Re: [MOL] Susan [00046] Medicine On Line


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Re: [MOL] Susan



Hi susian,my name is Frank.I am the best looking of the group.Anyway,I just
want to welcome you to our wonderful family.God bless.Frank










----- Original Message -----
From: Lillian <firefly@islc.net>
To: <mol-cancer@lists.meds.com>
Sent: Friday, April 02, 1999 8:30 AM
Subject: Re: [MOL] Susan


> Hi Susan !  Nanc has sent your message on so that we can give you our
> official "Welcome" and some really good sites to help you.  Pls. know that
> there are so many wonderful folks on this forum of all ages and all
cancers,
> that you will gain much.  We are happy to have you, and know you can cry
> with us, laugh, vent, whatever it takes, we are all friends here, more
like
> a family.  Your friend, lillian
>
> WELCOME TO YOUR MOL CANCER FORUM
>
>  Here you will meet a wonderful caring group of individuals who are
> cancering or who are loved ones and friends being advocates for those
> cancering.
>  Individuals in this group are not in the medical professional field.
> Therefore,we do not
>  endorse a treatment, drug or product. Our people combined do have many
> year's of
>  accumulated knowledge and expierence, who come from all walks in life and
> are able to
>  lend tremendous assistance to help you walk through this journey.
>
>  There are a few matters of importance to address.
>  It is the general assumption of the group that one can use alternative
> treatments (with your
>  doctors permission) in conjunction with traditional therapy.
>  We feel that an individual who has had testing and is returning to the
> doctor should take
>  someone with them as an extra set of ears.
>  It must be remembered that this is a most stressful time for you. We also
> agree that a
>  second or even a third opinion is healthy. One needs to shop for the
right
> doctor for them;
>  as each of us are so different not only in personality; but our bodies
> react differently.
>  You should be seeking nothing but the best doctors and hospital, remember
> this is your life
>  and you want to be in control. The best way to be in control is to
acquire
> all the information
>  needed for your particular cancer; so that you and your doctor can
descide
> the best
>  treatment for you.
>  We find stress is our worse enemy, it is so important to remove yourself
> from stressful
>  situations and non positive thinkers.
>  There are so many new drugs and treatments our there for most cancers
that
> lend hope to
>  all.
>  Be prepared for you doctors visits with questions. Should the doctor
> interrupt you while
>  you are questioning explain that you have more questions. Make sure the
> doctor speaks to
>  you in lay terms and that he is positive also.
>  Too often the doctor will give a gloomy statistical report, thus taking
> hope away from the
>  patient and we find so many people who far out live the guess of any
> doctor. Last; but
>  never least make sure that you eat healthy and that you keep your immune
> system built up.
>  Again, we are here for you, we are a place of compassionate comfort, a
> place you can rant
>  and rave knowing that we too have done that. A place of shelter; whereas
> all of us know
>  what you are going through. Your friends of the MOL CANCER FORUM
>
> TRADITIONAL SITES
>
>  National Cancer Institute http://rex.nci.nih.gov
>  Univ of Penn http://cancer.med.upenn.edu
>  Cancer Notes on the Net http://www.cancernews.com
>  Medicine On Line http://www.meds.com
>  MD Anderson http://www.mdanderson.org
>  Mem. Sloan-Kettering http://www.mskcc.org
>
>  ALTERNATIVE MEDICINE SITES
>
>  www.canceranswers.com
>  85% CancerAnswers - Alternative Treatments
>  84% Cancer Information -Alternative Treatments
>
>  www.chiro.org
>  84% CANCER TREATMENTS/ ALTERNATIVE
>  84% Alternative Remedies for Cancer and other diseases.
>
>  www.meds.com
>  84% Re: Alternative cancer treatments [00299]
>  83% 5. Internet Resources on Cancer
>
> See what the doctor says on alternative meds.
> http:www.quackwatch.com/index.html.
>
>
>     MEDICAL DICTIONARIES
>
> omd@www.graylab.ac.uk
> http://www.consearch.org.
