WELCOME TO YOUR MOL CANCER FORUM
Here you will meet a wonderful caring group of individuals who are
cancering or who are loved ones and friends being advocates for those cancering.
Individuals in this group are not in the medical professional field.
Therefore,we do not
endorse a treatment, drug or product. Our people
combined do have many year's of
accumulated knowledge and expierence,
who come from all walks in life and are able to
lend tremendous
assistance to help you walk through this journey.
There are a few matters of importance to address.
It is the
general assumption of the group that one can use alternative treatments (with
your
doctors permission) in conjunction with traditional therapy.
We feel that an individual who has had testing and is returning to the
doctor should take
someone with them as an extra set of ears.
It must be remembered that this is a most stressful time for you. We
also agree that a
second or even a third opinion is healthy. One needs
to shop for the right doctor for them;
as each of us are so different
not only in personality; but our bodies react differently.
You should
be seeking nothing but the best doctors and hospital, remember this is your life
and you want to be in control. The best way to be in control is to
acquire all the information
needed for your particular cancer; so that
you and your doctor can descide the best
treatment for you.
We find stress is our worse enemy, it is so important to remove
yourself from stressful
situations and non positive thinkers.
There are so many new drugs and treatments our there for most cancers
that lend hope to
all.
Be prepared for you doctors visits
with questions. Should the doctor interrupt you while
you are
questioning explain that you have more questions. Make sure the doctor speaks to
you in lay terms and that he is positive also.
Too often the
doctor will give a gloomy statistical report, thus taking hope away from the
patient and we find so many people who far out live the guess of any
doctor. Last; but
never least make sure that you eat healthy and that
you keep your immune system built up.
Again, we are here for you, we
are a place of compassionate comfort, a place you can rant
and rave
knowing that we too have done that. A place of shelter; whereas all of us know
what you are going through. Your friends of the MOL CANCER FORUM
TRADITIONAL SITES
ALTERNATIVE MEDICINE SITES
www.canceranswers.com
85% CancerAnswers - Alternative Treatments
84% Cancer
Information -Alternative Treatments
www.chiro.org 84% CANCER
TREATMENTS/ ALTERNATIVE
84% Alternative Remedies for Cancer and other
diseases.
www.meds.com 84% Re:
Alternative cancer treatments [00299]
83% 5. Internet Resources on
Cancer
See what the doctor says on alternative
meds.
http:www.quackwatch.com/index.html.
MEDICAL DICTIONARIES
omd@www.graylab.ac.ukhttp://www.consearch.org.
BOOKS
"50 Esential Things to Do When the Doctor
Says it is
Cancer", Greg Anderson
Dr. Bernie Siegels "Love, Medicine and
Miracles"
Dr. Carl Simontons "The Healing Journey"
Anne
Frahms "Cancer Battle Plan"
Greg Andersons "50 Essential
Things to Do When the Diagnosis is Cancer"
Resources: Support Services:
Transportation & Lodging
TRANSPORTATION & LODGING
Air Care Alliance
4620 Haygood Road, Suite 8
Virginia Beach, VA
23455
(800)296-1217 (National Patient Air Transport Helpline)
(757)318-9107 FAX
E-mail:
mailto:aircarea@aol.com Web site:
http://www.angelflightfla.org/ A
trade organization providing air transportation to ambulatory and medically
stable people.
National Association of Hospital Hospitality Houses
4915 Auburn Avenue
Bethesda, MD 20814
(800)542-9730
(301)961-3094
E-mail:
mailto:nahhh@aol.com Web site:
http://www.visit-usa.com/hhh
Provides information on away from home lodging for patients and families.
National Patient Air Transport Helpline
P.O. Box 1940
Manassas, VA
22110
(800)296-1217
E-mail:
mailto:npathmsg@aol.com Web site:
http://www.npath.org/ Provides referrals
for charitable and discounted patient medical air transport services.
