Re: [MOL] To Martha from Ryan [01282] Medicine On Line


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Re: [MOL] To Martha from Ryan



Dear Ryan,

You are already a Moler; you are a nice person, obviously, and I couldn't
imagine you being out of bounds.  Here, as much as we can, everyone helps
each other.  And everyone now includes you too!

Love and Hugs,
Martha
-----Original Message-----
From: Ryan <raskme@excite.com>
To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
Date: Wednesday, June 23, 1999 6:13 PM
Subject: [MOL] To Martha from Ryan


>Dear Martha,
>
>I appreciate the info, it helps to hear other experiences.  I'm sorry yours
>was so bad, but I want to hear it all, the good/bad/ugly.  The fear of the
>unknown is what is hell right now.
>
>Interestingly, you mentioned Bernie Siegel's book, some other people did
>also.  I found his website while looking for info, so in case anyone
>wants/needs it, here you go.
>
>http://www.m-2k.com/cdjg/bernie/
>
>In case this was one that Lillian had given me in that long list of info,
>please forgive me for overlooking it.  Also if this is out of line, just
>tell me, I don't want to overstep my bounds if links like these are not
>welcomed.  I thought it was a good one.
>
>Ryan
>
>> Dear Ryan,
>>
>> I had a very limited experience with chemo; one administration.  I had an
>> awful time, but you have to take into consideration that my doctor told
me
>I
>> wouldn't get sick, didn't give me anything to go home with for the
>nausea;
>> and that the doctor in general, was a bum.
>>
>> Since then, 12/97, I have met scads of people who went through chemo for
>> months, close to a year; who went to work, raised three kids, etc.
>>
>> My chin still drops as I listen to their stories, but there it is.  Make
>> sure you get something for the nausea to go home with.  I think sometimes
>> they give people steroids; but ask your doctor.  If he says there's
>nothing,
>> I would feel immediately suspicious.  If he says, you'll get some
>> anti-nausea meds at the same time you get the chemo; I'd be suspicious
>> again.  I got that too, but it only lasted for a few hours.
>>
>> Of course, you must take into consideration, I have breast cancer which
>is
>> not what you have; and anything I say about treatment is only from my
>> experience.
>>
>> Fatigue seems to be a real common experience.
>>
>> As others are saying, read Bernie Siegel's books, and a lot has to do
>with
>> attitude.  As Siegel says somewhere, even chemo can be looked at as a
>gift
>> if it helps with the cancer.
>>
>> Always here to listen like all,
>>
>> Martha
>> -----Original Message-----
>> From: Ryan <raskme@excite.com>
>> To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
>> Date: Tuesday, June 22, 1999 12:41 PM
>> Subject: Re: [MOL] About my inquiry
>>
>>
>> >Dear Nanc,
>> >
>> >Thank you for the helpful reply.  One of the drugs is vincristine and
>I've
>> >researched the side effects, but they say side effects vary from person
>to
>> >person, dosages, etc.  I just wondered what the experiences have been on
>> >here.  Hearing from "real people" rather than reports is what I'm after.
>> >Thanks for your input.
>> >
>> >I don't know what else to ask, I am very nervous, I am trying to stay
>busy
>> >with work and getting as much accomplished at homee as I can before the
>> >surgery/treatment, but I've been having problems with fatigue.  I have
>to
>> >get back to work, thank you, Ryan
>> >
>> >
>> >
>> >> Hi Ryan,
>> >> There are so many kinds of chemo, do you know what you will be given?
>My
>> >
>> >> hubby had Carboplatin and VP-16 (Etoposide) and on the first day of
the
>3
>> >day
>> >> treatments they would give him a nausea IV, then off for 21 days and
>> >repeat
>> >> it again for 6 rounds, then 33 hits of radiation.  He said he felt
>good
>> >the
>> >> whole time, lost his hair and had to had 2 units of blood during chemo
>> and
>> >
>> >> the same during radiation.  He did tire very easy, he would not have
>been
>> >
>> >> able to hold down a full time job.  He did putts out in the yard with
>> >> splitting would with a gas splitter, it was still hard work.  I hope
>this
>> >
>> >> answers your question.  As far as me being the caregiver, I thought he
>> >looked
>> >> like he was in pain, and thought he looked sicker, and was worried
>sick,
>> I
>> >
>> >> think I got more wore out driving him for treatments then he got tired
>> >having
>> >> them...LOL.  It will be hard on both of you.  Another thing I found
>out
>> >was
>> >> the family didn't want to talk to me about it and didn't accept the
>fact
>> >that
>> >> he had cancer and might die, and I sure couldn't cry in front of the
>kids
>> >or
>> >> Don.  I remember one day I cried so hard writing to the forum that I
>> could
>> >
>> >> hardly see what I was typing and thank God someone was on and got my
>> >letters
>> >> right away and posted right back.  I was OK after that, I sure don't
>know
>> >
>> >> what I would have done with out this forum.  They are what pulled us
>both
>> >
>> >> through this whole ordeal, I thank God for this forum.
>> >> You take care and know that I am here to answer anything you ask if I
>can
>> >and
>> >> it will be no punches pulled ok?
>> >> Love, hugs & Prayers to you and yours,
>> >> Nanc ():-)
>> >>
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