question was- "Sunday Morning Sunshine" who?
later,Val
----------
> From: Thomas A Johnson <jtjohnson@juno.com>
> To: mol-cancer@lists.meds.com
> Subject: Re: [MOL] my introduction
> Date: Monday, July 20, 1998 1:27 AM
>
> I didn't catch the whole question, but this sounds like something Johnny
> Cash would say...
> -Jean
>
> On Sun, 19 Jul 1998 20:41:16 -0400 lillian jennings <firefly@islc.net>
> writes:
> >Someone else is going to have to answer quest. # 2, it's okay I'll
> >split the
> >$50,000.00 with them! Lil
> >
> >VALERIE J ROSENSTEEL wrote:
> >
> >> hint - I came into town with a knapsack on my shoulder & a pocket
> >full of
> >> stories I just had to tell -
> >>
> >> ----------
> >> From: lillian jennings <firefly@islc.net>
> >> To: mol-cancer@lists.meds.com
> >> Subject: Re: [MOL] my introduction
> >> Date: Sunday, July 19, 1998 11:03 PM
> >>
> >> Ok Girlfriend, here we go. Qest. # 1 THE BEATLES!. Quest. # 2 THE
> >> VILLIAGERS!
> >> Am I right? What's my prize?
> >> Thank you for telling us who you are, I live in S.C. have 4 ch. and
> >7
> >> grandchildren. I regret to inform you that you are not the oldest
> >member
> >> of mol
> >> nor have the most ch. Boy, that's really beating you down, I'
> >sorry. I
> >> can
> >> understand your concerns with your sister and her health, you have
> >got to
> >> be a
> >> wonder big sister! She could explain to her doctors that 1. fatigue
> >is too
> >> much
> >> for her to work right now and 2. her immune system is down and
> >doesn't feel
> >> she
> >> should be exposed to all the germs at a hospital setting.
> >> I told you I would have the trills of sending you allot of
> >information and
> >> believe me, I have kept my promise to you. No doubt after tomorrows
> >Part 2
> >> on
> >> your sister I will have more information to send you. Welcome, your
> >> friend,
> >> Lillian
> >>
> >> WELCOME TO YOUR MOL CANCER FORUM
> >>
> >> Here you will meet a wonderful caring group of individuals who
> >are
> >> cancering or who are loved ones and friends being advocates
> >for
> >> those
> >> cancering. Individuals in this group are not in the medical
> >> professional
> >> field. Therefore,we do not endorse a treatment, drug or
> >product. Our
> >> people combined do have many year's of accumulated knowledge
> >and
> >> expierence, who come from all walks in life and are able to
> >lend
> >> tremendous
> >> assistance to help you walk through this journey.
> >>
> >> There are a few matters of importance to address.
> >> It is the general assumption of the group that one can use
> >alternative
> >> treatments (with your doctors permission) in conjunction with
> >> traditional
> >> therapy.
> >> We feel that an individual who has had testing and is returning
> >to the
> >> doctor should take someone with them as an extra set of ears.
> >> It must be remembered that this is a most stressful time for
> >you. We
> >> also
> >> agree that a second or even a third opinion is healthy. One
> >needs to
> >> shop
> >> for the right doctor for them; as each of us are so different
> >not only
> >> in
> >> personality; but our bodies react differently.
> >> You should be seeking nothing but the best doctors and
> >hospital,
> >> remember
> >> this is your life and you want to be in control. The best way
> >to be
> >> in
> >> control is to acquire all the information needed for your
> >particular
> >> cancer; so that you and your doctor can descide the best
> >treatment for
> >> you.
> >>
> >> We find stress is our worse enemy, it is so important to remove
> >> yourself
> >> from stressful situations and non positive thinkers.
> >> There are so many new drugs and treatments our there for most
> >cancers
> >> that
> >> lend hope to all.
> >> Be prepared for you doctors visits with questions. Should the
> >doctor
> >> interrupt you while you are questioning explain that you have
> >more
> >> questions. Make sure the doctor speaks to you in lay terms and
> >that
> >> he is
> >> positive also.
> >> Too often the doctor will give a gloomy statistical report,
> >thus
> >> taking
> >> hope away from the patient and we find so many people who far
> >out live
> >> the
> >> guess of any doctor. Last; but never least make sure that you
> >eat
> >> healthy
> >> and that you keep your immune system built up.
