You just did not want to part with $50,000.00. I don't believe I ever heard of
him, he did Monday Monday? You are very kind to me, thanks!
VALERIE J ROSENSTEEL wrote:
> o.k. o.k. I won't be mean!!¡¡
> Harry Chapin later,Val
> ----------
> From: lillian jennings <firefly@islc.net>
> To: mol-cancer@lists.meds.com
> Subject: Re: [MOL] my introduction
> Date: Monday, July 20, 1998 12:41 AM
>
> Someone else is going to have to answer quest. # 2, it's okay I'll split
> the
> $50,000.00 with them! Lil
>
> VALERIE J ROSENSTEEL wrote:
>
> > hint - I came into town with a knapsack on my shoulder & a pocket full of
> > stories I just had to tell -
> >
> > ----------
> > From: lillian jennings <firefly@islc.net>
> > To: mol-cancer@lists.meds.com
> > Subject: Re: [MOL] my introduction
> > Date: Sunday, July 19, 1998 11:03 PM
> >
> > Ok Girlfriend, here we go. Qest. # 1 THE BEATLES!. Quest. # 2 THE
> > VILLIAGERS!
> > Am I right? What's my prize?
> > Thank you for telling us who you are, I live in S.C. have 4 ch. and 7
> > grandchildren. I regret to inform you that you are not the oldest member
> > of mol
> > nor have the most ch. Boy, that's really beating you down, I' sorry. I
> > can
> > understand your concerns with your sister and her health, you have got to
> > be a
> > wonder big sister! She could explain to her doctors that 1. fatigue is
> too
> > much
> > for her to work right now and 2. her immune system is down and doesn't
> feel
> > she
> > should be exposed to all the germs at a hospital setting.
> > I told you I would have the trills of sending you allot of information
> and
> > believe me, I have kept my promise to you. No doubt after tomorrows Part
> 2
> > on
> > your sister I will have more information to send you. Welcome, your
> > friend,
> > Lillian
> >
> > WELCOME TO YOUR MOL CANCER FORUM
> >
> > Here you will meet a wonderful caring group of individuals who are
> > cancering or who are loved ones and friends being advocates for
> > those
> > cancering. Individuals in this group are not in the medical
> > professional
> > field. Therefore,we do not endorse a treatment, drug or product.
> Our
> > people combined do have many year's of accumulated knowledge and
> > expierence, who come from all walks in life and are able to lend
> > tremendous
> > assistance to help you walk through this journey.
> >
> > There are a few matters of importance to address.
> > It is the general assumption of the group that one can use
> alternative
> > treatments (with your doctors permission) in conjunction with
> > traditional
> > therapy.
> > We feel that an individual who has had testing and is returning to
> the
> > doctor should take someone with them as an extra set of ears.
> > It must be remembered that this is a most stressful time for you.
> We
> > also
> > agree that a second or even a third opinion is healthy. One needs
> to
> > shop
> > for the right doctor for them; as each of us are so different not
> only
> > in
> > personality; but our bodies react differently.
> > You should be seeking nothing but the best doctors and hospital,
> > remember
> > this is your life and you want to be in control. The best way to be
> > in
> > control is to acquire all the information needed for your particular
> > cancer; so that you and your doctor can descide the best treatment
> for
> > you.
> >
> > We find stress is our worse enemy, it is so important to remove
> > yourself
> > from stressful situations and non positive thinkers.
> > There are so many new drugs and treatments our there for most
> cancers
> > that
> > lend hope to all.
> > Be prepared for you doctors visits with questions. Should the
> doctor
> > interrupt you while you are questioning explain that you have more
> > questions. Make sure the doctor speaks to you in lay terms and that
> > he is
> > positive also.
> > Too often the doctor will give a gloomy statistical report, thus
> > taking
> > hope away from the patient and we find so many people who far out
> live
> > the
> > guess of any doctor. Last; but never least make sure that you eat
> > healthy
> > and that you keep your immune system built up.
