Fw: [MOL] My friend needs information/Reply [03433] Medicine On Line


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Fw: [MOL] My friend needs information/Reply




-----Original Message-----
From: firefly <firefly@islc.net>
To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
Cc: FOXXMOLDER@AOL.COM) <FOXXMOLDER@AOL.COM)>
Date: Friday, February 26, 1999 8:34 PM
Subject: Re: [MOL] My friend needs information/Reply


>Dear Friends:  I can only suggest one thing and that is to call the NCI @
>1-800-4-CANCER for the information you are needing.  Know that we will keep
>you both in our prayers as you travel this journey and that with so many
new
>drugs and treatments, it has to lend hope.  God bless, your friend, Lillian
>of MOL (Chris Friend)
>-----Original Message-----
>From: PSerritell@AOL.COM <PSerritell@AOL.COM>
>To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
>Date: Friday, February 26, 1999 6:53 PM
>Subject: [MOL] My friend needs information
>
>
>>
>>Hello My Dear Friends of the MOL Forum:
>>
>>I'm in need of help for my Friend Kathy and her husband Will.
>>Kathy & Will's story is below.
>>If you can help her please send any information directly to her email
>>(FOXXMOLDER@AOL.COM)
>>
>>Thank you so much I appreciate all the help you can give.
>>Love PJ:  read on for Kathy's story to me:
>>==========
>>
>>In '93 Will got very ill and the doctors took a long time trying to figure
>out
>>the problem.
>>He waited almost 2 years for a new liver and in the fall of '94 his life
>was
>>saved by a liver transplant.  According to his family he had less than a
>week
>>to live at that time.
>>The biopsy showed Epithelioid Hemangioendothelioma.
>>The operation had complications.  (lungs collapsed, induced coma, etc.)
>>At that time it was discovered that the same cells were in his lungs and
>"hot
>>spots" on his ribs.  Scans and other tests showed no movement.
>>So since there was no spreading apparent he concentrated on getting
>stronger
>>and returning to work after a 2 year LOA.
>>We met in the summer of '95.
>>I was going through the hardest emotional time for various reasons and he
>had
>>the physical problems at his end.  (We have all bases covered between us.)
>I
>>knew from the day I met him that his life span was/is shorter than the
>"norm".
>>(he is also diabetic...since age 12) Even though I knew this, it didn't
>stop
>>me from falling in love with him and his optimistic spirit immediately.
We
>>married a year later.  He kept getting stronger and my "head condition"
has
>>been better dealt with through counseling.  Now, last summer, the bad
news.
>>The same cells are now showing up on his new liver.  (4 years + now.)
>>He also had pain in his arm and they removed a mass.  It was said to be
>scar
>>tissue from all the scans and tests on it....but upon biopsy it has shown
>to
>>be the same cell they compared to the liver slides.
>>He is back to work full-time now and no one who didn't know could ever
>think
>>he was sick by looking at him.
>>We are in Hartford, Connecticut.
>>The doctors say 500 to 1000 people in the US have this type.  He tried the
>>drug thalidomide....he got too sick from it and stopped.  The spots are
>>getting larger.  One of our biggest concerns is our doctor isn't in touch
>with
>>any other doctors treating this exact same cancer cell.  Do you or your
>>Internet friends have anyway of finding those 500 people afflicted with
the
>>same type?  Thanks in advance for anything you can do, PJ.    Feel free to
>>copy and send all or parts of what I have written to anyone you can think
>of.
>>The more people who know we need help, the better in my opinion.  (Maybe
>Will
>>does not share this thinking, but I'm assuming I will never have to give
>our
>>exact address or last name.....)
>>Sincerely,
>>Kathy.....Will's wife....age 34.  (no children....we decided life was
going
>to
>>be tricky enough for us without adding to the recipe of our life.)
>>
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>

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