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WELCOME TO YOUR MOL CANCER FORUM
Here you will meet a wonderful
caring group of individuals who are
cancering or who are loved ones
and friends being advocates for those cancering.
Individuals in this group are
not in the medical professional field. Therefore,we do not
endorse a treatment, drug or product.
Our people combined do have many year's of
accumulated knowledge and expierence,
who come from all walks in life and are able to
lend tremendous assistance to
help you walk through this journey.
There are a few matters of importance
to address.
It is the general assumption of
the group that one can use alternative treatments (with your
doctors permission) in conjunction
with traditional therapy.
We feel that an individual who
has had testing and is returning to the doctor should take
someone with them as an extra
set of ears.
It must be remembered that this
is a most stressful time for you. We also agree that a
second or even a third opinion
is healthy. One needs to shop for the right doctor for them;
as each of us are so different
not only in personality; but our bodies react differently.
You should be seeking nothing
but the best doctors and hospital, remember this is your life
and you want to be in control.
The best way to be in control is to acquire all the information
needed for your particular cancer;
so that you and your doctor can descide the best
treatment for you.
We find stress is our worse enemy,
it is so important to remove yourself from stressful
situations and non positive thinkers.
There are so many new drugs and
treatments our there for most cancers that lend hope to
all.
Be prepared for you doctors visits
with questions. Should the doctor interrupt you while
you are questioning explain that
you have more questions. Make sure the doctor speaks to
you in lay terms and that he is
positive also.
Too often the doctor will give
a gloomy statistical report, thus taking hope away from the
patient and we find so many people
who far out live the guess of any doctor. Last; but
never least make sure that you
eat healthy and that you keep your immune system built up.
Again, we are here for you, we
are a place of compassionate comfort, a place you can rant
and rave knowing that we too have
done that. A place of shelter; whereas all of us know
what you are going through.
Your friends of the MOL CANCER FORUM
TRADITIONAL SITES
National Cancer Institute
http://rex.nci.nih.gov
Univ of Penn
http://cancer.med.upenn.edu
Cancer Notes on the Net
http://www.cancernews.com
Medicine On Line
http://www.meds.com
MD Anderson
http://www.mdanderson.org
Mem. Sloan-Kettering
http://www.mskcc.org
Alternative Medicine
www.canceranswers.com
85% CancerAnswers - Alternative Treatments
84% Cancer Information -Alternative Treatments
www.chiro.org
84% CANCER TREATMENTS/ ALTERNATIVE
84% Alternative Remedies for Cancer and other diseases.
www.meds.com
84% Re: Alternative cancer treatments [00299]
83% 5. Internet Resources on Cancer
MEDICAL DICTIONARIES
BOOKS
"50 Esential Things to Do When the Doctor
Says it is Cancer", Greg Anderson
HOME HEALTH CARE
National Association for Home Care
c/o Consumer Guide
P.O. Box 14241
Washington, DC 20003
(202)547-7424
(202)547-3540 FAX
Web site: http://www.nahc.org/
Trade association providing referrals
to home or hospice care.
The Oley Foundation
214 Hun Memorial, A-23
Albany Medical Center
Albany, NY 12208-3478
(518)262-5079
(800)776-OLEY
E-mail: mailto:taylor@ccgateway.amc.edu
Web site: http://www.wizvax.net/oleyfdn
Support for home enteral and/or
parental nutrition therapy.
Olsten HealthCare
175 Broadhollow Road
Melville, NY 11747
(516)844-7800
(800)66-NURSE
Web site: http://www.olsten.com/
Provides home health care services
including chemotherapy, nutrition and hydration
therapies, pain management, physical
therapy, and general nursing services.
Visiting Nurse Association of America
National Office
3801 East Florida Avenue, Suite
900
Denver, CO 80210
(888)866-8773
(303)753-0218
Provides skilled nursing and assisted
living services.
Amherst H. Wilder Foundation
919 Lafond Avenue
St. Paul, MN 55104
(612)642-4000
(612)642-4068 FAX
Web site: http://www.wilder.org/
Provides assisted living and nursing
home care services for the elderly in the
Minneapolis area.
Childrens' Hospice
2202 Mt. Vernon Ave., Suite 3C
Alexandria, VA 22301
(703)684-0330
(703)684-0226 FAX
E-mail: mailto:chiorg@aol.com
Web site: http://www.chionline.org/
Provides information and referral
services,counseling, support groups, education, and
research aimed at improving hospice
care for children.
Choice in Dying
1035 30th Street NW
Washington, DC 20007
(202)338-9790
(202)338-0242 FAX
Web site:http://www.choices.org/
Advocacy organization for end-of-life
rights;provides legal counseling and information on
end-of-life decisions.
National Association for Home Care
c/o Consumer Guide
P.O. Box 14241
Washington, DC 20003
(202)547-7424
(202)547-3540 FAX
Web site: http://www.nahc.org/
Trade association that provides
referrals to local hospice organizations.