> > Again, we are here for you, we are a place of compassionate comfort,
> a
> > place you can rant and rave knowing that we too have done that. A
> > place of
> > shelter; whereas all of us know what you are going through. Your
> > friends
> > of the MOL CANCER FORUM
> >
> > TRADITIONAL SITES
> >
> > National Cancer Institute http://rex.nci.nih.gov
> > Univ of Penn http://cancer.med.upenn.edu
> > Cancer Notes on the Net http://www.cancernews.com
> > Medicine On Line http://www.meds.com
> > MD Anderson http://www.mdanderson.org
> > Mem. Sloan-Kettering http://www.mskcc.org
> >
> > Alternative Medicine
> >
> > www.canceranswers.com
> > 85% CancerAnswers - Alternative Treatments
> > 84% Cancer Information -Alternative Treatments
> >
> > www.chiro.org
> > 84% CANCER TREATMENTS/ ALTERNATIVE
> > 84% Alternative Remedies for Cancer and other diseases.
> >
> > www.meds.com
> > 84% Re: Alternative cancer treatments [00299]
> > 83% 5. Internet Resources on Cancer
> >
> > MEDICAL DICTIONARIES
> >
> > BOOKS "50 Esential Things to Do
> When
> > the
> > Doctor
> > Says it is
> Cancer",
> > Greg
> > Anderson
> >
> > HOME HEALTH CARE
> >
> > National Association for Home Care
> > c/o Consumer Guide
> > P.O. Box 14241
> > Washington, DC 20003
> > (202)547-7424
> > (202)547-3540 FAX
> > Web site: http://www.nahc.org/
> > Trade association providing referrals to home or hospice care.
> >
> > The Oley Foundation
> > 214 Hun Memorial, A-23
> > Albany Medical Center
> > Albany, NY 12208-3478
> > (518)262-5079
> > (800)776-OLEY
> > E-mail: mailto:taylor@ccgateway.amc.edu
> > Web site: http://www.wizvax.net/oleyfdn
> > Support for home enteral and/or parental nutrition therapy.
> >
> > Olsten HealthCare
> > 175 Broadhollow Road
> > Melville, NY 11747
> > (516)844-7800
> > (800)66-NURSE
> > Web site: http://www.olsten.com/
> > Provides home health care services including chemotherapy, nutrition
> > and
> > hydration therapies, pain management, physical therapy, and general
> > nursing
> > services.
> >
> > Visiting Nurse Association of America National Office
> > 3801 East Florida Avenue, Suite 900
> > Denver, CO 80210
> > (888)866-8773
> > (303)753-0218
> > Provides skilled nursing and assisted living services.
> >
> > Amherst H. Wilder Foundation
> > 919 Lafond Avenue
> > St. Paul, MN 55104
> > (612)642-4000
> > (612)642-4068 FAX
> > Web site: http://www.wilder.org/
> > Provides assisted living and nursing home care services for the
> > elderly in
> > the Minneapolis area.
> >
> > Childrens' Hospice
> > 2202 Mt. Vernon Ave., Suite 3C
> > Alexandria, VA 22301
> > (703)684-0330
> > (703)684-0226 FAX
> > E-mail: mailto:chiorg@aol.com
> > Web site: http://www.chionline.org/
> > Provides information and referral services,counseling, support
> groups,
> > education, and research aimed at improving hospice care for
> children.
> >
> > Choice in Dying
> > 1035 30th Street NW
> > Washington, DC 20007
> > (202)338-9790
> > (202)338-0242 FAX
> > Web site:http://www.choices.org/
> > Advocacy organization for end-of-life rights;provides legal
> counseling
> > and
> > information on end-of-life decisions.
> >
> > National Association for Home Care
> > c/o Consumer Guide
> > P.O. Box 14241
> > Washington, DC 20003
> > (202)547-7424
> > (202)547-3540 FAX
> > Web site: http://www.nahc.org/
> > Trade association that provides referrals to local hospice
> > organizations.