BONE MARROW,TISSUE & ORGAN DONOR
Bone Marrow Transplant Newsletter
1985 Spruce Avenue
Highland Park,
IL 60035
(847)831-1913
(847)831-1943 FAX
E-mail:
mailto:help@bmtnews.org Web site:
http://www.bmtnews.org/ Publishes
quarterly newsletter for bone marrow peripheral stem cell transplant patients;
provides patient-to-survivor telephone link.
Bone Marrow Transplant Family Support Network
P.O. Box 845
Avon, CT
06001
(800)826-9376
Provides a telephone support network, family
counseling and education, peer groups and insurance information for BMT patients
and families.
Living Bank
P.O. Box 6725
Houston, TX 77265
(800)528-2971
(713)528-2971
(713)961-0979 FAX
Promotes and facilitates organ and
tissue donor commitments.
National Marrow Donor Program
3433 Broadway Street NE, Suite 500
Minneapolis, MN 55413
(612)627-5800
(800)526-7809
(800)MARROW2
(Donor Information)
Web site:
http://www.marrow.org/ Maintains a
registry of bone marrow donors; provides donor recruitment information.
National Bone Marrow Transplant Link (BMT Link)
29209 Northwester Hwy.
#624
Southfield, MI 48034
(800)LINK-BMT
(810)932-8483 FAX
Web
site:
http://comnet.org/nbmtlink
Provides information and support to BMT patients and families; promotes
public understanding and research for BMT issues.
Organ Transplant Fund
1102 Brookfield, Suite 202
Memphis, TN 38119
(901)684-1697
(800)489-3863
(901)684-1128 FAX
E-mail:
mailto:atfnatl@aol.com Web site:
http://www.otf.org/ Provides financial and
insurance assistance, patient advocacy and housing information during treatment
for transplant recipients and their families.
Transplant Foundation
8002 Discovery Drive, Suite 310
Richmond, VA
23229
(804)285-5115
(804)288-2408 FAX
Provides financial assistance
to offset cost of post-transplant medications; acts as clearinghouse for
transplant information.
CHILDRENS HOPES & DREAMS FONDATION
1-201-361-7366
HOME
HEALTH CARE
National Association for Home Care
c/o Consumer Guide
P.O. Box 14241
Washington, DC 20003
(202)547-7424
(202)547-3540 FAX
Web site:
http://www.nahc.org/ Trade association
providing referrals to home or hospice care.
Olsten HealthCare
175 Broadhollow Road
Melville,
NY 11747
(516)844-7800
(800)66-NURSE
Web site:
http://www.olsten.com/ Provides home
health care services including chemotherapy, nutrition and hydration
therapies, pain management, physical therapy, and general nursing
services.
Visiting Nurse Association of America National Office
3801
East Florida Avenue, Suite 900
Denver, CO 80210
(888)866-8773
(303)753-0218
Provides skilled
nursing and assisted living services.
Amherst H. Wilder Foundation
919 Lafond Avenue
St. Paul, MN 55104
(612)642-4000
(612)642-4068 FAX
Web site:
http://www.wilder.org/
Provides assisted living and nursing home care services for the
elderly in the
Minneapolis area.
Childrens' Hospice
2202 Mt. Vernon Ave., Suite 3C
Alexandria, VA 22301
(703)684-0330
(703)684-0226
FAX
E-mail:
mailto:chiorg@aol.com
Web site:
http://www.chionline.org/
Provides information and referral services,counseling, support groups,
education, and
research aimed at improving hospice care for children.
Choice in Dying
1035 30th Street NW
Washington,
DC 20007
(202)338-9790
(202)338-0242 FAX
Web
site:http://www.choices.org/
Advocacy organization for end-of-life
rights;provides legal counseling and information on
end-of-life
decisions.
National Association for Home Care
c/o Consumer Guide
P.O. Box 14241
Washington, DC 20003
(202)547-7424
(202)547-3540 FAX
Web site:
http://www.nahc.org/ Trade association
that provides referrals to local hospice organizations.