Hospice Education Institute/Hospicelink
190 Westbrook Road
Essex, CT 06426
(860)767-1620
(800)331-1620
(860)767-2746 FAX
E-mail: mailto:hospiceall@aol.com
Provides information and referral
services,education, advice and assistance regarding
hospice and palliative care.
National Hospice Organization
1901 N. Moore Street, Suite 901
Arlington, VA 22209
(703)243-5900
(800)658-8898
(703)525-5762 FAX
E-mail: mailto:drsno@cais.com
Web site: http://www.nho.org/
Provides information and referrals
to local hospitals, patient advocacy and professional
education.
National Institute for Jewish Hospice
8723 Alden Drive, Suite 219
Los Angeles, CA 90048
(310)854-3036
(213)HOSPICE
(800)446-4448
Provides free telephone counseling
and referrals; trains professionals in the art of helping the
Jewish terminally ill.
RESOURCES/ LEGAL
Americans with Disabilities Act
U.S. Equal Employment Opportunity
Commission
Office of Legal Council
1801 L Street NW
Washington, DC 20507
(202)663-4503
Provides information and legal
assistance regarding discrimination due to illness or disability
Family Medical leave Act
U.S. Department of Labor
Wage & Hour Division
200 Constitution Avenue NW
Washington, DC 20210
(202)219-8412
Provides information on employment
rights during medical leave due to illness
Support Services: Finance & Insurance
American Association of Health Plans
Membership Department
129 20th Street NW, Suite 600
Washington, DC 20036
(202)778-3200
Web site: http://www.aahp.org/
Insurance industry trade association that will provide information
on insurance and health care
issues.
Blue Cross and Blue Shield Association
675 North St. Claire Street
Chicago, IL 60601
(312)440-6000
Department of Health and Human Services
Inspector General Hotline
Office of the Inspector General
P.O. Box 23489
Washington, DC 20026
(800)368-5779
U.S. government hotline for complaints regarding Medicare or
Medicaid; provides assistance with
issues of entitlements, benefits, insurance, and community resources.
Disabled American Veterans
807 Main Avenue SW
Washington, DC 20024
(202)554-3501
(202)554-3581 FAX
Web site: http://www.dav.org/
Provides assistance with health benefits for U.S. veterans.
Hill-Burton Free Hospital Care
5600 Fishers Lane, Room 7-47
Rockville, MD 20857
(800)683-0742 Hotline
(301)594-5999 FAX
Web site: http://www.hrsa.dhhs.gov/bhrd/dfcr/dfcrmain.htm
U.S. government program that can arrange for cost-assisted care
for disadvantaged individuals at
certain medical facilities or hospitals.
National Insurance Consumer Hotline
1001 Pennsylvania Avenue, NW
Washington, DC 20004
(800)942-4242
Provides assistance in finding insurance coverage, information
on insurance issues and a consumer
complaint service.
SUPPORT SERVICE TRAVEL
Support Services: Hair Loss
Look Good, Feel Better
The American Cancer Society
(800)395-LOOK
Teaches women who have undergone cancer treatment how to improve
appearance through
cosmetics, wigs, scarfs, etc.
Y-ME WIG
212 West Van Buren Street, 4th Floor
Chicago, IL 60607
(800)221-2141
(312)294-8598 FAX
Web site: http://www.y-me.org/
Provides donated wigs free of charge.
Mark & Sandi Newell wrote:
Hi Group,
This is my first post to this group so I hope I don't do anything wrong.
My 48 y/o husband has stage III colo-rectal cancer. The cancer was found
in a lymph node. He had a colon resection in March and 5 weeks later began
on a Trial III phase of treatment. The 1st round of chemo (5 FU) via bolus
shots put him in the hospital. They think he may lack an enzyme to process
the 5 FU and this caused massive inflammation in his body - intense pain
and fever of 104.3. He had a 3-week recovery and had another round of bolus
shots that was decreased 20 % followed by another 3-week recovery.He then began the 24-hour IV chemo and radiation for 6 weeks at the same
time. At the 5 week mark he again developed major problems with the 5 FU
and the oncologist stopped everything as he said to continue could be
"lethal". But his radiologist was quite upset as he had had only 25
radiation treatments and said he must do at least 28. He has been unable to
work due to major problems with the intestines - pain, cramping, low grade
fever etc that lasts for many hours at a time. Has anyone else had this and
how long did it last and what did you do about it? I should mention that we
both really like his Dr's and have a good relationship with them.I am sorry this is getting long, but his radiologist has scheduled him to
complete the radiation next week and he will do that. He then has 4 weeks
off and will again restart the bolus shots for 2 more rounds.
I have noticed that he gets very emotional at times and this seems to come
with the chemo. I do not work as I have Lupus but am trying to be as
supportive as I possible can. He basically has a great outlook but the
treatment gets to him.It is also exhausting for him (and me) with 2 Dr appt's weekly at the
hospital, 2 lab appt's and 5 radiology appt's at a different place with a
radiology Dr app't and a chemo refill app't. Whew. When he can work, I
drive him and then in the afternoon I pick him up and off we go to appt's.Any comments or suggestions would be appreciated.
Thanks for letting me be a part of your group.
Sandi
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