoxifen. My onc will do a liver
check
> > > > > every 4 months. As long as I don't experience any serious side
effects
> > I
> > > > > will continue with the tamoxifen as it does help decrease the risk
of
> > > > > recurrence.
> > > > > This is a difficult decision to make. I was afraid that I would be
> > > > > trading one devil for another. Take care.
> > > > > Suzanne
> > > > >
> > > > > deb grodin wrote:
> > > > > >
> > > > > > As most of you are aware I have been going back and forth
regarding
> > > > > > Tamoxifen. The time is near for me to decide, this Wednesday. If
> > anyone
> > > > > > has any information that might help me, or knows of any
questions
> > that I
> > > > > > should ask, please let me know. I have read everything that has
come
> > > > > > across MOL and saved most of it.
> > > > > > Thank you,
> > > > > > Debby
> > > > > > PS Lillian have you heard from Marty again regarding Barb?
> > > > >
> >
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