I just bit the bullet and sent an email to my oncologist at Indiana
University regarding the issues I have concerning follow-up. I don't think
we are doing all we can in my case. I tried to put it professionally,
but non-confrontationally, I am particularly interested in some
post-surgical treatment to address any residual systemic disease, follow-up
by cat or pet scan instead of xray, and a plan to address a reoccurrence
should one occur.
I read my file at my local oncologist's office last week. I was surprised
to find letters going between 6 or 7 different Drs. (most by cc), They
copied a cousin who is an oncologist, my pulminologist, my internist, my
local oncologist, and other members of my medical team. The only person
not copied on the letters was me!! In the letters, they write things like
"her prognosis is guarded at best" blah, blah, blah. This is contrary to
the sunny face they put on for me. I want Doctors who think I am going to
get well!!! Damn the lawyers of the world who make them take hope out of
their files. (I confess that I am a lawyer, so I guess I can say that damn
my brethren if I want)
Please pray for me, that I get an answer with some options, that my Dr.,
Dr. Einhorn, is receptive to my letter.
Thanks for letting me share.
Tracy
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