Re: [MOL] Is there hope?/ Yes, there is HOPE! [00265] Medicine On Line


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Re: [MOL] Is there hope?/ Yes, there is HOPE!



Dear Michael:  I realize that you are all devestated right now; but believe
me they have come a long way with treatments for colon cancer.  I think the
fact that 4 months was wasted is certainly adding to the stress of finding
out it is cancer.  Most cancers of the colon tend to grow less rapidly than
other forms of cancer, this is to your Dads advantage.  I want you to also
know that a doctor can only perform the cancer treatments afforded by the
hospital he is associated with; so it will be up to you to explore the sites
listed for the latest treatments and where they are performed.  Please know
that we will keep your father and all of you in our prayers and hope you
stay and chat with us.  One can learn so much from so many wonderful warm
folks.  Your friend, lillian


WELCOME TO YOUR MOL CANCER FORUM

 Here you will meet a wonderful caring group of individuals who are
cancering or who are loved ones and friends being advocates for those
cancering.
 Individuals in this group are not in the medical professional field.
Therefore,we do not
 endorse a treatment, drug or product. Our people combined do have many
year's of
 accumulated knowledge and expierence, who come from all walks in life and
are able to
 lend tremendous assistance to help you walk through this journey.

 There are a few matters of importance to address.
 It is the general assumption of the group that one can use alternative
treatments (with your
 doctors permission) in conjunction with traditional therapy.
 We feel that an individual who has had testing and is returning to the
doctor should take
 someone with them as an extra set of ears.
 It must be remembered that this is a most stressful time for you. We also
agree that a
 second or even a third opinion is healthy. One needs to shop for the right
doctor for them;
 as each of us are so different not only in personality; but our bodies
react differently.
 You should be seeking nothing but the best doctors and hospital, remember
this is your life
 and you want to be in control. The best way to be in control is to acquire
all the information
 needed for your particular cancer; so that you and your doctor can descide
the best
 treatment for you.
 We find stress is our worse enemy, it is so important to remove yourself
from stressful
 situations and non positive thinkers.
 There are so many new drugs and treatments our there for most cancers that
lend hope to
 all.
 Be prepared for you doctors visits with questions. Should the doctor
interrupt you while
 you are questioning explain that you have more questions. Make sure the
doctor speaks to
 you in lay terms and that he is positive also.
 Too often the doctor will give a gloomy statistical report, thus taking
hope away from the
 patient and we find so many people who far out live the guess of any
doctor. Last; but
 never least make sure that you eat healthy and that you keep your immune
system built up.
 Again, we are here for you, we are a place of compassionate comfort, a
place you can rant
 and rave knowing that we too have done that. A place of shelter; whereas
all of us know
 what you are going through. Your friends of the MOL CANCER FORUM

TRADITIONAL SITES

 National Cancer Institute http://rex.nci.nih.gov
 Univ of Penn http://cancer.med.upenn.edu
 Cancer Notes on the Net http://www.cancernews.com
 Medicine On Line http://www.meds.com
 MD Anderson http://www.mdanderson.org
 Mem. Sloan-Kettering http://www.mskcc.org

 ALTERNATIVE MEDICINE SITES

 www.canceranswers.com
 85% CancerAnswers - Alternative Treatments
 84% Cancer Information -Alternative Treatments

 www.chiro.org
 84% CANCER TREATMENTS/ ALTERNATIVE
 84% Alternative Remedies for Cancer and other diseases.

 www.meds.com
 84% Re: Alternative cancer treatments [00299]
 83% 5. Internet Resources on Cancer

See what the doctor says on alternative meds.
http:www.quackwatch.com/index.html.


    MEDICAL DICTIONARIES

omd@www.graylab.ac.uk
http://www.consearch.org.

                 BOOKS
"50 Esential Things to Do When the Doctor
Says it is Cancer", Greg Anderson
Dr. Bernie Siegels "Love, Medicine and Miracles"
Dr. Carl Simontons "The Healing Journey"
Anne Frahms "Cancer Battle Plan"
Greg Andersons "50 Essential Things to Do When the Diagnosis is Cancer"
Resources: Support Services: Transportation & Lodging

       TRANSPORTATION & LODGING

Air Care Alliance
4620 Haygood Road, Suite 8
Virginia Beach, VA 23455
(800)296-1217 (National Patient Air Transport Helpline)
(757)318-9107 FAX
E-mail: mailto:aircarea@aol.com
Web site: http://www.angelflightfla.org/
A trade organization providing air transportation to ambulatory and
medically stable people.

AirLifeLine
6133 Freeport Boulevard
Sacramento, CA 95822
(916)429-2500
(800)446-1231
(916)429-2166 FAX
E-mail: mailto:staff@airlifeline.org
Web site: http://www.airlifeline.org/
Provides cost-assisted emergency medical transportation.

Corporate Angel Network
Westchester County Airport, 1 Loop Road
White Plains, NY 10604
(914)328-1313
E-mail: mailto:info@corpangelnetwork.org
Web site: http://www.corpangelnetwork.org/
Provides free plane transportation for cancer patients undergoing treatment
from recognized cancer treatment centers.

