----------
> From: lillian jennings <firefly@islc.net>
> To: mol-cancer@lists.meds.com
> Subject: Re: [MOL] my introduction
> Date: Sunday, July 19, 1998 4:03 PM
>
Ok Girlfriend, here we go. Qest. # 1 THE BEATLES!. Quest. # 2 THE
VILLIAGERS!
Am I right? What's my prize?
Thank you for telling us who you are, I live in S.C. have 4 ch. and 7
grandchildren. I regret to inform you that you are not the oldest member
of mol
nor have the most ch. Boy, that's really beating you down, I' sorry. I
can
understand your concerns with your sister and her health, you have got to
be a
wonder big sister! She could explain to her doctors that 1. fatigue is too
much
for her to work right now and 2. her immune system is down and doesn't feel
she
should be exposed to all the germs at a hospital setting.
I told you I would have the trills of sending you allot of information and
believe me, I have kept my promise to you. No doubt after tomorrows Part 2
on
your sister I will have more information to send you. Welcome, your
friend,
Lillian
WELCOME TO YOUR MOL CANCER FORUM
Here you will meet a wonderful caring group of individuals who are
cancering or who are loved ones and friends being advocates for
those
cancering. Individuals in this group are not in the medical
professional
field. Therefore,we do not endorse a treatment, drug or product. Our
people combined do have many year's of accumulated knowledge and
expierence, who come from all walks in life and are able to lend
tremendous
assistance to help you walk through this journey.
There are a few matters of importance to address.
It is the general assumption of the group that one can use alternative
treatments (with your doctors permission) in conjunction with
traditional
therapy.
We feel that an individual who has had testing and is returning to the
doctor should take someone with them as an extra set of ears.
It must be remembered that this is a most stressful time for you. We
also
agree that a second or even a third opinion is healthy. One needs to
shop
for the right doctor for them; as each of us are so different not only
in
personality; but our bodies react differently.
You should be seeking nothing but the best doctors and hospital,
remember
this is your life and you want to be in control. The best way to be
in
control is to acquire all the information needed for your particular
cancer; so that you and your doctor can descide the best treatment for
you.
We find stress is our worse enemy, it is so important to remove
yourself
from stressful situations and non positive thinkers.
There are so many new drugs and treatments our there for most cancers
that
lend hope to all.
Be prepared for you doctors visits with questions. Should the doctor
interrupt you while you are questioning explain that you have more
questions. Make sure the doctor speaks to you in lay terms and that
he is
positive also.
Too often the doctor will give a gloomy statistical report, thus
taking
hope away from the patient and we find so many people who far out live
the
guess of any doctor. Last; but never least make sure that you eat
healthy
and that you keep your immune system built up.
Again, we are here for you, we are a place of compassionate comfort, a
place you can rant and rave knowing that we too have done that. A
place of
shelter; whereas all of us know what you are going through. Your
friends
of the MOL CANCER FORUM
TRADITIONAL SITES
National Cancer Institute http://rex.nci.nih.gov
Univ of Penn http://cancer.med.upenn.edu
Cancer Notes on the Net http://www.cancernews.com
Medicine On Line http://www.meds.com
MD Anderson http://www.mdanderson.org
Mem. Sloan-Kettering http://www.mskcc.org
Alternative Medicine
www.canceranswers.com
85% CancerAnswers - Alternative Treatments
84% Cancer Information -Alternative Treatments
www.chiro.org
84% CANCER TREATMENTS/ ALTERNATIVE
84% Alternative Remedies for Cancer and other diseases.
www.meds.com
84% Re: Alternative cancer treatments [00299]
83% 5. Internet Resources on Cancer
MEDICAL DICTIONARIES
BOOKS "50 Esential Things to Do When
the
Doctor
Says it is Cancer",
Greg
Anderson
HOME HEALTH CARE
National Association for Home Care
c/o Consumer Guide
P.O. Box 14241
Washington, DC 20003
(202)547-7424
(202)547-3540 FAX
Web site: http://www.nahc.org/
Trade association providing referrals to home or hospice care.
