Re: [MOL] regarding my wife and melanoma [00581] Medicine On Line


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Re: [MOL] regarding my wife and melanoma



 I appreciate your replies, we are looking forward to learning more from you.  Your cancer series is excellent.  Thanks, Mike and Robin
--

On Sun, 7 Mar 1999 18:58:18    lillian wrote:
>Yes; Mike you and Robin have come to the right place.  Welcome to our
>wonderful forum.  I have attatched sites for you to go to.  This is the time
>that you use to acquire all the knowledge about cancer you can.  That gives
>some control back to Robin in making decisions about her treatment plan;
>etc.  Your friend, lillian
>
>WELCOME TO YOUR MOL CANCER FORUM
>
> Here you will meet a wonderful caring group of individuals who are
>cancering or who are loved ones and friends being advocates for those
>cancering.
> Individuals in this group are not in the medical professional field.
>Therefore,we do not
> endorse a treatment, drug or product. Our people combined do have many
>year's of
> accumulated knowledge and expierence, who come from all walks in life and
>are able to
> lend tremendous assistance to help you walk through this journey.
>
> There are a few matters of importance to address.
> It is the general assumption of the group that one can use alternative
>treatments (with your
> doctors permission) in conjunction with traditional therapy.
> We feel that an individual who has had testing and is returning to the
>doctor should take
> someone with them as an extra set of ears.
> It must be remembered that this is a most stressful time for you. We also
>agree that a
> second or even a third opinion is healthy. One needs to shop for the right
>doctor for them;
> as each of us are so different not only in personality; but our bodies
>react differently.
> You should be seeking nothing but the best doctors and hospital, remember
>this is your life
> and you want to be in control. The best way to be in control is to acquire
>all the information
> needed for your particular cancer; so that you and your doctor can descide
>the best
> treatment for you.
> We find stress is our worse enemy, it is so important to remove yourself
>from stressful
> situations and non positive thinkers.
> There are so many new drugs and treatments our there for most cancers that
>lend hope to
> all.
> Be prepared for you doctors visits with questions. Should the doctor
>interrupt you while
> you are questioning explain that you have more questions. Make sure the
>doctor speaks to
> you in lay terms and that he is positive also.
> Too often the doctor will give a gloomy statistical report, thus taking
>hope away from the
> patient and we find so many people who far out live the guess of any
>doctor. Last; but
> never least make sure that you eat healthy and that you keep your immune
>system built up.
> Again, we are here for you, we are a place of compassionate comfort, a
>place you can rant
> and rave knowing that we too have done that. A place of shelter; whereas
>all of us know
> what you are going through. Your friends of the MOL CANCER FORUM
>
>TRADITIONAL SITES
>
> National Cancer Institute http://rex.nci.nih.gov
> Univ of Penn http://cancer.med.upenn.edu
> Cancer Notes on the Net http://www.cancernews.com
> Medicine On Line http://www.meds.com
> MD Anderson http://www.mdanderson.org
> Mem. Sloan-Kettering http://www.mskcc.org
>
> ALTERNATIVE MEDICINE SITES
>
> www.canceranswers.com
> 85% CancerAnswers - Alternative Treatments
> 84% Cancer Information -Alternative Treatments
>
> www.chiro.org
> 84% CANCER TREATMENTS/ ALTERNATIVE
> 84% Alternative Remedies for Cancer and other diseases.
>
> www.meds.com
> 84% Re: Alternative cancer treatments [00299]
> 83% 5. Internet Resources on Cancer
>
>See what the doctor says on alternative meds.
>http:www.quackwatch.com/index.html.
>
>
>    MEDICAL DICTIONARIES
>
>omd@www.graylab.ac.uk
>http://www.consearch.org.
>
>                 BOOKS
>"50 Esential Things to Do When the Doctor
>Says it is Cancer", Greg Anderson
>Dr. Bernie Siegels "Love, Medicine and Miracles"
>Dr. Carl Simontons "The Healing Journey"
>Anne Frahms "Cancer Battle Plan"
>Greg Andersons "50 Essential Things to Do When the Diagnosis is Cancer"
>Resources: Support Services: Transportation & Lodging
>
>       TRANSPORTATION & LODGING
>
>Air Care Alliance
>4620 Haygood Road, Suite 8
>Virginia Beach, VA 23455
>(800)296-1217 (National Patient Air Transport Helpline)
>(757)318-9107 FAX
>E-mail: mailto:aircarea@aol.com
>Web site: http://www.angelflightfla.org/
>A trade organization providing air transportation to ambulatory and
>medically stable people.
>
>AirLifeLine
>6133 Freeport Boulevard
>Sacramento, CA 95822
>(916)429-2500
>(800)446-1231
>(916)429-2166 FAX
>E-mail: mailto:staff@airlifeline.org
>Web site: http://www.airlifeline.org/
>Provides cost-assisted emergency medical transportation.
