[MOL] ACUP, Barb, Karin [00787] Medicine On Line


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[MOL] ACUP, Barb, Karin



Thakks, Karin, I got the site. Will spend some time looking it over. Jeanne
 11:37 AM 1/7/99 -0600, you wrote:
>Barbara & Jeanne and all
>Hi!  Saw your posts and I think I have mentioned it before but wanted to let
>you know that I also found a message board (though not yet nearly as active
>as this one) that deals specifically with adenocarcinoma of unknown primary
>(my dad was diagnosed with this in 7/98).  The address is
>ACUP@listserv.acor.org .  There is not much information about this type of
>cancer available and I thought you might be interested in yet another
>resource.  Jeanne it sounds as though you must be doing something right and
>I am glad for your success.  I agree that gathering all available
>information is a very vital step in determining your treatment as opposed to
>letting you treatment be determined by one Dr's opinion.  Take care all!  My
>thoughts are with you.  Karin
>-----Original Message-----
>From: james kissinger <jkissing@uvic.ca>
>To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
>Date: Wednesday, January 06, 1999 9:26 PM
>Subject: [MOL] adenocarcinoma unknown primary
>
>
>>Barbara, I have been diagnosed with adenocarcinoma, primary unknown in Dec
>>1997. The original symptom was a pleural effusion and the fluid tested
>>positive for adenocinaroma cells. So far I have had ultrasound, CT scans, a
>>laproscope with biopsies of the abdominal wall and reproductive glands and
>>blood and tumour markers. I was offered no treatment as the original doctor
>>said that there was no real protocol for me as all these tests were
>>negative. I am still have no symptoms. We "fired" the first doctor and now
>>have a new oncologist. She can't offer anything more in way of diagnostics
>>(this is Canada)as it would not help in treatment. So we found a
>>radiologist doing research in Ontario (the other end of the country) who
>>will do a PET scan for free. I am finally booked for a colonscopy as well.
>>We immediately started on a megavitamin therapy plan, saunas, a major diet
>>change, essaic and walking. Prayer and meditation helps as well. A positive
>>attitude helps. In fact, we have explored a lot of alternative therapies as
>>well all designed to boost the immune system so that it can fight off the
>>cancer invasion.
>>My latest x-ray and blood and tumor markers are normal so I must be doing
>>something right. I can't say what exactly the "something right is, though.
>>
>>Research and keep hope alive. Please keep in touch with MOL. You will find
>>a lot of help and support here.
>>
>>Jeanne
>>
>>
>>
>>At 01:30 PM 12/30/98 EST, you wrote:
>>>Thank you very much for your notice on the internet regarding
>adenocarcinoma.
>>>My husband has been diagnosed with adenocarcinoma unknown primary.  His
>only
>>>symptom is a swollen leg due to cancer in a pelvic lymph node.  the lymph
>>node
>>>was biopsied and found to be adenocarcinoma.  No primary site has been
>found
>>>in spite of colonoscopy, cystoscopy, prostate exam and numberous CT scans.
>> He
>>>is presently undergoing chemotherapy with taxol and carboplatin (two
>>>treatments so far with little or no response).  If you can provide any
>>further
>>>info, it would be greatly appreciated.  My email address is
>BERNRB@aol.com.
>>>
>>>Again, many thanks,
>>>
>>>Barbara Berning
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