The Oley Foundation
214 Hun Memorial, A-23
Albany Medical Center
Albany, NY 12208-3478
(518)262-5079
(800)776-OLEY
E-mail: mailto:taylor@ccgateway.amc.edu
Web site: http://www.wizvax.net/oleyfdn
Support for home enteral and/or parental nutrition therapy.
Olsten HealthCare
175 Broadhollow Road
Melville, NY 11747
(516)844-7800
(800)66-NURSE
Web site: http://www.olsten.com/
Provides home health care services including chemotherapy, nutrition
and
hydration therapies, pain management, physical therapy, and general
nursing
services.
Visiting Nurse Association of America National Office
3801 East Florida Avenue, Suite 900
Denver, CO 80210
(888)866-8773
(303)753-0218
Provides skilled nursing and assisted living services.
Amherst H. Wilder Foundation
919 Lafond Avenue
St. Paul, MN 55104
(612)642-4000
(612)642-4068 FAX
Web site: http://www.wilder.org/
Provides assisted living and nursing home care services for the
elderly in
the Minneapolis area.
Childrens' Hospice
2202 Mt. Vernon Ave., Suite 3C
Alexandria, VA 22301
(703)684-0330
(703)684-0226 FAX
E-mail: mailto:chiorg@aol.com
Web site: http://www.chionline.org/
Provides information and referral services,counseling, support groups,
education, and research aimed at improving hospice care for children.
Choice in Dying
1035 30th Street NW
Washington, DC 20007
(202)338-9790
(202)338-0242 FAX
Web site:http://www.choices.org/
Advocacy organization for end-of-life rights;provides legal counseling
and
information on end-of-life decisions.
National Association for Home Care
c/o Consumer Guide
P.O. Box 14241
Washington, DC 20003
(202)547-7424
(202)547-3540 FAX
Web site: http://www.nahc.org/
Trade association that provides referrals to local hospice
organizations.
Hospice Education Institute/Hospicelink
190 Westbrook Road
Essex, CT 06426
(860)767-1620
(800)331-1620
(860)767-2746 FAX
E-mail: mailto:hospiceall@aol.com
Provides information and referral services,education, advice and
assistance
regarding hospice and palliative care.
National Hospice Organization
1901 N. Moore Street, Suite 901
Arlington, VA 22209
(703)243-5900
(800)658-8898
(703)525-5762 FAX
E-mail: mailto:drsno@cais.com
Web site: http://www.nho.org/
Provides information and referrals to local hospitals, patient
advocacy and
professional education.
National Institute for Jewish Hospice
8723 Alden Drive, Suite 219
Los Angeles, CA 90048
(310)854-3036
(213)HOSPICE
(800)446-4448
Provides free telephone counseling and referrals; trains professionals
in
the art of helping the Jewish terminally ill.
RESOURCES/ LEGAL
Americans with Disabilities Act
U.S. Equal Employment Opportunity Commission
Office of Legal Council
1801 L Street NW
Washington, DC 20507
(202)663-4503
Provides information and legal assistance regarding discrimination due
to
illness or disability
Family Medical leave Act
U.S. Department of Labor
Wage & Hour Division
200 Constitution Avenue NW
Washington, DC 20210
(202)219-8412
Provides information on employment rights during medical leave due to
illness
Support Services: Finance & Insurance
American Association of Health Plans
Membership Department
129 20th Street NW, Suite 600
Washington, DC 20036
(202)778-3200
Web site: http://www.aahp.org/
Insurance industry trade association that will provide information on
insurance
and health care issues.
Blue Cross and Blue Shield Association
675 North St. Claire Street
Chicago, IL 60601
(312)440-6000
Department of Health and Human Services
Inspector General Hotline
Office of the Inspector General
P.O. Box 23489
Washington, DC 20026
(800)368-5779
U.S. government hotline for complaints regarding Medicare or Medicaid;
provides
assistance with issues of entitlements, benefits, insurance, and community
resources.
Disabled American Veterans
807 Main Avenue SW
Washington, DC 20024
(202)554-3501
(202)554-3581 FAX
Web site: http://www.dav.org/
Provides assistance with health benefits for U.S. veterans.
