I didn't catch the whole question, but this sounds like something Johnny
Cash would say...
-Jean
On Sun, 19 Jul 1998 20:41:16 -0400 lillian jennings <firefly@islc.net>
writes:
>Someone else is going to have to answer quest. # 2, it's okay I'll
>split the
>$50,000.00 with them! Lil
>
>VALERIE J ROSENSTEEL wrote:
>
>> hint - I came into town with a knapsack on my shoulder & a pocket
>full of
>> stories I just had to tell -
>>
>> ----------
>> From: lillian jennings <firefly@islc.net>
>> To: mol-cancer@lists.meds.com
>> Subject: Re: [MOL] my introduction
>> Date: Sunday, July 19, 1998 11:03 PM
>>
>> Ok Girlfriend, here we go. Qest. # 1 THE BEATLES!. Quest. # 2 THE
>> VILLIAGERS!
>> Am I right? What's my prize?
>> Thank you for telling us who you are, I live in S.C. have 4 ch. and
>7
>> grandchildren. I regret to inform you that you are not the oldest
>member
>> of mol
>> nor have the most ch. Boy, that's really beating you down, I'
>sorry. I
>> can
>> understand your concerns with your sister and her health, you have
>got to
>> be a
>> wonder big sister! She could explain to her doctors that 1. fatigue
>is too
>> much
>> for her to work right now and 2. her immune system is down and
>doesn't feel
>> she
>> should be exposed to all the germs at a hospital setting.
>> I told you I would have the trills of sending you allot of
>information and
>> believe me, I have kept my promise to you. No doubt after tomorrows
>Part 2
>> on
>> your sister I will have more information to send you. Welcome, your
>> friend,
>> Lillian
>>
>> WELCOME TO YOUR MOL CANCER FORUM
>>
>> Here you will meet a wonderful caring group of individuals who
>are
>> cancering or who are loved ones and friends being advocates
>for
>> those
>> cancering. Individuals in this group are not in the medical
>> professional
>> field. Therefore,we do not endorse a treatment, drug or
>product. Our
>> people combined do have many year's of accumulated knowledge
>and
>> expierence, who come from all walks in life and are able to
>lend
>> tremendous
>> assistance to help you walk through this journey.
>>
>> There are a few matters of importance to address.
>> It is the general assumption of the group that one can use
>alternative
>> treatments (with your doctors permission) in conjunction with
>> traditional
>> therapy.
>> We feel that an individual who has had testing and is returning
>to the
>> doctor should take someone with them as an extra set of ears.
>> It must be remembered that this is a most stressful time for
>you. We
>> also
>> agree that a second or even a third opinion is healthy. One
>needs to
>> shop
>> for the right doctor for them; as each of us are so different
>not only
>> in
>> personality; but our bodies react differently.
>> You should be seeking nothing but the best doctors and
>hospital,
>> remember
>> this is your life and you want to be in control. The best way
>to be
>> in
>> control is to acquire all the information needed for your
>particular
>> cancer; so that you and your doctor can descide the best
>treatment for
>> you.
>>
>> We find stress is our worse enemy, it is so important to remove
>> yourself
>> from stressful situations and non positive thinkers.
>> There are so many new drugs and treatments our there for most
>cancers
>> that
>> lend hope to all.
>> Be prepared for you doctors visits with questions. Should the
>doctor
>> interrupt you while you are questioning explain that you have
>more
>> questions. Make sure the doctor speaks to you in lay terms and
>that
>> he is
>> positive also.
>> Too often the doctor will give a gloomy statistical report,
>thus
>> taking
>> hope away from the patient and we find so many people who far
>out live
>> the
>> guess of any doctor. Last; but never least make sure that you
>eat
>> healthy
>> and that you keep your immune system built up.
>> Again, we are here for you, we are a place of compassionate
>comfort, a
>> place you can rant and rave knowing that we too have done that.
> A
>> place of
>> shelter; whereas all of us know what you are going through.