> >> Again, we are here for you, we are a place of compassionate
> >comfort, a
> >> place you can rant and rave knowing that we too have done that.
> > A
> >> place of
> >> shelter; whereas all of us know what you are going through.
> >Your
> >> friends
> >> of the MOL CANCER FORUM
> >>
> >> TRADITIONAL SITES
> >>
> >> National Cancer Institute http://rex.nci.nih.gov
> >> Univ of Penn
> >http://cancer.med.upenn.edu
> >> Cancer Notes on the Net http://www.cancernews.com
> >> Medicine On Line http://www.meds.com
> >> MD Anderson http://www.mdanderson.org
> >> Mem. Sloan-Kettering http://www.mskcc.org
> >>
> >> Alternative Medicine
> >>
> >> www.canceranswers.com
> >> 85% CancerAnswers - Alternative Treatments
> >> 84% Cancer Information -Alternative Treatments
> >>
> >> www.chiro.org
> >> 84% CANCER TREATMENTS/ ALTERNATIVE
> >> 84% Alternative Remedies for Cancer and other diseases.
> >>
> >> www.meds.com
> >> 84% Re: Alternative cancer treatments [00299]
> >> 83% 5. Internet Resources on Cancer
> >>
> >> MEDICAL DICTIONARIES
> >>
> >> BOOKS "50 Esential Things to
> >Do When
> >> the
> >> Doctor
> >> Says it is
> >Cancer",
> >> Greg
> >> Anderson
> >>
> >> HOME HEALTH CARE
> >>
> >> National Association for Home Care
> >> c/o Consumer Guide
> >> P.O. Box 14241
> >> Washington, DC 20003
> >> (202)547-7424
> >> (202)547-3540 FAX
> >> Web site: http://www.nahc.org/
> >> Trade association providing referrals to home or hospice care.
> >>
> >> The Oley Foundation
> >> 214 Hun Memorial, A-23
> >> Albany Medical Center
> >> Albany, NY 12208-3478
> >> (518)262-5079
> >> (800)776-OLEY
> >> E-mail: mailto:taylor@ccgateway.amc.edu
> >> Web site: http://www.wizvax.net/oleyfdn
> >> Support for home enteral and/or parental nutrition therapy.
> >>
> >> Olsten HealthCare
> >> 175 Broadhollow Road
> >> Melville, NY 11747
> >> (516)844-7800
> >> (800)66-NURSE
> >> Web site: http://www.olsten.com/
> >> Provides home health care services including chemotherapy,
> >nutrition
> >> and
> >> hydration therapies, pain management, physical therapy, and
> >general
> >> nursing
> >> services.
> >>
> >> Visiting Nurse Association of America National Office
> >> 3801 East Florida Avenue, Suite 900
> >> Denver, CO 80210
> >> (888)866-8773
> >> (303)753-0218
> >> Provides skilled nursing and assisted living services.
> >>
> >> Amherst H. Wilder Foundation
> >> 919 Lafond Avenue
> >> St. Paul, MN 55104
> >> (612)642-4000
> >> (612)642-4068 FAX
> >> Web site: http://www.wilder.org/
> >> Provides assisted living and nursing home care services for the
> >> elderly in
> >> the Minneapolis area.
> >>
> >> Childrens' Hospice
> >> 2202 Mt. Vernon Ave., Suite 3C
> >> Alexandria, VA 22301
> >> (703)684-0330
> >> (703)684-0226 FAX
> >> E-mail: mailto:chiorg@aol.com
> >> Web site: http://www.chionline.org/
> >> Provides information and referral services,counseling, support
> >groups,
> >> education, and research aimed at improving hospice care for
> >children.
> >>
> >> Choice in Dying
> >> 1035 30th Street NW
> >> Washington, DC 20007
> >> (202)338-9790
> >> (202)338-0242 FAX
> >> Web site:http://www.choices.org/
> >> Advocacy organization for end-of-life rights;provides legal
> >counseling
> >> and
> >> information on end-of-life decisions.
> >>
> >> National Association for Home Care
> >> c/o Consumer Guide
> >> P.O. Box 14241
> >> Washington, DC 20003
> >> (202)547-7424
> >> (202)547-3540 FAX
> >> Web site: http://www.nahc.org/
> >> Trade association that provides referrals to local hospice
> >> organizations.
