Someone else is going to have to answer quest. # 2, it's okay I'll split the
$50,000.00 with them! Lil
VALERIE J ROSENSTEEL wrote:
> hint - I came into town with a knapsack on my shoulder & a pocket full of
> stories I just had to tell -
>
> ----------
> From: lillian jennings <firefly@islc.net>
> To: mol-cancer@lists.meds.com
> Subject: Re: [MOL] my introduction
> Date: Sunday, July 19, 1998 11:03 PM
>
> Ok Girlfriend, here we go. Qest. # 1 THE BEATLES!. Quest. # 2 THE
> VILLIAGERS!
> Am I right? What's my prize?
> Thank you for telling us who you are, I live in S.C. have 4 ch. and 7
> grandchildren. I regret to inform you that you are not the oldest member
> of mol
> nor have the most ch. Boy, that's really beating you down, I' sorry. I
> can
> understand your concerns with your sister and her health, you have got to
> be a
> wonder big sister! She could explain to her doctors that 1. fatigue is too
> much
> for her to work right now and 2. her immune system is down and doesn't feel
> she
> should be exposed to all the germs at a hospital setting.
> I told you I would have the trills of sending you allot of information and
> believe me, I have kept my promise to you. No doubt after tomorrows Part 2
> on
> your sister I will have more information to send you. Welcome, your
> friend,
> Lillian
>
> WELCOME TO YOUR MOL CANCER FORUM
>
> Here you will meet a wonderful caring group of individuals who are
> cancering or who are loved ones and friends being advocates for
> those
> cancering. Individuals in this group are not in the medical
> professional
> field. Therefore,we do not endorse a treatment, drug or product. Our
> people combined do have many year's of accumulated knowledge and
> expierence, who come from all walks in life and are able to lend
> tremendous
> assistance to help you walk through this journey.
>
> There are a few matters of importance to address.
> It is the general assumption of the group that one can use alternative
> treatments (with your doctors permission) in conjunction with
> traditional
> therapy.
> We feel that an individual who has had testing and is returning to the
> doctor should take someone with them as an extra set of ears.
> It must be remembered that this is a most stressful time for you. We
> also
> agree that a second or even a third opinion is healthy. One needs to
> shop
> for the right doctor for them; as each of us are so different not only
> in
> personality; but our bodies react differently.
> You should be seeking nothing but the best doctors and hospital,
> remember
> this is your life and you want to be in control. The best way to be
> in
> control is to acquire all the information needed for your particular
> cancer; so that you and your doctor can descide the best treatment for
> you.
>
> We find stress is our worse enemy, it is so important to remove
> yourself
> from stressful situations and non positive thinkers.
> There are so many new drugs and treatments our there for most cancers
> that
> lend hope to all.
> Be prepared for you doctors visits with questions. Should the doctor
> interrupt you while you are questioning explain that you have more
> questions. Make sure the doctor speaks to you in lay terms and that
> he is
> positive also.
> Too often the doctor will give a gloomy statistical report, thus
> taking
> hope away from the patient and we find so many people who far out live
> the
> guess of any doctor. Last; but never least make sure that you eat
> healthy
> and that you keep your immune system built up.
> Again, we are here for you, we are a place of compassionate comfort, a
> place you can rant and rave knowing that we too have done that. A
> place of
> shelter; whereas all of us know what you are going through. Your
> friends
> of the MOL CANCER FORUM
>
> TRADITIONAL SITES
>
> National Cancer Institute http://rex.nci.nih.gov
> Univ of Penn http://cancer.med.upenn.edu
> Cancer Notes on the Net http://www.cancernews.com
> Medicine On Line http://www.meds.com
> MD Anderson http://www.mdanderson.org
> Mem. Sloan-Kettering http://www.mskcc.org
>
> Alternative Medicine
>
> www.canceranswers.com
> 85% CancerAnswers - Alternative Treatments
> 84% Cancer Information -Alternative Treatments
>
> www.chiro.org
> 84% CANCER TREATMENTS/ ALTERNATIVE
> 84% Alternative Remedies for Cancer and other diseases.
>
> www.meds.com
> 84% Re: Alternative cancer treatments [00299]
> 83% 5. Internet Resources on Cancer
>
> MEDICAL DICTIONARIES
>
> BOOKS "50 Esential Things to Do When
> the
> Doctor
> Says it is Cancer",
> Greg
> Anderson
>
> HOME HEALTH CARE
>
> National Association for Home Care
> c/o Consumer Guide
> P.O. Box 14241
> Washington, DC 20003
> (202)547-7424
> (202)547-3540 FAX
> Web site: http://www.nahc.org/
> Trade association providing referrals to home or hospice care.
