----- Original Message -----
From: Ryan <raskme@excite.com>
To: <mol-cancer@lists.meds.com>
Sent: Saturday, June 19, 1999 7:00 PM
Subject: Re: [MOL] Fwd: help needed please
> Thanks for the info and reply. I have been looking for info on the net
and
> this will help. I also nee dhelp with my wife. she seems angry with me
for
> getting sick, like I am letting her down. I don't know what to do to help
> her. I wonder if anybody else has had this experinece and what you did.
> Thanks for helping, Ryan
>
>
> On Fri, 18 Jun 1999 15:37:18 -0700, Lillian wrote:
>
> > Dear Ryan: Welcome to our wonderful forum. I have included much
> > information and sites for you to go to and aquifer the knowledge you
need
> to
> > make sound decisions and take some control of your life back. If we
may
> be
> > of further help pls. just ask and by all means join in any chat
> conversation
> > you may wish. Your friend, lillian
> > <
> > Compliments of your Mol Cancer Forum
> > >>
> > >>
> > WELCOME TO YOUR MOL CANCER FORUM
> >
> > Here you will meet a wonderful caring group of individuals who are
> > cancering or who are loved ones and friends being advocates for those
> > cancering.
> > Individuals in this group are not in the medical professional field.
> > Therefore,we do not
> > endorse a treatment, drug or product. Our people combined do have many
> > year's of
> > accumulated knowledge and expierence, who come from all walks in life
> and
> > are able to
> > lend tremendous assistance to help you walk through this journey.
> >
> > There are a few matters of importance to address.
> > It is the general assumption of the group that one can use alternative
> > treatments (with your
> > doctors permission) in conjunction with traditional therapy.
> > We feel that an individual who has had testing and is returning to the
> > doctor should take
> > someone with them as an extra set of ears.
> > It must be remembered that this is a most stressful time for you. We
> also
> > agree that a
> > second or even a third opinion is healthy. One needs to shop for the
> right
> > doctor for them;
> > as each of us are so different not only in personality; but our bodies
> > react differently.
> > You should be seeking nothing but the best doctors and hospital,
> remember
> > this is your life
> > and you want to be in control. The best way to be in control is to
> acquire
> > all the information
> > needed for your particular cancer; so that you and your doctor can
> descide
> > the best
> > treatment for you.
> > We find stress is our worse enemy, it is so important to remove
yourself
> > from stressful
> > situations and non positive thinkers.
> > There are so many new drugs and treatments our there for most cancers
> that
> > lend hope to
> > all.
> > Be prepared for you doctors visits with questions. Should the doctor
> > interrupt you while
> > you are questioning explain that you have more questions. Make sure the
> > doctor speaks to
> > you in lay terms and that he is positive also.
> > Too often the doctor will give a gloomy statistical report, thus taking
> > hope away from the
> > patient and we find so many people who far out live the guess of any
> > doctor. Last; but
> > never least make sure that you eat healthy and that you keep your
immune
> > system built up.
> > Again, we are here for you, we are a place of compassionate comfort, a
> > place you can rant
> > and rave knowing that we too have done that. A place of shelter;
whereas
> > all of us know
> > what you are going through. Your friends of the MOL CANCER FORUM
> >
> > TRADITIONAL SITES
> >
> > National Cancer Institute http://rex.nci.nih.gov
> > Univ of Penn http://cancer.med.upenn.edu
> > Cancer Notes on the Net http://www.cancernews.com
> > Medicine On Line http://www.meds.com
> > MD Anderson http://www.mdanderson.org
> > Mem. Sloan-Kettering http://www.mskcc.org
> >
> > ALTERNATIVE MEDICINE SITES
> >
> > www.canceranswers.com
> > 85% CancerAnswers - Alternative Treatments
> > 84% Cancer Information -Alternative Treatments
> >
> > www.chiro.org
> > 84% CANCER TREATMENTS/ ALTERNATIVE
> > 84% Alternative Remedies for Cancer and other diseases.
> >
> > www.meds.com
> > 84% Re: Alternative cancer treatments [00299]
> > 83% 5. Internet Resources on Cancer
> >
> > See what the doctor says on alternative meds.
