Charles,
I can sympathize entirely with you and your wife. My sister, Barb, nsclc,
stage four, now possibly a stage iiiB, with met to the spine, has been
bedridden since Dec 17th. Her tumor in her lung, the dr says, is gone, the
tumor around spinal cord has shrunk considerably. But why the pain??? The
pain is worse than before. She takes morphine, steroids, etc. Doesn't do
much for it at all. We have a hard time moving her to get her on the
bedpan, and also to raise her up in the bed when she slides down after a
while. It takes two people with her now just to try to move her without
hurting her so badly. She had thirty-something radiation hits, and a couple
of small doses of taxol/carboplatin. She is supposed to get more
taxol/carboplatin soon. But the drs got sidetracked because of her pain.
She is getting discouraged, she seems to be worse, not better.
The Dr. here is seeing her Friday. They are talking about putting an implant
in her back to relieve pain. They think maybe it is nerve damage now. Who
knows? First it was her back, now pain into her spine. Does anyone out
there know anything about an implant in your back for pain for nerve damage?
I think she has more broken ribs due to the tumor, but not sure. And the
thought of them trying to put an implant in her back bothers me. She is
already in a lot of pain, and I know they can't put her to sleep to do the
procedure.
I see all the beautiful stories in the forum about the cures, and the much
better patients. And I am so happy for them, but it is very difficult still
for some of us.
Let's just keep comparing knowledge, and praying daily for some relief for
the pain and a healing.
Keep the faith.
Gwen Kouts
-----Original Message-----
From: Charles Allen <charlesa@MAIL.CO.BEAUFORT.SC.US>
To: LUNG-ONC@LISTSERV.ACOR.ORG <LUNG-ONC@LISTSERV.ACOR.ORG>
Date: Monday, April 26, 1999 10:07 AM
Subject: [LUNG-ONC]
>I GESS THIS QUESTION IS TO EVERYONE THAT HAS ANY KNOW LEDGE OF MET TO THE
>SPINE. AS I WROTE EARLIER MY WIFE HAS NSCLC THAT MET TO HER SPINE. SHE HAS
A
>GREAT DEAL OF PAIN AND I AM CONCERNED AS TO WHY THE PAIN IN STILL SO GREAT.
>SHE HAS HAD ON ROUND OF CEMO (TAXEL/CARBO) AND 14 RADIATION TREAMENTS TO
THE
>SURGERY SIGHT ON THE SPINE.
>
>SHE HAS LOST ALMOST ALL USE OF HER HANDS. THE ONC SAY IT ISN'T THE TAXAL
BUT
>THAT IT IS FROM THE SPLINAL SURG. ?????????
>WE SEE THE SPINAL SUG. THIS WED AND START CEMO AGAIN ON MON. SHE SEEM SO
WEAK
>IF SHE IS UP FOR 15 MIN. SHE HAS TO LAY DOWN. AND HELP I WOULD BE GRATFUL.
>NSCLC STAGE IV ONY ONE MET SO FAR. DIG 10 FEB 99.
>
>GOD BLESS ALL OF YOU'
>
> CHARLIE (DOOZER@HARGRAY.COM) hame e-mail
>
>Anita Curran wrote:
>
>> In a message dated 4/23/99 5:16:38 PM EST, phs@DPRESS.DK writes:
>>
>> > he is hurting a lot more in the tumor areas.
>>
>> I did an informal survey on the AOL lung cancer support message board
about
>> pains from shrinking tumors. Many of us had pains in areas known to have
>> tumors. Subsequent CT scans confirmed that the tumors had shrunk. If I
>> remember rightly, no one had pains from growing tumors (except bone
mets).
>>
>> Hope this helps
>>
>> Anita
>
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