>Your
>> friends
>> of the MOL CANCER FORUM
>>
>> TRADITIONAL SITES
>>
>> National Cancer Institute http://rex.nci.nih.gov
>> Univ of Penn
>http://cancer.med.upenn.edu
>> Cancer Notes on the Net http://www.cancernews.com
>> Medicine On Line http://www.meds.com
>> MD Anderson http://www.mdanderson.org
>> Mem. Sloan-Kettering http://www.mskcc.org
>>
>> Alternative Medicine
>>
>> www.canceranswers.com
>> 85% CancerAnswers - Alternative Treatments
>> 84% Cancer Information -Alternative Treatments
>>
>> www.chiro.org
>> 84% CANCER TREATMENTS/ ALTERNATIVE
>> 84% Alternative Remedies for Cancer and other diseases.
>>
>> www.meds.com
>> 84% Re: Alternative cancer treatments [00299]
>> 83% 5. Internet Resources on Cancer
>>
>> MEDICAL DICTIONARIES
>>
>> BOOKS "50 Esential Things to
>Do When
>> the
>> Doctor
>> Says it is
>Cancer",
>> Greg
>> Anderson
>>
>> HOME HEALTH CARE
>>
>> National Association for Home Care
>> c/o Consumer Guide
>> P.O. Box 14241
>> Washington, DC 20003
>> (202)547-7424
>> (202)547-3540 FAX
>> Web site: http://www.nahc.org/
>> Trade association providing referrals to home or hospice care.
>>
>> The Oley Foundation
>> 214 Hun Memorial, A-23
>> Albany Medical Center
>> Albany, NY 12208-3478
>> (518)262-5079
>> (800)776-OLEY
>> E-mail: mailto:taylor@ccgateway.amc.edu
>> Web site: http://www.wizvax.net/oleyfdn
>> Support for home enteral and/or parental nutrition therapy.
>>
>> Olsten HealthCare
>> 175 Broadhollow Road
>> Melville, NY 11747
>> (516)844-7800
>> (800)66-NURSE
>> Web site: http://www.olsten.com/
>> Provides home health care services including chemotherapy,
>nutrition
>> and
>> hydration therapies, pain management, physical therapy, and
>general
>> nursing
>> services.
>>
>> Visiting Nurse Association of America National Office
>> 3801 East Florida Avenue, Suite 900
>> Denver, CO 80210
>> (888)866-8773
>> (303)753-0218
>> Provides skilled nursing and assisted living services.
>>
>> Amherst H. Wilder Foundation
>> 919 Lafond Avenue
>> St. Paul, MN 55104
>> (612)642-4000
>> (612)642-4068 FAX
>> Web site: http://www.wilder.org/
>> Provides assisted living and nursing home care services for the
>> elderly in
>> the Minneapolis area.
>>
>> Childrens' Hospice
>> 2202 Mt. Vernon Ave., Suite 3C
>> Alexandria, VA 22301
>> (703)684-0330
>> (703)684-0226 FAX
>> E-mail: mailto:chiorg@aol.com
>> Web site: http://www.chionline.org/
>> Provides information and referral services,counseling, support
>groups,
>> education, and research aimed at improving hospice care for
>children.
>>
>> Choice in Dying
>> 1035 30th Street NW
>> Washington, DC 20007
>> (202)338-9790
>> (202)338-0242 FAX
>> Web site:http://www.choices.org/
>> Advocacy organization for end-of-life rights;provides legal
>counseling
>> and
>> information on end-of-life decisions.
>>
>> National Association for Home Care
>> c/o Consumer Guide
>> P.O. Box 14241
>> Washington, DC 20003
>> (202)547-7424
>> (202)547-3540 FAX
>> Web site: http://www.nahc.org/
>> Trade association that provides referrals to local hospice
>> organizations.
