[MOL] Lillian [01799] Medicine On Line


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[MOL] Lillian



Thank you Lillian for the update!  Between you & Nanc & the others I've
become very excited about Staten Island's options!!  Due to the
out-of-the-way location of Pop's tumor, and that it is primary & not
anywhere else in his body, this Radiosurgery seems to be our best option
with the least side effects!
Thank you all again so very much!!!
Love Y'all,
Laurie

-----Original Message-----
From: Lillian <firefly@islc.net>
To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
Date: Wednesday, March 31, 1999 6:34 PM
Subject: Re: [MOL] Laurie Poole/Reply


>Laurie:  Radio surgery started out primary for brain tumors; but it has
>advanced to many others now, including liver and pancreas. They are also
>known for doing mats. cancers.  The Statin Is. Hos. does some 10,000
>surgeries a year; so they are definitely in the know. There is no pain, no
>blood; etc.  I had to respond to you as the Molers got me this new computer
>brain and are expecting to work me to the bone!  LOL!  I understand they
>will crack the whip on me if I don't stay in shape!!!!  Jesting with you,
>they are my family and I love them all.  By the way since you have decided
>to stay I put your e-mail address in my address book.  Guess your official
>now....
>Your friend, lillian
>
>
>
>-----Original Message-----
>From: dlpooleparty@mindspring.com <dlpooleparty@mindspring.com>
>To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
>Date: Wednesday, March 31, 1999 5:16 PM
>Subject: Re: [MOL] Laurie Poole
>
>
>>Hi Joan!
>>Don't consider it an intrusion at all!!  I greatly appreciate the input!
I
>>am trying to research that radiosurgery program...very interesting.  This
>>clip came from the Meds.com page & we're going to check with the new Dr.
at
>>Emory about it...
>>One new type of radiation therapy is called radiosurgery. In radiosurgery,
>>radiation is directly focused on the tumor, and involves as little normal
>>tissue as possible. Radiosurgery is usually used as treatment of tumors
>that
>>involve the brain.
>>Cryosurgery freezes the tumor and kills it. Photodynamic therapy uses a
>>certain type of light and a special chemical to kill cancer cells. Laser
>>therapy uses a narrow beam of light to kill cancer cells. Cryosurgery and
>>photodynamic therapy are usually used in clinical trials.
>>Staten Island sounds promising.  Can't wait to hear more on their
programs.
>>I am absolutely elated with this group I have found - you are all truly
>>angels - you're always there watching out for each other!  I will stay...
>>Thanks!
>>Laurie
>>-----Original Message-----
>>From: Joan <zaiger@cdsnet.net>
>>To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
>>Date: Wednesday, March 31, 1999 5:34 AM
>>Subject: Re: [MOL] Laurie Poole
>>
>>
>>>I hope you don't mind my intrusion--Laurie, my husband has nsclc, but not
>>only
>>>does he have a primary in the upper right lung but he has many small
>>nodules
>>>throughout both lungs, making conventional radiation or surgery
>impossible.
>>He has
>>>been on carboplatin and taxol, but is now on Navelbine alone. We were
told
>>there
>>>was nothing more than that they could do for him, but we applied to
Staten
>>Island
>>>University of Health, and he was accepted into their stereotactic body
>>>radiosurgery program there. They treat many kinds of cancer there with
>this
>>>procedure. Even though we live in Oregon, we have decided to give it a
>try.
>>They
>>>are very nice people. My husband is 71, he starts his treatments on April
>>8. He
>>>was diagnosed in December of 1997. Conventional radiation would have
taken
>>his
>>>entire lung because of the location of the small tumors.
>>>
>>>The wonderful people on this forum have done more for us than you could
>>possible
>>>imagine, so stay with us. Your friend, Joan
>>>
>>>CCR0417@AOL.COM wrote:
>>>
>>>> Laurie,
>>>> My Dad, age 75, has NSCLC. Orig in both lungs and some nodes.  Smaller
>>new
>>>> growths in the rt lung cancer were removed and has not returned, thank
>>God!
>>>> He was dx on 8/24/98 and has had been having chemo since Oct.
(taxoltier
>>&
>>>> carboplatin).  Everything I had read indicated that NSCLC doesn't
>respond
>>to
>>>> chemo, only to radiation so I was very much opposed to the chemo
therapy
>>that
>>>> he and his doctor chose.  Additionally, my father refused a 2nd
opinion,
>>so I
>>>> was really terrified.
>>>>
>>>> Though the chemo is pretty hard on him it is WORKING!  There has been
no
>>>> return of the cancer or spread of it thus far, again THANK GOD!  The
>>larger
>>>> primary tumor in the left lung, which was originally the size of a
>walnut
>>has
>>>> shrunk a great deal, so the doctor says.  Also my father's voice has
>>returned;
>>>> he lost his voice completely after a bronchioscope last October.
>>>>
>>>> Hope this helps you to consider the option of chemo.
>>>>
>>>> Chris R.
>>>> -----------------------------------------------------------------------
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