Hospice Education Institute/Hospicelink
190 Westbrook Road
Essex, CT 06426
(860)767-1620
(800)331-1620
(860)767-2746 FAX
E-mail:
mailto:hospiceall@aol.com
Provides information and referral services,education, advice and
assistance regarding
hospice and palliative care.
National Hospice Organization
1901 N. Moore Street, Suite
901
Arlington, VA 22209
(703)243-5900
(800)658-8898
(703)525-5762 FAX
E-mail:
mailto:drsno@cais.com Web site:
http://www.nho.org/ Provides
information and referrals to local hospitals, patient advocacy and professional
education.
National Institute for Jewish Hospice
8723 Alden Drive,
Suite 219
Los Angeles, CA 90048
(310)854-3036
(213)HOSPICE
(800)446-4448
Provides free telephone
counseling and referrals; trains professionals in the art of helping the
Jewish terminally ill.
RESOURCES/ LEGAL
Americans with Disabilities Act
U.S. Equal Employment
Opportunity Commission
Office of Legal Council
1801 L Street
NW
Washington, DC 20507
(202)663-4503
Provides
information and legal assistance regarding discrimination due to illness or
disability
Family Medical leave Act
U.S. Department of Labor
Wage & Hour Division
200 Constitution Avenue NW
Washington, DC 20210
(202)219-8412
Provides
information on employment rights during medical leave due to illness
Support Services: INSURANCE & FINANCE
American Association of Health Plans
Membership Department
129 20th Street NW, Suite 600
Washington, DC 20036
(202)778-3200
Web site:
http://www.aahp.org/ Insurance
industry trade association that will provide information on insurance and health
care
issues.
Blue Cross and Blue Shield Association
675 North St. Claire
Street
Chicago, IL 60601
(312)440-6000
Department of Health and Human Services
Inspector General
Hotline
Office of the Inspector General
P.O. Box 23489
Washington, DC 20026
(800)368-5779
U.S. government
hotline for complaints regarding Medicare or Medicaid; provides assistance with
issues of entitlements, benefits, insurance, and community resources.
Disabled American Veterans
807 Main Avenue SW
Washington, DC 20024
(202)554-3501
(202)554-3581
FAX
Web site:
http://www.dav.org/
Provides assistance with health benefits for U.S. veterans.
Hill-Burton Free Hospital Care
5600 Fishers Lane, Room 7-47
Rockville, MD 20857
(800)683-0742 Hotline
(301)594-5999 FAX
Web site:
http://www.hrsa.dhhs.gov/bhrd/dfcr/dfcrmain.htm
U.S. government program that can arrange for cost-assisted care for
disadvantaged individuals at
certain medical facilities or hospitals.
National Insurance Consumer Hotline
1001 Pennsylvania
Avenue, NW
Washington, DC 20004
(800)942-4242
Provides assistance in finding insurance coverage, information on
insurance issues and a consumer
complaint service.
Support Services: HAIR LOSS
Look Good, Feel Better
The American Cancer Society
(800)395-LOOK
Teaches women who have undergone cancer
treatment how to improve appearance through
cosmetics, wigs, scarfs,
etc.
Y-ME WIG
212 West Van Buren Street, 4th Floor
Chicago, IL 60607
(800)221-2141
(312)294-8598 FAX
Web site:
http://www.y-me.org/
Provides donated wigs free of charge.
This MOL FORUM is
intended to assist people with cancer, their family, friends and caregivers find
the information to help them make decisions regarding treatment and management
of their disease. Nothing presented herein should be construed as a substitute
for professional advice from a physician or medical practitioner. Reasonable
efforts have been made to ensure the accuracy of the information provided, but
the Mol Forum makes no warranty , nor endorses any recommendation, practice or
product of any organization or service contained herein.