>
> The Oley Foundation
> 214 Hun Memorial, A-23
> Albany Medical Center
> Albany, NY 12208-3478
> (518)262-5079
> (800)776-OLEY
> E-mail: mailto:taylor@ccgateway.amc.edu
> Web site: http://www.wizvax.net/oleyfdn
> Support for home enteral and/or parental nutrition therapy.
>
> Olsten HealthCare
> 175 Broadhollow Road
> Melville, NY 11747
> (516)844-7800
> (800)66-NURSE
> Web site: http://www.olsten.com/
> Provides home health care services including chemotherapy, nutrition
> and
> hydration therapies, pain management, physical therapy, and general
> nursing
> services.
>
> Visiting Nurse Association of America National Office
> 3801 East Florida Avenue, Suite 900
> Denver, CO 80210
> (888)866-8773
> (303)753-0218
> Provides skilled nursing and assisted living services.
>
> Amherst H. Wilder Foundation
> 919 Lafond Avenue
> St. Paul, MN 55104
> (612)642-4000
> (612)642-4068 FAX
> Web site: http://www.wilder.org/
> Provides assisted living and nursing home care services for the
> elderly in
> the Minneapolis area.
>
> Childrens' Hospice
> 2202 Mt. Vernon Ave., Suite 3C
> Alexandria, VA 22301
> (703)684-0330
> (703)684-0226 FAX
> E-mail: mailto:chiorg@aol.com
> Web site: http://www.chionline.org/
> Provides information and referral services,counseling, support groups,
> education, and research aimed at improving hospice care for children.
>
> Choice in Dying
> 1035 30th Street NW
> Washington, DC 20007
> (202)338-9790
> (202)338-0242 FAX
> Web site:http://www.choices.org/
> Advocacy organization for end-of-life rights;provides legal counseling
> and
> information on end-of-life decisions.
>
> National Association for Home Care
> c/o Consumer Guide
> P.O. Box 14241
> Washington, DC 20003
> (202)547-7424
> (202)547-3540 FAX
> Web site: http://www.nahc.org/
> Trade association that provides referrals to local hospice
> organizations.
>
> Hospice Education Institute/Hospicelink
> 190 Westbrook Road
> Essex, CT 06426
> (860)767-1620
> (800)331-1620
> (860)767-2746 FAX
> E-mail: mailto:hospiceall@aol.com
> Provides information and referral services,education, advice and
> assistance
> regarding hospice and palliative care.
>
> National Hospice Organization
> 1901 N. Moore Street, Suite 901
> Arlington, VA 22209
> (703)243-5900
> (800)658-8898
> (703)525-5762 FAX
> E-mail: mailto:drsno@cais.com
> Web site: http://www.nho.org/
> Provides information and referrals to local hospitals, patient
> advocacy and
> professional education.
>
> National Institute for Jewish Hospice
> 8723 Alden Drive, Suite 219
> Los Angeles, CA 90048
> (310)854-3036
> (213)HOSPICE
> (800)446-4448
> Provides free telephone counseling and referrals; trains professionals
> in
> the art of helping the Jewish terminally ill.
> RESOURCES/ LEGAL
>
> Americans with Disabilities Act
> U.S. Equal Employment Opportunity Commission
> Office of Legal Council
> 1801 L Street NW
> Washington, DC 20507
> (202)663-4503
> Provides information and legal assistance regarding discrimination due
> to
> illness or disability
>
> Family Medical leave Act
> U.S. Department of Labor
> Wage & Hour Division
> 200 Constitution Avenue NW
> Washington, DC 20210
> (202)219-8412
> Provides information on employment rights during medical leave due to
> illness
>
> Support Services: Finance & Insurance
>
> American Association of Health Plans
> Membership Department
> 129 20th Street NW, Suite 600
> Washington, DC 20036
> (202)778-3200
> Web site: http://www.aahp.org/
> Insurance industry trade association that will provide information on
> insurance
> and health care issues.
>
> Blue Cross and Blue Shield Association
> 675 North St. Claire Street
> Chicago, IL 60601
> (312)440-6000
>
> Department of Health and Human Services
> Inspector General Hotline
> Office of the Inspector General
> P.O. Box 23489
> Washington, DC 20026
> (800)368-5779
> U.S. government hotline for complaints regarding Medicare or Medicaid;
> provides
> assistance with issues of entitlements, benefits, insurance, and community
> resources.
>
> Disabled American Veterans
> 807 Main Avenue SW
> Washington, DC 20024
> (202)554-3501
> (202)554-3581 FAX
> Web site: http://www.dav.org/
> Provides assistance with health benefits for U.S. veterans.