>
>Corporate Angel Network
>Westchester County Airport, 1 Loop Road
>White Plains, NY 10604
>(914)328-1313
>E-mail: mailto:info@corpangelnetwork.org
>Web site: http://www.corpangelnetwork.org/
>Provides free plane transportation for cancer patients undergoing treatment
>from recognized cancer treatment centers.
>
>National Association of Hospital Hospitality Houses
>4915 Auburn Avenue
>Bethesda, MD 20814
>(800)542-9730
>(301)961-3094
>E-mail: mailto:nahhh@aol.com
>Web site: http://www.visit-usa.com/hhh
>Provides information on away from home lodging for patients and families.
>
>National Patient Air Transport Helpline
>P.O. Box 1940
>Manassas, VA 22110
>(800)296-1217
>E-mail: mailto:npathmsg@aol.com
>Web site: http://www.npath.org/
>Provides referrals for charitable and discounted patient medical air
>transport services.
>
> BONE MARROW,TISSUE & ORGAN DONOR
>
>Bone Marrow Transplant Newsletter
>1985 Spruce Avenue
>Highland Park, IL 60035
>(847)831-1913
>(847)831-1943 FAX
>E-mail: mailto:help@bmtnews.org
>Web site: http://www.bmtnews.org/
>Publishes quarterly newsletter for bone marrow peripheral stem cell
>transplant patients; provides patient-to-survivor telephone link.
>
>Bone Marrow Transplant Family Support Network
>P.O. Box 845
>Avon, CT 06001
>(800)826-9376
>Provides a telephone support network, family counseling and education, peer
>groups and insurance information for BMT patients and families.
>
>Living Bank
>P.O. Box 6725
>Houston, TX 77265
>(800)528-2971
>(713)528-2971
>(713)961-0979 FAX
>Promotes and facilitates organ and tissue donor commitments.
>
>National Marrow Donor Program
>3433 Broadway Street NE, Suite 500
>Minneapolis, MN 55413
>(612)627-5800
>(800)526-7809
>(800)MARROW2 (Donor Information)
>Web site: http://www.marrow.org/
>Maintains a registry of bone marrow donors; provides donor recruitment
>information.
>
>National Bone Marrow Transplant Link (BMT Link)
>29209 Northwester Hwy. #624
>Southfield, MI 48034
>(800)LINK-BMT
>(810)932-8483 FAX
>Web site: http://comnet.org/nbmtlink
>Provides information and support to BMT patients and families; promotes
>public understanding and research for BMT issues.
>
>Organ Transplant Fund
>1102 Brookfield, Suite 202
>Memphis, TN 38119
>(901)684-1697
>(800)489-3863
>(901)684-1128 FAX
>E-mail: mailto:atfnatl@aol.com
>Web site: http://www.otf.org/
>Provides financial and insurance assistance, patient advocacy and housing
>information during treatment for transplant recipients and their families.
>
>Transplant Foundation
>8002 Discovery Drive, Suite 310
>Richmond, VA 23229
>(804)285-5115
>(804)288-2408 FAX
>Provides financial assistance to offset cost of post-transplant medications;
>acts as clearinghouse for transplant information.
>
>CHILDRENS HOPES & DREAMS FONDATION
>
>                1-201-361-7366
>
>            HOME HEALTH CARE
>
> National Association for Home Care
> c/o Consumer Guide
> P.O. Box 14241
> Washington, DC 20003
> (202)547-7424
> (202)547-3540 FAX
> Web site: http://www.nahc.org/
> Trade association providing referrals to home or hospice care.
>
> The Oley Foundation
> 214 Hun Memorial, A-23
> Albany Medical Center
> Albany, NY 12208-3478
> (518)262-5079
> (800)776-OLEY
> E-mail: mailto:taylor@ccgateway.amc.edu
> Web site: http://www.wizvax.net/oleyfdn
> Support for home enteral and/or parental nutrition therapy.
>
> Olsten HealthCare
> 175 Broadhollow Road
> Melville, NY 11747
> (516)844-7800
> (800)66-NURSE
> Web site: http://www.olsten.com/
> Provides home health care services including chemotherapy, nutrition and
>hydration
> therapies, pain management, physical therapy, and general nursing services.
>
> Visiting Nurse Association of America National Office
> 3801 East Florida Avenue, Suite 900
> Denver, CO 80210
> (888)866-8773
> (303)753-0218
> Provides skilled nursing and assisted living services.
>
> Amherst H. Wilder Foundation
> 919 Lafond Avenue
> St. Paul, MN 55104
> (612)642-4000
> (612)642-4068 FAX
> Web site: http://www.wilder.org/
> Provides assisted living and nursing home care services for the elderly in
>the
> Minneapolis area.
