Re: [MOL] Oncologist Appointment [12699] Medicine On Line

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Re: [MOL] Oncologist Appointment

Dear Donna,

It isn't easy, is it? You are handling all of this with great strength
and presence of mind, but I know inside you must be reeling. I
appreciate your sharing with us all that is going on; it will help me to
be more focused in my prayers for you and your family. Also glad that
you're going to take some time for yourself, with your family. That's
important too. 

Donna, as you consider your prognosis, don't be discouraged, my friend.
Keep in mind that there are too many folks out there that have made
liars out of their drs. Marty's Barb is one, and I have a couple in my
family. As I shared before you came online, I have an aunt who was sent
home to die in her "middle years" who finally passed on -- at 103! And a
cousin with an infant and young wife -- he, too, was written off, but
just celebrated his "baby's" graduation from college! As they say, it
isn't over till it's over.

And through the days ahead, know that we are here for you. You don't
have to be brave for us, or "up" all the time -- you can vent, complain,
whatever! We'll be there. Love, Joicy wrote:
> What a day!  I got to my appointment (finally).  When I went to check in the
> first words out of the secretary's moth was that my HMO never sent the
> referral.  The HMO set this whole thing up.  What gives?  I had to walk to a
> pay phone and call the HMO to have them fax the referral over.  Anyway....
> This is the scoop.  I liked this oncologist. He really check me over.  He is
> certain that it has not spread to brain, liver, CT scans and exam.
> He thinks this was primary but has requested a pelvic CT scan to be certain.
> That is the only test he he suggested.
> Lowdown.......No surgery (he agreed with Hopkins surgeon).  Radiation and
> chemo first thing.  Along with Taxall and something else. Starting as soon as
> next week. He said that I would have trouble swallowing towards the 4-5 week
> due to the esophagus being exposed.  In fact, in all liklihood I would not be
> able to eat solid foods for a few weeks.  It would heal itself over time.
> Then he explained chemo complications, etc... I explained to him I was looking
> into stereotactic radiosurgey.  He did not seem positive on that however, that
> was the only thing he said that I did not like.  Very small chance that tumor
> would shrink small enough to be surgically removed.  And even then a very
> short window of opportunity to remove immediately following radiation and
> chemo due to scar tissue build-up after radiation.
> Now he did not go there, but I did. What about prognosis? 1 year without
> treatment, an additional 6 months to a year with treatment.  Although he said
> some people go on to live 3-5 years.  He asked if I wanted statistics and I
> said NO! He said good because he does not believe in them.
> My 2 older children are going down to the beach to stay with my father(he
> lives there) over the wekend.  My husband and our 3 year old  will join them
> on Sunday.  We were only going to stay Sunday and come home Sunday evening.  I
> have decided to stay until Monday and maybe even Tuesday.  Although he has
> said next week.  I have decided to a) see one more oncologist b) wait to hear
> from SIUH about radiosurgery c) check out the University of Virgina d) info
> provided by others and last but not least meditate and pray on all of this.
> Then and only then do I feel I can make a positive and informed decision.
> Any information and/or guidance you may be able to offer would be most
> appreciated.
> A friend to all of you molers,
> Donna
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