>
> Hill-Burton Free Hospital Care
> 5600 Fishers Lane, Room 7-47
> Rockville, MD 20857
> (800)683-0742 Hotline
> (301)594-5999 FAX
> Web site: http://www.hrsa.dhhs.gov/bhrd/dfcr/dfcrmain.htm
> U.S. government program that can arrange for cost-assisted care for
> disadvantaged individuals at certain medical facilities or hospitals.
>
> National Insurance Consumer Hotline
> 1001 Pennsylvania Avenue, NW
> Washington, DC 20004
> (800)942-4242
> Provides assistance in finding insurance coverage, information on insurance
> issues and a consumer complaint service.
>
> SUPPORT SERVICE TRAVEL
>
> Support Services: Hair Loss
>
> Look Good, Feel Better
> The American Cancer Society
> (800)395-LOOK
> Teaches women who have undergone cancer treatment how to improve appearance
> through cosmetics, wigs, scarfs, etc.
>
> Y-ME WIG
> 212 West Van Buren Street, 4th Floor
> Chicago, IL 60607
> (800)221-2141
> (312)294-8598 FAX
> Web site: http://www.y-me.org/
> Provides donated wigs free of charge.
>
> 72% WWW CancerNet
> URL: http://www.arc.com/cancernet/cancernet.html/
> Summary: com . WWW Cancer (sm) is a Community-oriented World Wide Web
> outreach
> project that enables
> easy access to the National Cancer Institute's (NCI's) Cancer databases.
> Supportive Care, Screening, and
> Prevention Information for Patients.
> URL: http://cancernet.nci.nih.gov/icichome.htm
> Summary: To begin your search, choose from cancer information selected and
> organized for your needs as a
> patient, health professional, or basic researcher. Selected information
> from
> PDQ®, NCI's comprehensive cancer
> database, including summaries on cancer treatment, screening, prevention,
> and
> supportive care, and information on
> ongoing clinical trials;. 68% Untitled
> URL: http://www.med.ucalgary.ca:70/R386409-390596-1m/other/medstuff
> Summary: The National Cancer Institute has a new Information Associates
> Program
> which provides one-stop, easy
> access to all of NCI's scientific information resources, including online
> access to the PDQ database via the Internet or
> by dialing toll-free to NCI using just a modem and personal computer. For
> details, select news articles How to
> Access NCI Information Resources - U.S. Residents (...
> More Like This: Click here to perform a search for documents like this
> one.
>
> 6
>
> VALERIE J ROSENSTEEL wrote:
>
> > o.k. here goes "it's been a hard day's night"(who?) but right now it's
> > "sunday morning sunshine"(who?)
> > Seriously, my name is Valerie (Val) & I find it very difficult to put my
> > feelings in black & white - thus the reason I've been eavsdropping since
> > the 1st of May.
> > This is page 1. I'm sure I won't get it all on 1 page!LOL
> > I live in Fl.. I'm married, 6 kids - all adults ( that's a stretch of the
> > imagination sometimes)LOL,& 9 grandkids. Soooo - my present concern is my
> > sister - 46,married,2 kids - 14 & 12.She's 12 yrs my junior.(yes, I'm an
> > old bag)LOL. 15 yrs ago she had a malignant melanoma -clark level
> 4,breslow
> > level 1.36.also a radical lymphnode removal of the left groin. she pulled
> > through though she wasn't given good odds,was told not to have kids.
> > Through the yrs she's had 3 more melanomas removed & cleared. This time
> was
> > not so good. In April she was diagnosed with metastisized melanoma
> unknown
> > origin.had every test available I think.Her onc sent her to U.ofA. to the
> > cancer center there for a 2nd opinion. It was confirmed. They found spots
> > on her liver,but noone thinks it's tumors - tests were negative.
> > BTW, I'm not in the medical field so some of my info is sketchy. The dr.
> @
> > the UofA & her regular onc conferred & decided on interferon as the drug
> of
> > choice. She started a program of 50 million mg? i think - 5 times a week
> > for 1 month,at the hospital - IV's.now it's injections 3 times a week,
> half
> > the dosage. They do regular blood tests . Well as of Thurs. they decided
> > she is "well enough " to return to work. She's a nurse in E.R. She tires
> > VERYeasy & has good days & bad. -alot of flu like symtoms. Her 1st day
> back
> > there was a hellova vehicle accident involving several vehicles & it put
> 15
> > people in E.R. - all very serious- 2 died. They had to send a volunteer
> for
> > food for the staff - no time for lunch. She was DRAINED when she got home
> -
> > then had to take a shot.
> > I'm worried sick about her!!!!
> > Will write page 2 later. The saga will continueLOL
> > THINK WELL, Val
> > ------------------------------------------------------------------------
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