Suzanne, good to see that you feeling better as you take the time to type a
longee. The treatments do a number on your memory but it should come back.
Right, folks? Jeanne
At 06:36 PM 12/29/98 -0500, you wrote:
>Dear Mary - I can understand you not remembering what everone's health
>status is as there are so many of us. :)
>
>I am 52 years old and have stage IV nsclc. This was staged by my surgeon
>at the end of June or beginning of July - geesh, talk about your memory! LOL
>
>However, I have rcently heard an administrative assistant in my doctors
>office refer to it as stage iv andrecarcenoma. Not sure what the
>difference is, but it appears to me that it is not a great different. One
>day when I come out of this fog, am sure will all be clear.
>
>Anyway, as I recall (correct me if I am wrong) that Angelo is also stage 4
>and it seems you said one time he had a spot on his brain and somewhere
>else as well and that he was 42. Is my memory correct? Your and your
>family's determination to support him loving and completely really stood
>out to me for some reason. Not sure what it was as every caregiver on this
>list is determined to support and care in ways that in no way could be
>called reasonable - just loving and unselfish. And that's true of all the
>caregivers here.
>
>But for some reason you and Angelo stood out in my mind. That is why I
>think of you so often.
>
>As for my diagnostic stuff, been pricked so many times am beginning to feel
>like a very large pin cushion, had both internal and external sonegrams, so
>many chest x-rays I have lost count, 1 bone scan, and this Friday will be,
>I think, my 4th CT scan - all with contrast and one with the upper GI stuff
>or maybe all the GI stuff - been a long time since I Had GI stuff - like
>1968 :) Think the way the procedures are done might have changed a bit.
>
>As for treatments - I am constantly on Procrit. Over 13 weeks, I had 10
>weeks of Taxol and Navelbine. At the end of the time, my cancer markers
>had almost doubled. So more book work, etc, and finally it was decided
>that I have a 3 week treatment which included a portable pump for one week
>- the pump had a drug called topotecan. The following week I took VP16
>orally 3 times a day and the followin week I had off.
>
>the second sequence was somewaht diffused as oral VP16 temporarily became
>unavailable from the manufacturer, so in the last cycle I got increased
>doses of it. Oh joy? Oh Rapture??
>
>And because of the holidays I have received 2 weeks between 3 week cycles.
>
>With this treatment cycle I am more fatigued than ever before and my short
>term memory may a well be long gone considering how often it is present and
>working, but one siginificant has changed.
>
>I now have the WILL to do things, not just the feeling that I should. I
>don't always have the way, but with the will I am actually getting more
>things done, albeit slowly, than I have for a long time.
>
>So that's everything up to date and I hope it answers all your questions
Mary.
>Love to you both and continued good news.
> Suzanne
>
>P.S. Re Angelo's back pain - I am quite tall and have had back pain all my
>life because I have to bend to do everything. Since cancer, it is worse,
>but if I move around a bit it will ease up
>
>At 02:48 PM 12/28/98 -0800, you wrote:
>>Dear Suzanne,
>>
>>Glad to hear from you. Angelo is now scheduled for a CT scan and a
>>Bone Scan in two weeks to see whats going on in the rest of his body.
>>We will know more after them. He has been having a lot of back pain
>>lately. They did a lower lumbar x-ray Wednesday and I have been trying
>>to contact someone with the results. The Dr. seems to think that his
>>lower back pain is due to lack of exercise ( since Angelo has had his
>>back go out on him before) . The dr. said depending on the x-ray report
>>he may have Angelo do some physical therapy for his back. I pray that
>>that is all it is and not the cancer in the bone causing the pain.
>>
>>What treatments have you received and have you gotten any encouraging
>>results from them? I did not realize that you had NSCLC also. What
>>stage were you diagnosed with and when? I'm just full of questions.
>>I have probably talked to you about this before but forgotten who has
>>what kind and everything.
>>
>>Hope you had a nice christmas,
>>Love,
>>Mary
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