> > http:www.quackwatch.com/index.html.
> >
> >
> > MEDICAL DICTIONARIES
> >
> > omd@www.graylab.ac.uk
> > http://www.consearch.org.
> >
> > BOOKS
> > "50 Esential Things to Do When the Doctor
> > Says it is Cancer", Greg Anderson
> > Dr. Bernie Siegels "Love, Medicine and Miracles"
> > Dr. Carl Simontons "The Healing Journey"
> > Anne Frahms "Cancer Battle Plan"
> > Greg Andersons "50 Essential Things to Do When the Diagnosis is Cancer"
> > Resources: Support Services: Transportation & Lodging
> >
> > TRANSPORTATION & LODGING
> >
> > Air Care Alliance
> > 4620 Haygood Road, Suite 8
> > Virginia Beach, VA 23455
> > (800)296-1217 (National Patient Air Transport Helpline)
> > (757)318-9107 FAX
> > E-mail: mailto:aircarea@aol.com
> > Web site: http://www.angelflightfla.org/
> > A trade organization providing air transportation to ambulatory and
> > medically stable people.
> >
> > AirLifeLine
> > 6133 Freeport Boulevard
> > Sacramento, CA 95822
> > (916)429-2500
> > (800)446-1231
> > (916)429-2166 FAX
> > E-mail: mailto:staff@airlifeline.org
> > Web site: http://www.airlifeline.org/
> > Provides cost-assisted emergency medical transportation.
> >
> > Corporate Angel Network
> > Westchester County Airport, 1 Loop Road
> > White Plains, NY 10604
> > (914)328-1313
> > E-mail: mailto:info@corpangelnetwork.org
> > Web site: http://www.corpangelnetwork.org/
> > Provides free plane transportation for cancer patients undergoing
> treatment
> > from recognized cancer treatment centers.
> >
> > National Association of Hospital Hospitality Houses
> > 4915 Auburn Avenue
> > Bethesda, MD 20814
> > (800)542-9730
> > (301)961-3094
> > E-mail: mailto:nahhh@aol.com
> > Web site: http://www.visit-usa.com/hhh
> > Provides information on away from home lodging for patients and
families.
> >
> > National Patient Air Transport Helpline
> > P.O. Box 1940
> > Manassas, VA 22110
> > (800)296-1217
> > E-mail: mailto:npathmsg@aol.com
> > Web site: http://www.npath.org/
> > Provides referrals for charitable and discounted patient medical air
> > transport services.
> >
> > BONE MARROW,TISSUE & ORGAN DONOR
> >
> > Bone Marrow Transplant Newsletter
> > 1985 Spruce Avenue
> > Highland Park, IL 60035
> > (847)831-1913
> > (847)831-1943 FAX
> > E-mail: mailto:help@bmtnews.org
> > Web site: http://www.bmtnews.org/
> > Publishes quarterly newsletter for bone marrow peripheral stem cell
> > transplant patients; provides patient-to-survivor telephone link.
> >
> > Bone Marrow Transplant Family Support Network
> > P.O. Box 845
> > Avon, CT 06001
> > (800)826-9376
> > Provides a telephone support network, family counseling and education,
> peer
> > groups and insurance information for BMT patients and families.
> >
> > Living Bank
> > P.O. Box 6725
> > Houston, TX 77265
> > (800)528-2971
> > (713)528-2971
> > (713)961-0979 FAX
> > Promotes and facilitates organ and tissue donor commitments.
> >
> > National Marrow Donor Program
> > 3433 Broadway Street NE, Suite 500
> > Minneapolis, MN 55413
> > (612)627-5800
> > (800)526-7809
> > (800)MARROW2 (Donor Information)
> > Web site: http://www.marrow.org/
> > Maintains a registry of bone marrow donors; provides donor recruitment
> > information.
> >
> > National Bone Marrow Transplant Link (BMT Link)
> > 29209 Northwester Hwy. #624
> > Southfield, MI 48034
> > (800)LINK-BMT
> > (810)932-8483 FAX
> > Web site: http://comnet.org/nbmtlink
> > Provides information and support to BMT patients and families; promotes
> > public understanding and research for BMT issues.