National Association of Hospital Hospitality Houses
4915 Auburn Avenue
Bethesda, MD 20814
(800)542-9730
(301)961-3094
E-mail: mailto:nahhh@aol.com
Web site: http://www.visit-usa.com/hhh
Provides information on away from home lodging for patients and families.

National Patient Air Transport Helpline
P.O. Box 1940
Manassas, VA 22110
(800)296-1217
E-mail: mailto:npathmsg@aol.com
Web site: http://www.npath.org/
Provides referrals for charitable and discounted patient medical air
transport services.

 BONE MARROW,TISSUE & ORGAN DONOR

Bone Marrow Transplant Newsletter
1985 Spruce Avenue
Highland Park, IL 60035
(847)831-1913
(847)831-1943 FAX
E-mail: mailto:help@bmtnews.org
Web site: http://www.bmtnews.org/
Publishes quarterly newsletter for bone marrow peripheral stem cell
transplant patients; provides patient-to-survivor telephone link.

Bone Marrow Transplant Family Support Network
P.O. Box 845
Avon, CT 06001
(800)826-9376
Provides a telephone support network, family counseling and education, peer
groups and insurance information for BMT patients and families.

Living Bank
P.O. Box 6725
Houston, TX 77265
(800)528-2971
(713)528-2971
(713)961-0979 FAX
Promotes and facilitates organ and tissue donor commitments.

National Marrow Donor Program
3433 Broadway Street NE, Suite 500
Minneapolis, MN 55413
(612)627-5800
(800)526-7809
(800)MARROW2 (Donor Information)
Web site: http://www.marrow.org/
Maintains a registry of bone marrow donors; provides donor recruitment
information.

National Bone Marrow Transplant Link (BMT Link)
29209 Northwester Hwy. #624
Southfield, MI 48034
(800)LINK-BMT
(810)932-8483 FAX
Web site: http://comnet.org/nbmtlink
Provides information and support to BMT patients and families; promotes
public understanding and research for BMT issues.

Organ Transplant Fund
1102 Brookfield, Suite 202
Memphis, TN 38119
(901)684-1697
(800)489-3863
(901)684-1128 FAX
E-mail: mailto:atfnatl@aol.com
Web site: http://www.otf.org/
Provides financial and insurance assistance, patient advocacy and housing
information during treatment for transplant recipients and their families.

Transplant Foundation
8002 Discovery Drive, Suite 310
Richmond, VA 23229
(804)285-5115
(804)288-2408 FAX
Provides financial assistance to offset cost of post-transplant medications;
acts as clearinghouse for transplant information.

CHILDRENS HOPES & DREAMS FONDATION

                1-201-361-7366

            HOME HEALTH CARE

 National Association for Home Care
 c/o Consumer Guide
 P.O. Box 14241
 Washington, DC 20003
 (202)547-7424
 (202)547-3540 FAX
 Web site: http://www.nahc.org/
 Trade association providing referrals to home or hospice care.

 The Oley Foundation
 214 Hun Memorial, A-23
 Albany Medical Center
 Albany, NY 12208-3478
 (518)262-5079
 (800)776-OLEY
 E-mail: mailto:taylor@ccgateway.amc.edu
 Web site: http://www.wizvax.net/oleyfdn
 Support for home enteral and/or parental nutrition therapy.

 Olsten HealthCare
 175 Broadhollow Road
 Melville, NY 11747
 (516)844-7800
 (800)66-NURSE
 Web site: http://www.olsten.com/
 Provides home health care services including chemotherapy, nutrition and
hydration
 therapies, pain management, physical therapy, and general nursing services.

 Visiting Nurse Association of America National Office
 3801 East Florida Avenue, Suite 900
 Denver, CO 80210
 (888)866-8773
 (303)753-0218
 Provides skilled nursing and assisted living services.

 Amherst H. Wilder Foundation
 919 Lafond Avenue
 St. Paul, MN 55104
 (612)642-4000
 (612)642-4068 FAX
 Web site: http://www.wilder.org/
 Provides assisted living and nursing home care services for the elderly in
the
 Minneapolis area.

 Childrens' Hospice
 2202 Mt. Vernon Ave., Suite 3C
 Alexandria, VA 22301
 (703)684-0330
 (703)684-0226 FAX
 E-mail: mailto:chiorg@aol.com
 Web site: http://www.chionline.org/
 Provides information and referral services,counseling, support groups,
education, and
 research aimed at improving hospice care for children.

 Choice in Dying
 1035 30th Street NW
 Washington, DC 20007
 (202)338-9790
 (202)338-0242 FAX
 Web site:http://www.choices.org/
 Advocacy organization for end-of-life rights;provides legal counseling and
information on
 end-of-life decisions.

 National Association for Home Care
 c/o Consumer Guide
 P.O. Box 14241
 Washington, DC 20003
 (202)547-7424
 (202)547-3540 FAX
 Web site: http://www.nahc.org/
 Trade association that provides referrals to local hospice organizations.