>
>                  BOOKS
> "50 Esential Things to Do When the Doctor
> Says it is Cancer", Greg Anderson
> Dr. Bernie Siegels "Love, Medicine and Miracles"
> Dr. Carl Simontons "The Healing Journey"
> Anne Frahms "Cancer Battle Plan"
> Greg Andersons "50 Essential Things to Do When the Diagnosis is Cancer"
> Resources: Support Services: Transportation & Lodging
>
>        TRANSPORTATION & LODGING
>
> Air Care Alliance
> 4620 Haygood Road, Suite 8
> Virginia Beach, VA 23455
> (800)296-1217 (National Patient Air Transport Helpline)
> (757)318-9107 FAX
> E-mail: mailto:aircarea@aol.com
> Web site: http://www.angelflightfla.org/
> A trade organization providing air transportation to ambulatory and
> medically stable people.
>
> AirLifeLine
> 6133 Freeport Boulevard
> Sacramento, CA 95822
> (916)429-2500
> (800)446-1231
> (916)429-2166 FAX
> E-mail: mailto:staff@airlifeline.org
> Web site: http://www.airlifeline.org/
> Provides cost-assisted emergency medical transportation.
>
> Corporate Angel Network
> Westchester County Airport, 1 Loop Road
> White Plains, NY 10604
> (914)328-1313
> E-mail: mailto:info@corpangelnetwork.org
> Web site: http://www.corpangelnetwork.org/
> Provides free plane transportation for cancer patients undergoing
treatment
> from recognized cancer treatment centers.
>
> National Association of Hospital Hospitality Houses
> 4915 Auburn Avenue
> Bethesda, MD 20814
> (800)542-9730
> (301)961-3094
> E-mail: mailto:nahhh@aol.com
> Web site: http://www.visit-usa.com/hhh
> Provides information on away from home lodging for patients and families.
>
> National Patient Air Transport Helpline
> P.O. Box 1940
> Manassas, VA 22110
> (800)296-1217
> E-mail: mailto:npathmsg@aol.com
> Web site: http://www.npath.org/
> Provides referrals for charitable and discounted patient medical air
> transport services.
>
>  BONE MARROW,TISSUE & ORGAN DONOR
>
> Bone Marrow Transplant Newsletter
> 1985 Spruce Avenue
> Highland Park, IL 60035
> (847)831-1913
> (847)831-1943 FAX
> E-mail: mailto:help@bmtnews.org
> Web site: http://www.bmtnews.org/
> Publishes quarterly newsletter for bone marrow peripheral stem cell
> transplant patients; provides patient-to-survivor telephone link.
>
> Bone Marrow Transplant Family Support Network
> P.O. Box 845
> Avon, CT 06001
> (800)826-9376
> Provides a telephone support network, family counseling and education,
peer
> groups and insurance information for BMT patients and families.
>
> Living Bank
> P.O. Box 6725
> Houston, TX 77265
> (800)528-2971
> (713)528-2971
> (713)961-0979 FAX
> Promotes and facilitates organ and tissue donor commitments.
>
> National Marrow Donor Program
> 3433 Broadway Street NE, Suite 500
> Minneapolis, MN 55413
> (612)627-5800
> (800)526-7809
> (800)MARROW2 (Donor Information)
> Web site: http://www.marrow.org/
> Maintains a registry of bone marrow donors; provides donor recruitment
> information.
>
> National Bone Marrow Transplant Link (BMT Link)
> 29209 Northwester Hwy. #624
> Southfield, MI 48034
> (800)LINK-BMT
> (810)932-8483 FAX
> Web site: http://comnet.org/nbmtlink
> Provides information and support to BMT patients and families; promotes
> public understanding and research for BMT issues.
>
> Organ Transplant Fund
> 1102 Brookfield, Suite 202
> Memphis, TN 38119
> (901)684-1697
> (800)489-3863
> (901)684-1128 FAX
> E-mail: mailto:atfnatl@aol.com
> Web site: http://www.otf.org/
> Provides financial and insurance assistance, patient advocacy and housing
> information during treatment for transplant recipients and their families.
>
> Transplant Foundation
> 8002 Discovery Drive, Suite 310
> Richmond, VA 23229
> (804)285-5115
> (804)288-2408 FAX
> Provides financial assistance to offset cost of post-transplant
medications;
> acts as clearinghouse for transplant information.
>
> CHILDRENS HOPES & DREAMS FONDATION
>
>                 1-201-361-7366
>
>             HOME HEALTH CARE
>
>  National Association for Home Care
>  c/o Consumer Guide
>  P.O. Box 14241
>  Washington, DC 20003
>  (202)547-7424
>  (202)547-3540 FAX
>  Web site: http://www.nahc.org/
>  Trade association providing referrals to home or hospice care.