> >
> > Organ Transplant Fund
> > 1102 Brookfield, Suite 202
> > Memphis, TN 38119
> > (901)684-1697
> > (800)489-3863
> > (901)684-1128 FAX
> > E-mail: mailto:atfnatl@aol.com
> > Web site: http://www.otf.org/
> > Provides financial and insurance assistance, patient advocacy and
housing
> > information during treatment for transplant recipients and their
> families.
> >
> > Transplant Foundation
> > 8002 Discovery Drive, Suite 310
> > Richmond, VA 23229
> > (804)285-5115
> > (804)288-2408 FAX
> > Provides financial assistance to offset cost of post-transplant
> medications;
> > acts as clearinghouse for transplant information.
> >
> > CHILDRENS HOPES & DREAMS FONDATION
> >
> > 1-201-361-7366
> >
> > HOME HEALTH CARE
> >
> > National Association for Home Care
> > c/o Consumer Guide
> > P.O. Box 14241
> > Washington, DC 20003
> > (202)547-7424
> > (202)547-3540 FAX
> > Web site: http://www.nahc.org/
> > Trade association providing referrals to home or hospice care.
> >
> > The Oley Foundation
> > 214 Hun Memorial, A-23
> > Albany Medical Center
> > Albany, NY 12208-3478
> > (518)262-5079
> > (800)776-OLEY
> > E-mail: mailto:taylor@ccgateway.amc.edu
> > Web site: http://www.wizvax.net/oleyfdn
> > Support for home enteral and/or parental nutrition therapy.
> >
> > Olsten HealthCare
> > 175 Broadhollow Road
> > Melville, NY 11747
> > (516)844-7800
> > (800)66-NURSE
> > Web site: http://www.olsten.com/
> > Provides home health care services including chemotherapy, nutrition
and
> > hydration
> > therapies, pain management, physical therapy, and general nursing
> services.
> >
> > Visiting Nurse Association of America National Office
> > 3801 East Florida Avenue, Suite 900
> > Denver, CO 80210
> > (888)866-8773
> > (303)753-0218
> > Provides skilled nursing and assisted living services.
> >
> > Amherst H. Wilder Foundation
> > 919 Lafond Avenue
> > St. Paul, MN 55104
> > (612)642-4000
> > (612)642-4068 FAX
> > Web site: http://www.wilder.org/
> > Provides assisted living and nursing home care services for the elderly
> in
> > the
> > Minneapolis area.
> >
> > Childrens' Hospice
> > 2202 Mt. Vernon Ave., Suite 3C
> > Alexandria, VA 22301
> > (703)684-0330
> > (703)684-0226 FAX
> > E-mail: mailto:chiorg@aol.com
> > Web site: http://www.chionline.org/
> > Provides information and referral services,counseling, support groups,
> > education, and
> > research aimed at improving hospice care for children.
> >
> > Choice in Dying
> > 1035 30th Street NW
> > Washington, DC 20007
> > (202)338-9790
> > (202)338-0242 FAX
> > Web site:http://www.choices.org/
> > Advocacy organization for end-of-life rights;provides legal counseling
> and
> > information on
> > end-of-life decisions.
> >
> > National Association for Home Care
> > c/o Consumer Guide
> > P.O. Box 14241
> > Washington, DC 20003
> > (202)547-7424
> > (202)547-3540 FAX
> > Web site: http://www.nahc.org/
> > Trade association that provides referrals to local hospice
> organizations.
> >
> > Hospice Education Institute/Hospicelink
> > 190 Westbrook Road
> > Essex, CT 06426
> > (860)767-1620
> > (800)331-1620
> > (860)767-2746 FAX
> > E-mail: mailto:hospiceall@aol.com
> > Provides information and referral services,education, advice and
> assistance
> > regarding
> > hospice and palliative care.
> >
> > National Hospice Organization
> > 1901 N. Moore Street, Suite 901
> > Arlington, VA 22209
> > (703)243-5900
> > (800)658-8898
> > (703)525-5762 FAX
> > E-mail: mailto:drsno@cais.com
> > Web site: http://www.nho.org/
> > Provides information and referrals to local hospitals, patient advocacy
> and
> > professional
> > education.