 Hospice Education Institute/Hospicelink
 190 Westbrook Road
 Essex, CT 06426
 (860)767-1620
 (800)331-1620
 (860)767-2746 FAX
 E-mail: mailto:hospiceall@aol.com
 Provides information and referral services,education, advice and assistance
regarding
 hospice and palliative care.

 National Hospice Organization
 1901 N. Moore Street, Suite 901
 Arlington, VA 22209
 (703)243-5900
 (800)658-8898
 (703)525-5762 FAX
 E-mail: mailto:drsno@cais.com
 Web site: http://www.nho.org/
 Provides information and referrals to local hospitals, patient advocacy and
professional
 education.

 National Institute for Jewish Hospice
 8723 Alden Drive, Suite 219
 Los Angeles, CA 90048
 (310)854-3036
 (213)HOSPICE
 (800)446-4448
 Provides free telephone counseling and referrals; trains professionals in
the art of helping the
 Jewish terminally ill.

          RESOURCES/ LEGAL

 Americans with Disabilities Act
 U.S. Equal Employment Opportunity Commission
 Office of Legal Council
 1801 L Street NW
 Washington, DC 20507
 (202)663-4503
 Provides information and legal assistance regarding discrimination due to
illness or disability

 Family Medical leave Act
 U.S. Department of Labor
 Wage & Hour Division
 200 Constitution Avenue NW
 Washington, DC 20210
 (202)219-8412
 Provides information on employment rights during medical leave due to
illness

 Support Services: INSURANCE & FINANCE

 American Association of Health Plans
 Membership Department
 129 20th Street NW, Suite 600
 Washington, DC 20036
 (202)778-3200
 Web site: http://www.aahp.org/
 Insurance industry trade association that will provide information on
insurance and health care
 issues.

 Blue Cross and Blue Shield Association
 675 North St. Claire Street
 Chicago, IL 60601
 (312)440-6000

 Department of Health and Human Services
 Inspector General Hotline
 Office of the Inspector General
 P.O. Box 23489
 Washington, DC 20026
 (800)368-5779
 U.S. government hotline for complaints regarding Medicare or Medicaid;
provides assistance with
 issues of entitlements, benefits, insurance, and community resources.

 Disabled American Veterans
 807 Main Avenue SW
 Washington, DC 20024
 (202)554-3501
 (202)554-3581 FAX
 Web site: http://www.dav.org/
 Provides assistance with health benefits for U.S. veterans.

 Hill-Burton Free Hospital Care
 5600 Fishers Lane, Room 7-47
 Rockville, MD 20857
 (800)683-0742 Hotline
 (301)594-5999 FAX
 Web site: http://www.hrsa.dhhs.gov/bhrd/dfcr/dfcrmain.htm
 U.S. government program that can arrange for cost-assisted care for
disadvantaged individuals at
 certain medical facilities or hospitals.

 National Insurance Consumer Hotline
 1001 Pennsylvania Avenue, NW
 Washington, DC 20004
 (800)942-4242
 Provides assistance in finding insurance coverage, information on insurance
issues and a consumer
 complaint service.


     Support Services: HAIR LOSS

 Look Good, Feel Better
 The American Cancer Society
 (800)395-LOOK
 Teaches women who have undergone cancer treatment how to improve appearance
through
 cosmetics, wigs, scarfs, etc.

 Y-ME WIG
 212 West Van Buren Street, 4th Floor
 Chicago, IL 60607
 (800)221-2141
 (312)294-8598 FAX
 Web site: http://www.y-me.org/
 Provides donated wigs free of charge.

 This MOL FORUM is intended to assist people with cancer, their family,
friends and caregivers find the information to help them make decisions
regarding treatment and management of their disease. Nothing presented
herein should be construed as a substitute for professional advice from a
physician or medical practitioner. Reasonable efforts have been made to
ensure the accuracy of the information provided, but the Mol Forum makes no
warranty , nor endorses any recommendation, practice or product of any
organization or service contained herein.








-----Original Message-----
From: Michael Gootee <mgootee@home.com>
To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
Date: Monday, January 04, 1999 10:26 PM
Subject: [MOL] Is there hope?


>I'd like to introduce you to my father. A man I am about to lose as a
>result of colon cancer which was misdiagnosed as diverticulitis. Is this
>for real, Yes it is and he is a very young 65 year old man with a family
>who cares alot about him. He just underwent surgery last week for what
>was believed to be a blockage in his intestines. The blockage turned out
>to be a tumor. We were told today that the tumor was malignant. He had a
>colonostomy (sp) in early August and was told there was nothing wrong.
>The surgeon who performed the surgery last week finds this hard to
>believe. Four months ago this could have been caught and treated but now
>it is too late so I'm told. When he heals from the surgery they will
>start chemotherapy and say that he has a 10%  chance of survival (1%
>without the therapy). My mother is taking this pretty hard as are the
>rest of us. I am pretty upset about the way this was handled and so I
>ask a heart felt, honest question, "Is there any hope" Is there any new
>discoveries for this sort of cancer. We don't know how much time there
>is to waste so help us in our plight not to. Can anyone share some
>wisdom on this???
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