Dear Tracy: At least they are letting the whole team know what is going on, my
surgeon never corresponded with my gp, neurologist, internist let alone me! I
do understand how you feel; and perhaps if they know you are a lawyer they are
guarding what they are saying. I can understand your concerns and I think your
letter will let them know what you expect of them. Also the next time you go
into the office ask the nurse for a copy of your file, they may charge someting;
but who care's when it's your life. Good luck now and know that we are all
praying for you. Your friend, Lillian Here's a big cyber hug....did you get
it?
Bruce and Tracy Walter wrote:
> I just bit the bullet and sent an email to my oncologist at Indiana
> University regarding the issues I have concerning follow-up. I don't think
> we are doing all we can in my case. I tried to put it professionally,
> but non-confrontationally, I am particularly interested in some
> post-surgical treatment to address any residual systemic disease, follow-up
> by cat or pet scan instead of xray, and a plan to address a reoccurrence
> should one occur.
>
> I read my file at my local oncologist's office last week. I was surprised
> to find letters going between 6 or 7 different Drs. (most by cc), They
> copied a cousin who is an oncologist, my pulminologist, my internist, my
> local oncologist, and other members of my medical team. The only person
> not copied on the letters was me!! In the letters, they write things like
> "her prognosis is guarded at best" blah, blah, blah. This is contrary to
> the sunny face they put on for me. I want Doctors who think I am going to
> get well!!! Damn the lawyers of the world who make them take hope out of
> their files. (I confess that I am a lawyer, so I guess I can say that damn
> my brethren if I want)
>
> Please pray for me, that I get an answer with some options, that my Dr.,
> Dr. Einhorn, is receptive to my letter.
>
> Thanks for letting me share.
>
> Tracy
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MZ
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