> >
> > National Institute for Jewish Hospice
> > 8723 Alden Drive, Suite 219
> > Los Angeles, CA 90048
> > (310)854-3036
> > (213)HOSPICE
> > (800)446-4448
> > Provides free telephone counseling and referrals; trains professionals
> in
> > the art of helping the
> > Jewish terminally ill.
> >
> > RESOURCES/ LEGAL
> >
> > Americans with Disabilities Act
> > U.S. Equal Employment Opportunity Commission
> > Office of Legal Council
> > 1801 L Street NW
> > Washington, DC 20507
> > (202)663-4503
> > Provides information and legal assistance regarding discrimination due
> to
> > illness or disability
> >
> > Family Medical leave Act
> > U.S. Department of Labor
> > Wage & Hour Division
> > 200 Constitution Avenue NW
> > Washington, DC 20210
> > (202)219-8412
> > Provides information on employment rights during medical leave due to
> > illness
> >
> > Support Services: INSURANCE & FINANCE
> >
> > American Association of Health Plans
> > Membership Department
> > 129 20th Street NW, Suite 600
> > Washington, DC 20036
> > (202)778-3200
> > Web site: http://www.aahp.org/
> > Insurance industry trade association that will provide information on
> > insurance and health care
> > issues.
> >
> > Blue Cross and Blue Shield Association
> > 675 North St. Claire Street
> > Chicago, IL 60601
> > (312)440-6000
> >
> > Department of Health and Human Services
> > Inspector General Hotline
> > Office of the Inspector General
> > P.O. Box 23489
> > Washington, DC 20026
> > (800)368-5779
> > U.S. government hotline for complaints regarding Medicare or Medicaid;
> > provides assistance with
> > issues of entitlements, benefits, insurance, and community resources.
> >
> > Disabled American Veterans
> > 807 Main Avenue SW
> > Washington, DC 20024
> > (202)554-3501
> > (202)554-3581 FAX
> > Web site: http://www.dav.org/
> > Provides assistance with health benefits for U.S. veterans.
> >
> > Hill-Burton Free Hospital Care
> > 5600 Fishers Lane, Room 7-47
> > Rockville, MD 20857
> > (800)683-0742 Hotline
> > (301)594-5999 FAX
> > Web site: http://www.hrsa.dhhs.gov/bhrd/dfcr/dfcrmain.htm
> > U.S. government program that can arrange for cost-assisted care for
> > disadvantaged individuals at
> > certain medical facilities or hospitals.
> >
> > National Insurance Consumer Hotline
> > 1001 Pennsylvania Avenue, NW
> > Washington, DC 20004
> > (800)942-4242
> > Provides assistance in finding insurance coverage, information on
> insurance
> > issues and a consumer
> > complaint service.
> >
> >
> > Support Services: HAIR LOSS
> >
> > Look Good, Feel Better
> > The American Cancer Society
> > (800)395-LOOK
> > Teaches women who have undergone cancer treatment how to improve
> appearance
> > through
> > cosmetics, wigs, scarfs, etc.
> >
> > Y-ME WIG
> > 212 West Van Buren Street, 4th Floor
> > Chicago, IL 60607
> > (800)221-2141
> > (312)294-8598 FAX
> > Web site: http://www.y-me.org/
> > Provides donated wigs free of charge.
> >
> > This MOL FORUM is intended to assist people with cancer, their family,
> > friends and caregivers find the information to help them make decisions
> > regarding treatment and management of their disease. Nothing presented
> > herein should be construed as a substitute for professional advice from
a
> > physician or medical practitioner. Reasonable efforts have been made to
> > ensure the accuracy of the information provided, but the Mol Forum makes
> no
> > warranty , nor endorses any recommendation, practice or product of any
> > organization or service contained herein.
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > >>
> > >> _______________________________________________________
> >
> >
> > ------------------------------------------------------------------------
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> > unsubscribe mol-cancer your-email-address
> > where the phrase your-email-address is replaced with your actual email
> > address.
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>
>
>
>
>
> _______________________________________________________
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