> >>
> >> Hospice Education Institute/Hospicelink
> >> 190 Westbrook Road
> >> Essex, CT 06426
> >> (860)767-1620
> >> (800)331-1620
> >> (860)767-2746 FAX
> >> E-mail: mailto:hospiceall@aol.com
> >> Provides information and referral services,education, advice
> >and
> >> assistance
> >> regarding hospice and palliative care.
> >>
> >> National Hospice Organization
> >> 1901 N. Moore Street, Suite 901
> >> Arlington, VA 22209
> >> (703)243-5900
> >> (800)658-8898
> >> (703)525-5762 FAX
> >> E-mail: mailto:drsno@cais.com
> >> Web site: http://www.nho.org/
> >> Provides information and referrals to local hospitals, patient
> >> advocacy and
> >> professional education.
> >>
> >> National Institute for Jewish Hospice
> >> 8723 Alden Drive, Suite 219
> >> Los Angeles, CA 90048
> >> (310)854-3036
> >> (213)HOSPICE
> >> (800)446-4448
> >> Provides free telephone counseling and referrals; trains
> >professionals
> >> in
> >> the art of helping the Jewish terminally ill.
> >> RESOURCES/ LEGAL
> >>
> >> Americans with Disabilities Act
> >> U.S. Equal Employment Opportunity Commission
> >> Office of Legal Council
> >> 1801 L Street NW
> >> Washington, DC 20507
> >> (202)663-4503
> >> Provides information and legal assistance regarding
> >discrimination due
> >> to
> >> illness or disability
> >>
> >> Family Medical leave Act
> >> U.S. Department of Labor
> >> Wage & Hour Division
> >> 200 Constitution Avenue NW
> >> Washington, DC 20210
> >> (202)219-8412
> >> Provides information on employment rights during medical leave
> >due to
> >> illness
> >>
> >> Support Services: Finance & Insurance
> >>
> >> American Association of Health Plans
> >> Membership Department
> >> 129 20th Street NW, Suite 600
> >> Washington, DC 20036
> >> (202)778-3200
> >> Web site: http://www.aahp.org/
> >> Insurance industry trade association that will provide information
> >on
> >> insurance
> >> and health care issues.
> >>
> >> Blue Cross and Blue Shield Association
> >> 675 North St. Claire Street
> >> Chicago, IL 60601
> >> (312)440-6000
> >>
> >> Department of Health and Human Services
> >> Inspector General Hotline
> >> Office of the Inspector General
> >> P.O. Box 23489
> >> Washington, DC 20026
> >> (800)368-5779
> >> U.S. government hotline for complaints regarding Medicare or
> >Medicaid;
> >> provides
> >> assistance with issues of entitlements, benefits, insurance, and
> >community
> >> resources.
> >>
> >> Disabled American Veterans
> >> 807 Main Avenue SW
> >> Washington, DC 20024
> >> (202)554-3501
> >> (202)554-3581 FAX
> >> Web site: http://www.dav.org/
> >> Provides assistance with health benefits for U.S. veterans.
> >>
> >> Hill-Burton Free Hospital Care
> >> 5600 Fishers Lane, Room 7-47
> >> Rockville, MD 20857
> >> (800)683-0742 Hotline
> >> (301)594-5999 FAX
> >> Web site: http://www.hrsa.dhhs.gov/bhrd/dfcr/dfcrmain.htm
> >> U.S. government program that can arrange for cost-assisted care for
> >> disadvantaged individuals at certain medical facilities or
> >hospitals.
> >>
> >> National Insurance Consumer Hotline
> >> 1001 Pennsylvania Avenue, NW
> >> Washington, DC 20004
> >> (800)942-4242
> >> Provides assistance in finding insurance coverage, information on
> >insurance
> >> issues and a consumer complaint service.
> >>
> >> SUPPORT SERVICE TRAVEL
> >>
> >> Support Services: Hair
> >Loss
> >>
> >> Look Good, Feel Better
> >> The American Cancer Society
> >> (800)395-LOOK
> >> Teaches women who have undergone cancer treatment how to improve
> >appearance
> >> through cosmetics, wigs, scarfs, etc.
