Re: [MOL] adenocarcinoma unknown primary [00579] Medicine On Line


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Re: [MOL] adenocarcinoma unknown primary



Barbara & Jeanne and all
Hi!  Saw your posts and I think I have mentioned it before but wanted to let
you know that I also found a message board (though not yet nearly as active
as this one) that deals specifically with adenocarcinoma of unknown primary
(my dad was diagnosed with this in 7/98).  The address is
ACUP@listserv.acor.org .  There is not much information about this type of
cancer available and I thought you might be interested in yet another
resource.  Jeanne it sounds as though you must be doing something right and
I am glad for your success.  I agree that gathering all available
information is a very vital step in determining your treatment as opposed to
letting you treatment be determined by one Dr's opinion.  Take care all!  My
thoughts are with you.  Karin
-----Original Message-----
From: james kissinger <jkissing@uvic.ca>
To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
Date: Wednesday, January 06, 1999 9:26 PM
Subject: [MOL] adenocarcinoma unknown primary


>Barbara, I have been diagnosed with adenocarcinoma, primary unknown in Dec
>1997. The original symptom was a pleural effusion and the fluid tested
>positive for adenocinaroma cells. So far I have had ultrasound, CT scans, a
>laproscope with biopsies of the abdominal wall and reproductive glands and
>blood and tumour markers. I was offered no treatment as the original doctor
>said that there was no real protocol for me as all these tests were
>negative. I am still have no symptoms. We "fired" the first doctor and now
>have a new oncologist. She can't offer anything more in way of diagnostics
>(this is Canada)as it would not help in treatment. So we found a
>radiologist doing research in Ontario (the other end of the country) who
>will do a PET scan for free. I am finally booked for a colonscopy as well.
>We immediately started on a megavitamin therapy plan, saunas, a major diet
>change, essaic and walking. Prayer and meditation helps as well. A positive
>attitude helps. In fact, we have explored a lot of alternative therapies as
>well all designed to boost the immune system so that it can fight off the
>cancer invasion.
>My latest x-ray and blood and tumor markers are normal so I must be doing
>something right. I can't say what exactly the "something right is, though.
>
>Research and keep hope alive. Please keep in touch with MOL. You will find
>a lot of help and support here.
>
>Jeanne
>
>
>
>At 01:30 PM 12/30/98 EST, you wrote:
>>Thank you very much for your notice on the internet regarding
adenocarcinoma.
>>My husband has been diagnosed with adenocarcinoma unknown primary.  His
only
>>symptom is a swollen leg due to cancer in a pelvic lymph node.  the lymph
>node
>>was biopsied and found to be adenocarcinoma.  No primary site has been
found
>>in spite of colonoscopy, cystoscopy, prostate exam and numberous CT scans.
> He
>>is presently undergoing chemotherapy with taxol and carboplatin (two
>>treatments so far with little or no response).  If you can provide any
>further
>>info, it would be greatly appreciated.  My email address is
BERNRB@aol.com.
>>
>>Again, many thanks,
>>
>>Barbara Berning
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