> >
> > Hospice Education Institute/Hospicelink
> > 190 Westbrook Road
> > Essex, CT 06426
> > (860)767-1620
> > (800)331-1620
> > (860)767-2746 FAX
> > E-mail: mailto:hospiceall@aol.com
> > Provides information and referral services,education, advice and
> > assistance
> > regarding hospice and palliative care.
> >
> > National Hospice Organization
> > 1901 N. Moore Street, Suite 901
> > Arlington, VA 22209
> > (703)243-5900
> > (800)658-8898
> > (703)525-5762 FAX
> > E-mail: mailto:drsno@cais.com
> > Web site: http://www.nho.org/
> > Provides information and referrals to local hospitals, patient
> > advocacy and
> > professional education.
> >
> > National Institute for Jewish Hospice
> > 8723 Alden Drive, Suite 219
> > Los Angeles, CA 90048
> > (310)854-3036
> > (213)HOSPICE
> > (800)446-4448
> > Provides free telephone counseling and referrals; trains
> professionals
> > in
> > the art of helping the Jewish terminally ill.
> > RESOURCES/ LEGAL
> >
> > Americans with Disabilities Act
> > U.S. Equal Employment Opportunity Commission
> > Office of Legal Council
> > 1801 L Street NW
> > Washington, DC 20507
> > (202)663-4503
> > Provides information and legal assistance regarding discrimination
> due
> > to
> > illness or disability
> >
> > Family Medical leave Act
> > U.S. Department of Labor
> > Wage & Hour Division
> > 200 Constitution Avenue NW
> > Washington, DC 20210
> > (202)219-8412
> > Provides information on employment rights during medical leave due
> to
> > illness
> >
> > Support Services: Finance & Insurance
> >
> > American Association of Health Plans
> > Membership Department
> > 129 20th Street NW, Suite 600
> > Washington, DC 20036
> > (202)778-3200
> > Web site: http://www.aahp.org/
> > Insurance industry trade association that will provide information on
> > insurance
> > and health care issues.
> >
> > Blue Cross and Blue Shield Association
> > 675 North St. Claire Street
> > Chicago, IL 60601
> > (312)440-6000
> >
> > Department of Health and Human Services
> > Inspector General Hotline
> > Office of the Inspector General
> > P.O. Box 23489
> > Washington, DC 20026
> > (800)368-5779
> > U.S. government hotline for complaints regarding Medicare or Medicaid;
> > provides
> > assistance with issues of entitlements, benefits, insurance, and
> community
> > resources.
> >
> > Disabled American Veterans
> > 807 Main Avenue SW
> > Washington, DC 20024
> > (202)554-3501
> > (202)554-3581 FAX
> > Web site: http://www.dav.org/
> > Provides assistance with health benefits for U.S. veterans.
> >
> > Hill-Burton Free Hospital Care
> > 5600 Fishers Lane, Room 7-47
> > Rockville, MD 20857
> > (800)683-0742 Hotline
> > (301)594-5999 FAX
> > Web site: http://www.hrsa.dhhs.gov/bhrd/dfcr/dfcrmain.htm
> > U.S. government program that can arrange for cost-assisted care for
> > disadvantaged individuals at certain medical facilities or hospitals.
> >
> > National Insurance Consumer Hotline
> > 1001 Pennsylvania Avenue, NW
> > Washington, DC 20004
> > (800)942-4242
> > Provides assistance in finding insurance coverage, information on
> insurance
> > issues and a consumer complaint service.
> >
> > SUPPORT SERVICE TRAVEL
> >
> > Support Services: Hair Loss
> >
> > Look Good, Feel Better
> > The American Cancer Society
> > (800)395-LOOK
> > Teaches women who have undergone cancer treatment how to improve
> appearance
> > through cosmetics, wigs, scarfs, etc.
> >
> > Y-ME WIG
> > 212 West Van Buren Street, 4th Floor
> > Chicago, IL 60607
> > (800)221-2141
> > (312)294-8598 FAX
> > Web site: http://www.y-me.org/
> > Provides donated wigs free of charge.