>
>  The Oley Foundation
>  214 Hun Memorial, A-23
>  Albany Medical Center
>  Albany, NY 12208-3478
>  (518)262-5079
>  (800)776-OLEY
>  E-mail: mailto:taylor@ccgateway.amc.edu
>  Web site: http://www.wizvax.net/oleyfdn
>  Support for home enteral and/or parental nutrition therapy.
>
>  Olsten HealthCare
>  175 Broadhollow Road
>  Melville, NY 11747
>  (516)844-7800
>  (800)66-NURSE
>  Web site: http://www.olsten.com/
>  Provides home health care services including chemotherapy, nutrition and
> hydration
>  therapies, pain management, physical therapy, and general nursing
services.
>
>  Visiting Nurse Association of America National Office
>  3801 East Florida Avenue, Suite 900
>  Denver, CO 80210
>  (888)866-8773
>  (303)753-0218
>  Provides skilled nursing and assisted living services.
>
>  Amherst H. Wilder Foundation
>  919 Lafond Avenue
>  St. Paul, MN 55104
>  (612)642-4000
>  (612)642-4068 FAX
>  Web site: http://www.wilder.org/
>  Provides assisted living and nursing home care services for the elderly
in
> the
>  Minneapolis area.
>
>  Childrens' Hospice
>  2202 Mt. Vernon Ave., Suite 3C
>  Alexandria, VA 22301
>  (703)684-0330
>  (703)684-0226 FAX
>  E-mail: mailto:chiorg@aol.com
>  Web site: http://www.chionline.org/
>  Provides information and referral services,counseling, support groups,
> education, and
>  research aimed at improving hospice care for children.
>
>  Choice in Dying
>  1035 30th Street NW
>  Washington, DC 20007
>  (202)338-9790
>  (202)338-0242 FAX
>  Web site:http://www.choices.org/
>  Advocacy organization for end-of-life rights;provides legal counseling
and
> information on
>  end-of-life decisions.
>
>  National Association for Home Care
>  c/o Consumer Guide
>  P.O. Box 14241
>  Washington, DC 20003
>  (202)547-7424
>  (202)547-3540 FAX
>  Web site: http://www.nahc.org/
>  Trade association that provides referrals to local hospice organizations.
>
>  Hospice Education Institute/Hospicelink
>  190 Westbrook Road
>  Essex, CT 06426
>  (860)767-1620
>  (800)331-1620
>  (860)767-2746 FAX
>  E-mail: mailto:hospiceall@aol.com
>  Provides information and referral services,education, advice and
assistance
> regarding
>  hospice and palliative care.
>
>  National Hospice Organization
>  1901 N. Moore Street, Suite 901
>  Arlington, VA 22209
>  (703)243-5900
>  (800)658-8898
>  (703)525-5762 FAX
>  E-mail: mailto:drsno@cais.com
>  Web site: http://www.nho.org/
>  Provides information and referrals to local hospitals, patient advocacy
and
> professional
>  education.
>
>  National Institute for Jewish Hospice
>  8723 Alden Drive, Suite 219
>  Los Angeles, CA 90048
>  (310)854-3036
>  (213)HOSPICE
>  (800)446-4448
>  Provides free telephone counseling and referrals; trains professionals in
> the art of helping the
>  Jewish terminally ill.
>
>           RESOURCES/ LEGAL
>
>  Americans with Disabilities Act
>  U.S. Equal Employment Opportunity Commission
>  Office of Legal Council
>  1801 L Street NW
>  Washington, DC 20507
>  (202)663-4503
>  Provides information and legal assistance regarding discrimination due to
> illness or disability
>
>  Family Medical leave Act
>  U.S. Department of Labor
>  Wage & Hour Division
>  200 Constitution Avenue NW
>  Washington, DC 20210
>  (202)219-8412
>  Provides information on employment rights during medical leave due to
> illness
>
>  Support Services: INSURANCE & FINANCE
>
>  American Association of Health Plans
>  Membership Department
>  129 20th Street NW, Suite 600
>  Washington, DC 20036
>  (202)778-3200
>  Web site: http://www.aahp.org/
>  Insurance industry trade association that will provide information on
> insurance and health care
>  issues.
