Re: [MOL] Oncologist Say What? [13370] Medicine On Line


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Re: [MOL] Oncologist Say What?



Dear Lil,

That's exactly what I plan to do.  Haul my hubby off as soon as
chemo is done!  

Thanks,
Mary







> 
> Dear Mary:  Thanks for the update on your beloved romeo; however I am appalled at his
> onc.  True there are things on the net that are mis information; but these surgeries
> were just presented at a big cancer convention and on the wire.  She should have been
> up on them.  Honestly if us poor souls can find information that will help us and we
> are not in the medical field, then why don't they know everything there is to know
> about cancer, this is their profession.  This is what they make mega bucks off of and
> this is down right scary.  Glad you have put that right foot forward friend, keep
> fighting and get him where he's to be.  I would probably think finishing his chemo
> would be good; but the second it's done I'd haul boogie with my beautiful Italian
> still on the gurney right to the next stop.  Your friend, Lillian
> 
> Mary Furfaro wrote:
> 
> > Hello everybody,
> >
> > Angelo had his fourth chemo treatment today and while we were
> > seeing the doctor I asked her what she knew about stereotactic
> > body radiosurgery, and also about photodynamic therapy.  He
> > reaction really ticked me off.
> >
> > She asked me how I knew about these procedures and I told her
> > I found them on the Internet.  Well she just rolled her eyes
> > and gave me a lecture on how we should not trust anyting on
> > the internet.  She went on to say that people on the internet
> > seemed desperate and do not think logically about their treatment.
> > They attempt to treat themselves when they don't really know
> > what they are doing.
> >
> > Well THAT MADE ME MAD!!  I tried to stay calm and asked her what
> > she knew about these two treatments.  She said the radiosurgery
> > was just for the brain.  I informed her that she was wrong!, that
> > Dr. Lederman sent me a video tape showing the procedure being
> > done on the lung also.  She sort of changed the subject.  So again
> > I asked what she knew about photdynamic therapy and she thought
> > it was a procedure were they hook you up to a machine for days.
> > Obviously she didn't know a thing about it.
> >
> > Well for some reason my husband is afraid to upset the docotor
> > in fear that he will not get the best treatment from her.  I have
> > to sit there and bite my tongue!
> >
> > I called the 800 number for photodynamic therapy and they are
> > anxious to meet with us.  Angelo wants to wait and finish his two
> > remaining chemo treatments and see how the next CT Scan turns out
> > before we try anything different.
> >
> > Thanks for letting me vent,
> > God Bless
> > Mary
> >
> > >
> > > Now, I could be wrong, it's been known to happen!; but I though breast cancer's
> > > routes were bi-lateral, lung, bone and brain.  Ok, who wan't to challange me on
> > > this one, we need the right answer.  Thanks, Lillian
> > >
> > > Also Christine they make many a mistake in labs; so even if I got a positive I
> > > would want a second opinion by a different lab.
> > >
> > > Joicy Becker-Richards wrote:
> > >
> > > > You're too funny. Christine! but just remember that getting tests and
> > > > catching things quick sure beats the alternative! love, Joicy
> > > >
> > > > Christine wrote:
> > > > >
> > > > > I had a pap test showing atypical cells a year ago Feb. I had another test
> > > > > in November which showed normal so you don't know what to believe. I have
> > > > > had 1 ultrasound this year. I also had endometriosis in the past so I think
> > > > > I should probably set something up with the dr. I don't know all the
> > > > > details of a colonoscopy but I think I will pass. LOL. I won't even let the
> > > > > dr. do a rectal. Are we getting too graphic:-) Thanks for the info.
> > > > > Christine
> > > > >
> > > > > At 06:59 PM 29/07/98 -0400, you wrote:
> > > > > >Christine, I am on Tamoxifen also, and you need to get in touch with you
> > > > > >gynecologist if you haven't already (my onc forgot to tell me; luckily I
> > > > > >took the initiative). In addition to pap tests, you should get an
> > > > > >ultrasound each year. Through this they are able to monitor the
> > > > > >endometrial lining, and I've been told that they can catch endometrial
> > > > > >cancer early and with very good success. (I've already had to have a D &
> > > > > >C due to thickening caused by tamoxifen, but my most recent tests looked
> > > > > >very good.) I believe paps are used to check for cervical cancer, and
> > > > > >again there is a very high cure rate. However, the paps sometimes show
> > > > > >false positives, which can be nerve-wracking. My last pap test was
> > > > > >supposedly showing atypical cells, but a follow-up indicates no problem
> > > > > >after all.
> > > > > >
> > > > > >You can get more info at:
> > > > > >http://oncolink.upenn.edu/disease/gynecologic1/
> > > > > >
> > > > > >One other cancer we who have had breast cancer have a higher risk for is
> > > > > >colon cancer. (In fact, I'm due for a colonoscopy soon. Oh boy!)
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> > > --
> > > MZ
> > >
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> --
> MZ
> 
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