Re: [MOL] Deb/tamoxifen [00298] Medicine On Line


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Re: [MOL] Deb/tamoxifen



I have been very good and not saying anything nasty about tamoxifen for a
week now, this is most difficult for me.  I went and really studied your
situation and I would have to be incline to feel that your doctor is right
on track for your treatment.    Were I  you, the main thing I would look for
is a head pain right where the soft spot is, this was my first indication of
allergic reaction.  I would insist on the liver ensigns checked regularly
with the report sitting right in my own little hands.  The last is for all
Tamoxifen users, please, do not feel because you are on this drug you are in
the total safety zone, be diligent about your health, a friend of mine has
had reoccurring cancer while on Tamoxifen.  Now, I will shut my
mouth....love you all, lillian



----- Original Message -----
From: suzanne new <susienew@flash.net>
To: <mol-cancer@lists.meds.com>
Sent: Thursday, July 08, 1999 8:54 AM
Subject: Re: [MOL] Tamoxifen


> deb: I will have an ultrasound every 6 months, blood checked every 4
> months for the first 2 years then every 6 months. Believe me you will
> know a hot flash if and when you get one. It feels like nothing else I
> have ever experienced! Good Luck!
> Suzanne
>
> deb grodin wrote:
> >
> > Dear Suzanne,
> > Thank you for the information. Are you also getting ultrasounds done as
> > well as liver checks and how often are having blood drawn? Guess I'll
> > know what a hot flash feels like if I get one.
> > Debby
> >
> > suzanne new wrote:
> > >
> > > Hi deb: I started on Tamoxifen about 3 months ago. Like you I had a
lot
> > > of thinking to do before I decided to take it. I got most of my
> > > information over the form and as you know this drug is not without
risk!
> > > So far so good. The worst side effects I have experienced so far ar
hot
> > > flashes and water retention (I can live with that). I started soy
> > > protein shakes for the hot flashes, parsley and celery for water
> > > retention. The hot flashes and water retention seem better. I also
will
> > > inform my GYN doc that I am on tamoxifen. My onc will do a liver check
> > > every 4 months. As long as I don't experience any serious side effects
I
> > > will continue with the tamoxifen as it does help decrease the risk of
> > > recurrence.
> > > This is a difficult decision to make. I was afraid that I would be
> > > trading one devil for another. Take care.
> > > Suzanne
> > >
> > > deb grodin wrote:
> > > >
> > > > As most of you are aware I have been going back and forth regarding
> > > > Tamoxifen. The time is near for me to decide, this Wednesday. If
anyone
> > > > has any information that might help me, or knows of any questions
that I
> > > > should ask, please let me know. I have read everything that has come
> > > > across MOL and saved most of it.
> > > > Thank you,
> > > > Debby
> > > > PS Lillian have you heard from Marty again regarding Barb?
> > >
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