>
>  Blue Cross and Blue Shield Association
>  675 North St. Claire Street
>  Chicago, IL 60601
>  (312)440-6000
>
>  Department of Health and Human Services
>  Inspector General Hotline
>  Office of the Inspector General
>  P.O. Box 23489
>  Washington, DC 20026
>  (800)368-5779
>  U.S. government hotline for complaints regarding Medicare or Medicaid;
> provides assistance with
>  issues of entitlements, benefits, insurance, and community resources.
>
>  Disabled American Veterans
>  807 Main Avenue SW
>  Washington, DC 20024
>  (202)554-3501
>  (202)554-3581 FAX
>  Web site: http://www.dav.org/
>  Provides assistance with health benefits for U.S. veterans.
>
>  Hill-Burton Free Hospital Care
>  5600 Fishers Lane, Room 7-47
>  Rockville, MD 20857
>  (800)683-0742 Hotline
>  (301)594-5999 FAX
>  Web site: http://www.hrsa.dhhs.gov/bhrd/dfcr/dfcrmain.htm
>  U.S. government program that can arrange for cost-assisted care for
> disadvantaged individuals at
>  certain medical facilities or hospitals.
>
>  National Insurance Consumer Hotline
>  1001 Pennsylvania Avenue, NW
>  Washington, DC 20004
>  (800)942-4242
>  Provides assistance in finding insurance coverage, information on
insurance
> issues and a consumer
>  complaint service.
>
>
>      Support Services: HAIR LOSS
>
>  Look Good, Feel Better
>  The American Cancer Society
>  (800)395-LOOK
>  Teaches women who have undergone cancer treatment how to improve
appearance
> through
>  cosmetics, wigs, scarfs, etc.
>
>  Y-ME WIG
>  212 West Van Buren Street, 4th Floor
>  Chicago, IL 60607
>  (800)221-2141
>  (312)294-8598 FAX
>  Web site: http://www.y-me.org/
>  Provides donated wigs free of charge.
>
>  This MOL FORUM is intended to assist people with cancer, their family,
> friends and caregivers find the information to help them make decisions
> regarding treatment and management of their disease. Nothing presented
> herein should be construed as a substitute for professional advice from a
> physician or medical practitioner. Reasonable efforts have been made to
> ensure the accuracy of the information provided, but the Mol Forum makes
no
> warranty , nor endorses any recommendation, practice or product of any
> organization or service contained herein.
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> -----Original Message-----
> From: NLPOST@AOL.COM <NLPOST@AOL.COM>
> To: sstylin@yahoo.com <sstylin@yahoo.com>; mol-cancer@lists.meds.com
> <mol-cancer@lists.meds.com>
> Cc: firefly@islc.net <firefly@islc.net>
> Date: Thursday, April 01, 1999 8:12 PM
> Subject: [MOL] Re: information(She isn't on MOL) needs our help and
> support...
>
>
> >Hi Susan,
> >Do you know what kind of cancer they are calling it?  Small cell lung
> cancer,
> >non small cell lung cancer, ect?  I hate to tell you this, but it really
> >doesn't sound to good.  What kind of Chemo are they using?  I am sending
> this
> >to Lil, we are on the MOL cancer support forum, keep in touch and we'll
see
> >what information we can come up with for you and your to young father.
OK.
> >Much Love and many prayers to you and yours,
> >Nanc
> >
> >In a message dated 4/1/99 10:46:34 PM Eastern Standard Time,
> >sstylin@yahoo.com writes:
> >
> ><< Hey Nanc,
> >     I found u online through a cancer support page, I don't remember
> > which one I looked at so many. Right now all I know is that my father
> > has a mass in his lungs where they think the cancer originated, and has
> > spread through his bones. The diagnosis was made when his neck started
> > bothering him and they found a tumor next to his spinal cord. The
> > doctors say that there isn't much to do except keep him comfortable, but
> > I am still trying to be hopeful.
> >    My dad and mother live in Loretto, Tenn. My dad is 57 and otherwise
> > in good health. I am 27 and live in Lawrenceburg, Tn. My dad took his
> > first radiation treatment today, and starts chemo Tues. other than that
> > he is on no meds except for pain.
> >   Hope to hear from u soon.
> >           Susan >>
> >
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