> >>
> >> Y-ME WIG
> >> 212 West Van Buren Street, 4th Floor
> >> Chicago, IL 60607
> >> (800)221-2141
> >> (312)294-8598 FAX
> >> Web site: http://www.y-me.org/
> >> Provides donated wigs free of charge.
> >>
> >> 72% WWW CancerNet
> >> URL: http://www.arc.com/cancernet/cancernet.html/
> >> Summary: com . WWW Cancer (sm) is a Community-oriented World Wide
> >Web
> >> outreach
> >> project that enables
> >> easy access to the National Cancer Institute's (NCI's) Cancer
> >databases.
> >> Supportive Care, Screening, and
> >> Prevention Information for Patients.
> >> URL: http://cancernet.nci.nih.gov/icichome.htm
> >> Summary: To begin your search, choose from cancer information
> >selected and
> >> organized for your needs as a
> >> patient, health professional, or basic researcher. Selected
> >information
> >> from
> >> PDQ®, NCI's comprehensive cancer
> >> database, including summaries on cancer treatment, screening,
> >prevention,
> >> and
> >> supportive care, and information on
> >> ongoing clinical trials;. 68% Untitled
> >> URL: http://www.med.ucalgary.ca:70/R386409-390596-1m/other/medstuff
> >> Summary: The National Cancer Institute has a new Information
> >Associates
> >> Program
> >> which provides one-stop, easy
> >> access to all of NCI's scientific information resources, including
> >online
> >> access to the PDQ database via the Internet or
> >> by dialing toll-free to NCI using just a modem and personal
> >computer. For
> >> details, select news articles How to
> >> Access NCI Information Resources - U.S. Residents (...
> >> More Like This: Click here to perform a search for documents like
> >this
> >> one.
> >>
> >> 6
> >>
> >> VALERIE J ROSENSTEEL wrote:
> >>
> >> > o.k. here goes "it's been a hard day's night"(who?) but right now
> >it's
> >> > "sunday morning sunshine"(who?)
> >> > Seriously, my name is Valerie (Val) & I find it very difficult to
> >put my
> >> > feelings in black & white - thus the reason I've been eavsdropping
> >since
> >> > the 1st of May.
> >> > This is page 1. I'm sure I won't get it all on 1 page!LOL
> >> > I live in Fl.. I'm married, 6 kids - all adults ( that's a stretch
> >of the
> >> > imagination sometimes)LOL,& 9 grandkids. Soooo - my present
> >concern is my
> >> > sister - 46,married,2 kids - 14 & 12.She's 12 yrs my junior.(yes,
> >I'm an
> >> > old bag)LOL. 15 yrs ago she had a malignant melanoma -clark level
> >> 4,breslow
> >> > level 1.36.also a radical lymphnode removal of the left groin. she
> >pulled
> >> > through though she wasn't given good odds,was told not to have
> >kids.
> >> > Through the yrs she's had 3 more melanomas removed & cleared. This
> >time
> >> was
> >> > not so good. In April she was diagnosed with metastisized melanoma
> >> unknown
> >> > origin.had every test available I think.Her onc sent her to U.ofA.
> >to the
> >> > cancer center there for a 2nd opinion. It was confirmed. They
> >found spots
> >> > on her liver,but noone thinks it's tumors - tests were negative.
> >> > BTW, I'm not in the medical field so some of my info is sketchy.
> >The dr.
> >> @
> >> > the UofA & her regular onc conferred & decided on interferon as
> >the drug
> >> of
> >> > choice. She started a program of 50 million mg? i think - 5 times
> >a week
> >> > for 1 month,at the hospital - IV's.now it's injections 3 times a
> >week,
> >> half
> >> > the dosage. They do regular blood tests . Well as of Thurs. they
> >decided
> >> > she is "well enough " to return to work. She's a nurse in E.R. She
> >tires
> >> > VERYeasy & has good days & bad. -alot of flu like symtoms. Her 1st
> >day
> >> back
> >> > there was a hellova vehicle accident involving several vehicles &
> >it put
> >> 15
> >> > people in E.R. - all very serious- 2 died. They had to send a
> >volunteer
> >> for
> >> > food for the staff - no time for lunch. She was DRAINED when she
> >got home
> >> -
> >> > then had to take a shot.
> >> > I'm worried sick about her!!!!
> >> > Will write page 2 later. The saga will continueLOL
> >> > THINK WELL, Val
> >> >
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