Re: [MOL] Urgent Query re Stage IV Adenocarcinoma Treatment [01273] Medicine On Line


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Re: [MOL] Urgent Query re Stage IV Adenocarcinoma Treatment



Dear Bess:  I am so sorry to hear about your husband's diagnosis.  I know this
is a very difficult time in all your lives and making decisions can sometimes be
overwhelming.  I have a different type of cancer, but the diagnosis I received
was MORE than grim.  I was told there was nothing that could be done and that I
could just go home and wait to die. I was told I would not make my 50th.
birthday - I'm headed for 52 today and my picture is in the Mol's album -
believe me I'm nowhere near dying - unless I slip on a banana peel in the bath
or something and hit my head.  I am very thankful to God and feel very blessed
about my health and I give credit to Him - doctors are not God even though many
of them think they are - they do not know when you are going to die. I am a firm
believer though too that God helps those who help themselves, and I know I have
researched and researched and tried new and leading edge therapies....which has
helped me stay alive way past the experts' predictions.  My oncologist wants to
write a paper on my case.  Also am getting ready to be profiled in a second
prime time special - the first was on Alternative Medicine in Jan 98 - this one
is on Immune Therapies for Cancer...so you see, what I am trying to say is much
depends on the patient and their caregivers and support network.  Statistics
mean very little, believe me.  I would suggest you both read a couple of
wonderful books which were very instrumental in giving the Big C a whole
different perspective to me - Dr Bernie Siegel's book "Love Medicine and
miracles"...Greg Anderson's "50 Essential Things to do when the doctor says it's
cancer"...and Chicken Soup for the Surviving Soul. They are all powerful and
inspirational and will give you a whole different view of surviving cancer and
about the tough cancering journey.  I'd be happy to help in any way I can.  Stay
focused on life, and keep the faith.  Become an advocate for your husband and
obtain second opinions, and third ones, read about the latest treatments out
there....there is much information and many resources available.  You have come
to one such invaluable resource - the Mol forum.  That's a great first step.
All my positive energies and thoughts and prayers are with you both.  Cori.

martha cerreto wrote:

> Dear Bess:
>
> This is obviously, a very personal decision.  Not to compare your husband to
> me, I am stage IV breast ca with mets to lungs, bones and the area around my
> abdomen.  I am  doing pretty well.  My mother always taught me that if you
> have to do something, what she wanted from me is to try as hard as I can.  I
> feel that  living certainly falls in that category of something I have to,
> and want to do.  But I certainly would have to respect anyone else's opinion
> too.
> Just for your information, my oncologist is a super doctor and a heck of a
> nice person.  Her name is Dr. Nancy Sklarin and her phone #is 212-639-5488.
> She works at Sloan.
>
> Love, hugs and prayers to you and your husband,
>
> Martha
>
> -----Original Message-----
> From: BesTom@AOL.COM <BesTom@AOL.COM>
> To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
> Date: Wednesday, June 23, 1999 6:47 AM
> Subject: [MOL] Urgent Query re Stage IV Adenocarcinoma Treatment
>
> >I'm a medical writer and my husband is a TV producer, a 62-year old
> charming
> >Japanese TV producer whom I love very much and would like to spend some
> more
> >time with.
> > .  Out of left field last week, it was discovered his plueral cavity was
> >filled with over a quart of fluid and there were "innumerable metastatic
> >densities" in both lungs.  We saw someone  in pulmonary at Sloan Kettering
> >and the preliminary diagnosis was Stage IV Adenocarcinoma.  Yesterday they
> >did scans of every inch of his body including bone scans and blood work.
> As
> >of tonight, the abdomen, blood, and bone scan were normal.  Don't know
> about
> >the head, etc. till tomorrow.  This may turn out to be nonspecific.  My
> >instinct is this is very grim and he could have very little time left.
> >Obviously an oncologist will have to handle this case and we'd like to get
> >several opinions.  Most of all I'd like to know if a strong round of
> >chemo/radiation in any combination holds the hope of prolonging his life
> for
> >any reasonable length of time or just making him sicker till he finally
> gives
> >out.  Also if any new protocols might be relevant?  I was the health proxy
> >for my sister-in-law who died a few years ago at age 45 of uterine leiyomyo
> >sarcoma.  She saw three top specialists and was given three radically
> >different treatment plans.  She refused all chemo and died 9 months later
> >with beauty and dignity.
> >    Reading some consumer comments on line is quite scary.  I know it's my
> >husband's decision but I hate to see him suffer.  Any suggestions,
> contacts,
> >or leads would be greatly appreciated.  Many many thanks.  Bess
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