> >
> > 72% WWW CancerNet
> > URL: http://www.arc.com/cancernet/cancernet.html/
> > Summary: com . WWW Cancer (sm) is a Community-oriented World Wide Web
> > outreach
> > project that enables
> > easy access to the National Cancer Institute's (NCI's) Cancer databases.
> > Supportive Care, Screening, and
> > Prevention Information for Patients.
> > URL: http://cancernet.nci.nih.gov/icichome.htm
> > Summary: To begin your search, choose from cancer information selected
> and
> > organized for your needs as a
> > patient, health professional, or basic researcher. Selected information
> > from
> > PDQ®, NCI's comprehensive cancer
> > database, including summaries on cancer treatment, screening,
> prevention,
> > and
> > supportive care, and information on
> > ongoing clinical trials;. 68% Untitled
> > URL: http://www.med.ucalgary.ca:70/R386409-390596-1m/other/medstuff
> > Summary: The National Cancer Institute has a new Information Associates
> > Program
> > which provides one-stop, easy
> > access to all of NCI's scientific information resources, including
> online
> > access to the PDQ database via the Internet or
> > by dialing toll-free to NCI using just a modem and personal computer.
> For
> > details, select news articles How to
> > Access NCI Information Resources - U.S. Residents (...
> > More Like This: Click here to perform a search for documents like this
> > one.
> >
> > 6
> >
> > VALERIE J ROSENSTEEL wrote:
> >
> > > o.k. here goes "it's been a hard day's night"(who?) but right now it's
> > > "sunday morning sunshine"(who?)
> > > Seriously, my name is Valerie (Val) & I find it very difficult to put
> my
> > > feelings in black & white - thus the reason I've been eavsdropping
> since
> > > the 1st of May.
> > > This is page 1. I'm sure I won't get it all on 1 page!LOL
> > > I live in Fl.. I'm married, 6 kids - all adults ( that's a stretch of
> the
> > > imagination sometimes)LOL,& 9 grandkids. Soooo - my present concern is
> my
> > > sister - 46,married,2 kids - 14 & 12.She's 12 yrs my junior.(yes, I'm
> an
> > > old bag)LOL. 15 yrs ago she had a malignant melanoma -clark level
> > 4,breslow
> > > level 1.36.also a radical lymphnode removal of the left groin. she
> pulled
> > > through though she wasn't given good odds,was told not to have kids.
> > > Through the yrs she's had 3 more melanomas removed & cleared. This time
> > was
> > > not so good. In April she was diagnosed with metastisized melanoma
> > unknown
> > > origin.had every test available I think.Her onc sent her to U.ofA. to
> the
> > > cancer center there for a 2nd opinion. It was confirmed. They found
> spots
> > > on her liver,but noone thinks it's tumors - tests were negative.
> > > BTW, I'm not in the medical field so some of my info is sketchy. The
> dr.
> > @
> > > the UofA & her regular onc conferred & decided on interferon as the
> drug
> > of
> > > choice. She started a program of 50 million mg? i think - 5 times a
> week
> > > for 1 month,at the hospital - IV's.now it's injections 3 times a week,
> > half
> > > the dosage. They do regular blood tests . Well as of Thurs. they
> decided
> > > she is "well enough " to return to work. She's a nurse in E.R. She
> tires
> > > VERYeasy & has good days & bad. -alot of flu like symtoms. Her 1st day
> > back
> > > there was a hellova vehicle accident involving several vehicles & it
> put
> > 15
> > > people in E.R. - all very serious- 2 died. They had to send a volunteer
> > for
> > > food for the staff - no time for lunch. She was DRAINED when she got
> home
> > -
> > > then had to take a shot.
> > > I'm worried sick about her!!!!
> > > Will write page 2 later. The saga will continueLOL
> > > THINK WELL, Val
> > >
> ------------------------------------------------------------------------
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