>
> Childrens' Hospice
> 2202 Mt. Vernon Ave., Suite 3C
> Alexandria, VA 22301
> (703)684-0330
> (703)684-0226 FAX
> E-mail: mailto:chiorg@aol.com
> Web site: http://www.chionline.org/
> Provides information and referral services,counseling, support groups,
>education, and
> research aimed at improving hospice care for children.
>
> Choice in Dying
> 1035 30th Street NW
> Washington, DC 20007
> (202)338-9790
> (202)338-0242 FAX
> Web site:http://www.choices.org/
> Advocacy organization for end-of-life rights;provides legal counseling and
>information on
> end-of-life decisions.
>
> National Association for Home Care
> c/o Consumer Guide
> P.O. Box 14241
> Washington, DC 20003
> (202)547-7424
> (202)547-3540 FAX
> Web site: http://www.nahc.org/
> Trade association that provides referrals to local hospice organizations.
>
> Hospice Education Institute/Hospicelink
> 190 Westbrook Road
> Essex, CT 06426
> (860)767-1620
> (800)331-1620
> (860)767-2746 FAX
> E-mail: mailto:hospiceall@aol.com
> Provides information and referral services,education, advice and assistance
>regarding
> hospice and palliative care.
>
> National Hospice Organization
> 1901 N. Moore Street, Suite 901
> Arlington, VA 22209
> (703)243-5900
> (800)658-8898
> (703)525-5762 FAX
> E-mail: mailto:drsno@cais.com
> Web site: http://www.nho.org/
> Provides information and referrals to local hospitals, patient advocacy and
>professional
> education.
>
> National Institute for Jewish Hospice
> 8723 Alden Drive, Suite 219
> Los Angeles, CA 90048
> (310)854-3036
> (213)HOSPICE
> (800)446-4448
> Provides free telephone counseling and referrals; trains professionals in
>the art of helping the
> Jewish terminally ill.
>
>          RESOURCES/ LEGAL
>
> Americans with Disabilities Act
> U.S. Equal Employment Opportunity Commission
> Office of Legal Council
> 1801 L Street NW
> Washington, DC 20507
> (202)663-4503
> Provides information and legal assistance regarding discrimination due to
>illness or disability
>
> Family Medical leave Act
> U.S. Department of Labor
> Wage & Hour Division
> 200 Constitution Avenue NW
> Washington, DC 20210
> (202)219-8412
> Provides information on employment rights during medical leave due to
>illness
>
> Support Services: INSURANCE & FINANCE
>
> American Association of Health Plans
> Membership Department
> 129 20th Street NW, Suite 600
> Washington, DC 20036
> (202)778-3200
> Web site: http://www.aahp.org/
> Insurance industry trade association that will provide information on
>insurance and health care
> issues.
>
> Blue Cross and Blue Shield Association
> 675 North St. Claire Street
> Chicago, IL 60601
> (312)440-6000
>
> Department of Health and Human Services
> Inspector General Hotline
> Office of the Inspector General
> P.O. Box 23489
> Washington, DC 20026
> (800)368-5779
> U.S. government hotline for complaints regarding Medicare or Medicaid;
>provides assistance with
> issues of entitlements, benefits, insurance, and community resources.
>
> Disabled American Veterans
> 807 Main Avenue SW
> Washington, DC 20024
> (202)554-3501
> (202)554-3581 FAX
> Web site: http://www.dav.org/
> Provides assistance with health benefits for U.S. veterans.
>
> Hill-Burton Free Hospital Care
> 5600 Fishers Lane, Room 7-47
> Rockville, MD 20857
> (800)683-0742 Hotline
> (301)594-5999 FAX
> Web site: http://www.hrsa.dhhs.gov/bhrd/dfcr/dfcrmain.htm
> U.S. government program that can arrange for cost-assisted care for
>disadvantaged individuals at
> certain medical facilities or hospitals.
>
> National Insurance Consumer Hotline
> 1001 Pennsylvania Avenue, NW
> Washington, DC 20004
> (800)942-4242
> Provides assistance in finding insurance coverage, information on insurance
>issues and a consumer
> complaint service.
>
>
>     Support Services: HAIR LOSS
>
> Look Good, Feel Better
> The American Cancer Society
> (800)395-LOOK
> Teaches women who have undergone cancer treatment how to improve appearance
>through
> cosmetics, wigs, scarfs, etc.
>
> Y-ME WIG
> 212 West Van Buren Street, 4th Floor
> Chicago, IL 60607
> (800)221-2141
> (312)294-8598 FAX
> Web site: http://www.y-me.org/
> Provides donated wigs free of charge.
>
> This MOL FORUM is intended to assist people with cancer, their family,
>friends and caregivers find the information to help them make decisions
>regarding treatment and management of their disease. Nothing presented
>herein should be construed as a substitute for professional advice from a
>physician or medical practitioner. Reasonable efforts have been made to
>ensure the accuracy of the information provided, but the Mol Forum makes no
>warranty , nor endorses any recommendation, practice or product of any
>organization or service contained herein.
>
>
>
>
>>
>
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