>>
>> Hospice Education Institute/Hospicelink
>> 190 Westbrook Road
>> Essex, CT 06426
>> (860)767-1620
>> (800)331-1620
>> (860)767-2746 FAX
>> E-mail: mailto:hospiceall@aol.com
>> Provides information and referral services,education, advice
>and
>> assistance
>> regarding hospice and palliative care.
>>
>> National Hospice Organization
>> 1901 N. Moore Street, Suite 901
>> Arlington, VA 22209
>> (703)243-5900
>> (800)658-8898
>> (703)525-5762 FAX
>> E-mail: mailto:drsno@cais.com
>> Web site: http://www.nho.org/
>> Provides information and referrals to local hospitals, patient
>> advocacy and
>> professional education.
>>
>> National Institute for Jewish Hospice
>> 8723 Alden Drive, Suite 219
>> Los Angeles, CA 90048
>> (310)854-3036
>> (213)HOSPICE
>> (800)446-4448
>> Provides free telephone counseling and referrals; trains
>professionals
>> in
>> the art of helping the Jewish terminally ill.
>> RESOURCES/ LEGAL
>>
>> Americans with Disabilities Act
>> U.S. Equal Employment Opportunity Commission
>> Office of Legal Council
>> 1801 L Street NW
>> Washington, DC 20507
>> (202)663-4503
>> Provides information and legal assistance regarding
>discrimination due
>> to
>> illness or disability
>>
>> Family Medical leave Act
>> U.S. Department of Labor
>> Wage & Hour Division
>> 200 Constitution Avenue NW
>> Washington, DC 20210
>> (202)219-8412
>> Provides information on employment rights during medical leave
>due to
>> illness
>>
>> Support Services: Finance & Insurance
>>
>> American Association of Health Plans
>> Membership Department
>> 129 20th Street NW, Suite 600
>> Washington, DC 20036
>> (202)778-3200
>> Web site: http://www.aahp.org/
>> Insurance industry trade association that will provide information
>on
>> insurance
>> and health care issues.
>>
>> Blue Cross and Blue Shield Association
>> 675 North St. Claire Street
>> Chicago, IL 60601
>> (312)440-6000
>>
>> Department of Health and Human Services
>> Inspector General Hotline
>> Office of the Inspector General
>> P.O. Box 23489
>> Washington, DC 20026
>> (800)368-5779
>> U.S. government hotline for complaints regarding Medicare or
>Medicaid;
>> provides
>> assistance with issues of entitlements, benefits, insurance, and
>community
>> resources.
>>
>> Disabled American Veterans
>> 807 Main Avenue SW
>> Washington, DC 20024
>> (202)554-3501
>> (202)554-3581 FAX
>> Web site: http://www.dav.org/
>> Provides assistance with health benefits for U.S. veterans.
>>
>> Hill-Burton Free Hospital Care
>> 5600 Fishers Lane, Room 7-47
>> Rockville, MD 20857
>> (800)683-0742 Hotline
>> (301)594-5999 FAX
>> Web site: http://www.hrsa.dhhs.gov/bhrd/dfcr/dfcrmain.htm
>> U.S. government program that can arrange for cost-assisted care for
>> disadvantaged individuals at certain medical facilities or
>hospitals.
>>
>> National Insurance Consumer Hotline
>> 1001 Pennsylvania Avenue, NW
>> Washington, DC 20004
>> (800)942-4242
>> Provides assistance in finding insurance coverage, information on
>insurance
>> issues and a consumer complaint service.
>>
>> SUPPORT SERVICE TRAVEL
>>
>> Support Services: Hair
>Loss
>>
>> Look Good, Feel Better
>> The American Cancer Society
>> (800)395-LOOK
>> Teaches women who have undergone cancer treatment how to improve
>appearance
>> through cosmetics, wigs, scarfs, etc.
>>
>> Y-ME WIG
>> 212 West Van Buren Street, 4th Floor
>> Chicago, IL 60607
>> (800)221-2141
>> (312)294-8598 FAX
>> Web site: http://www.y-me.org/
>> Provides donated wigs free of charge.
>>
>> 72% WWW CancerNet
>> URL: http://www.arc.com/cancernet/cancernet.html/
>> Summary: com . WWW Cancer (sm) is a Community-oriented World Wide
>Web
>> outreach
>> project that enables
>> easy access to the National Cancer Institute's (NCI's) Cancer
>databases.
>> Supportive Care, Screening, and
>> Prevention Information for Patients.
>> URL: http://cancernet.nci.nih.gov/icichome.htm
>> Summary: To begin your search, choose from cancer information
>selected and
>> organized for your needs as a
>> patient, health professional, or basic researcher. Selected
>information
>> from
>> PDQ®, NCI's comprehensive cancer
>> database, including summaries on cancer treatment, screening,
>prevention,
>> and
>> supportive care, and information on
>> ongoing clinical trials;. 68% Untitled
>> URL: http://www.med.ucalgary.ca:70/R386409-390596-1m/other/medstuff
>> Summary: The National Cancer Institute has a new Information
>Associates
>> Program
>> which provides one-stop, easy
>> access to all of NCI's scientific information resources, including
>online
>> access to the PDQ database via the Internet or
>> by dialing toll-free to NCI using just a modem and personal
>computer. For
>> details, select news articles How to
>> Access NCI Information Resources - U.S. Residents (...
>> More Like This: Click here to perform a search for documents like
>this
>> one.
>>
>> 6
>>
>> VALERIE J ROSENSTEEL wrote:
>>
>> > o.k. here goes "it's been a hard day's night"(who?) but right now
>it's
>> > "sunday morning sunshine"(who?)
>> > Seriously, my name is Valerie (Val) & I find it very difficult to
>put my
>> > feelings in black & white - thus the reason I've been eavsdropping
>since
>> > the 1st of May.
>> > This is page 1. I'm sure I won't get it all on 1 page!LOL
>> > I live in Fl.. I'm married, 6 kids - all adults ( that's a stretch
>of the
>> > imagination sometimes)LOL,& 9 grandkids. Soooo - my present
>concern is my
>> > sister - 46,married,2 kids - 14 & 12.She's 12 yrs my junior.(yes,
>I'm an
>> > old bag)LOL. 15 yrs ago she had a malignant melanoma -clark level
>> 4,breslow
>> > level 1.36.also a radical lymphnode removal of the left groin. she
>pulled
>> > through though she wasn't given good odds,was told not to have
>kids.
>> > Through the yrs she's had 3 more melanomas removed & cleared. This
>time
>> was
>> > not so good. In April she was diagnosed with metastisized melanoma
>> unknown
>> > origin.had every test available I think.Her onc sent her to U.ofA.
>to the
>> > cancer center there for a 2nd opinion. It was confirmed. They
>found spots
>> > on her liver,but noone thinks it's tumors - tests were negative.
>> > BTW, I'm not in the medical field so some of my info is sketchy.
>The dr.
>> @
>> > the UofA & her regular onc conferred & decided on interferon as
>the drug
>> of
>> > choice. She started a program of 50 million mg? i think - 5 times
>a week
>> > for 1 month,at the hospital - IV's.now it's injections 3 times a
>week,
>> half
>> > the dosage. They do regular blood tests . Well as of Thurs. they
>decided
>> > she is "well enough " to return to work. She's a nurse in E.R. She
>tires
>> > VERYeasy & has good days & bad. -alot of flu like symtoms. Her 1st
>day
>> back
>> > there was a hellova vehicle accident involving several vehicles &
>it put
>> 15
>> > people in E.R. - all very serious- 2 died. They had to send a
>volunteer
>> for
>> > food for the staff - no time for lunch. She was DRAINED when she
>got home
>> -
>> > then had to take a shot.
>> > I'm worried sick about her!!!!
>> > Will write page 2 later. The saga will continueLOL
>> > THINK WELL, Val
>> >
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