Hill-Burton Free Hospital Care
5600 Fishers Lane, Room 7-47
Rockville, MD 20857
(800)683-0742 Hotline
(301)594-5999 FAX
Web site: http://www.hrsa.dhhs.gov/bhrd/dfcr/dfcrmain.htm
U.S. government program that can arrange for cost-assisted care for
disadvantaged individuals at certain medical facilities or hospitals.
National Insurance Consumer Hotline
1001 Pennsylvania Avenue, NW
Washington, DC 20004
(800)942-4242
Provides assistance in finding insurance coverage, information on insurance
issues and a consumer complaint service.
SUPPORT SERVICE TRAVEL
Support Services: Hair Loss
Look Good, Feel Better
The American Cancer Society
(800)395-LOOK
Teaches women who have undergone cancer treatment how to improve appearance
through cosmetics, wigs, scarfs, etc.
Y-ME WIG
212 West Van Buren Street, 4th Floor
Chicago, IL 60607
(800)221-2141
(312)294-8598 FAX
Web site: http://www.y-me.org/
Provides donated wigs free of charge.
72% WWW CancerNet
URL: http://www.arc.com/cancernet/cancernet.html/
Summary: com . WWW Cancer (sm) is a Community-oriented World Wide Web
outreach
project that enables
easy access to the National Cancer Institute's (NCI's) Cancer databases.
Supportive Care, Screening, and
Prevention Information for Patients.
URL: http://cancernet.nci.nih.gov/icichome.htm
Summary: To begin your search, choose from cancer information selected and
organized for your needs as a
patient, health professional, or basic researcher. Selected information
from
PDQ®, NCI's comprehensive cancer
database, including summaries on cancer treatment, screening, prevention,
and
supportive care, and information on
ongoing clinical trials;. 68% Untitled
URL: http://www.med.ucalgary.ca:70/R386409-390596-1m/other/medstuff
Summary: The National Cancer Institute has a new Information Associates
Program
which provides one-stop, easy
access to all of NCI's scientific information resources, including online
access to the PDQ database via the Internet or
by dialing toll-free to NCI using just a modem and personal computer. For
details, select news articles How to
Access NCI Information Resources - U.S. Residents (...
More Like This: Click here to perform a search for documents like this
one.
6
VALERIE J ROSENSTEEL wrote:
> o.k. here goes "it's been a hard day's night"(who?) but right now it's
> "sunday morning sunshine"(who?)
> Seriously, my name is Valerie (Val) & I find it very difficult to put my
> feelings in black & white - thus the reason I've been eavsdropping since
> the 1st of May.
> This is page 1. I'm sure I won't get it all on 1 page!LOL
> I live in Fl.. I'm married, 6 kids - all adults ( that's a stretch of the
> imagination sometimes)LOL,& 9 grandkids. Soooo - my present concern is my
> sister - 46,married,2 kids - 14 & 12.She's 12 yrs my junior.(yes, I'm an
> old bag)LOL. 15 yrs ago she had a malignant melanoma -clark level
4,breslow
> level 1.36.also a radical lymphnode removal of the left groin. she pulled
> through though she wasn't given good odds,was told not to have kids.
> Through the yrs she's had 3 more melanomas removed & cleared. This time
was
> not so good. In April she was diagnosed with metastisized melanoma
unknown
> origin.had every test available I think.Her onc sent her to U.ofA. to the
> cancer center there for a 2nd opinion. It was confirmed. They found spots
> on her liver,but noone thinks it's tumors - tests were negative.
> BTW, I'm not in the medical field so some of my info is sketchy. The dr.
@
> the UofA & her regular onc conferred & decided on interferon as the drug
of
> choice. She started a program of 50 million mg? i think - 5 times a week
> for 1 month,at the hospital - IV's.now it's injections 3 times a week,
half
> the dosage. They do regular blood tests . Well as of Thurs. they decided
> she is "well enough " to return to work. She's a nurse in E.R. She tires
> VERYeasy & has good days & bad. -alot of flu like symtoms. Her 1st day
back
> there was a hellova vehicle accident involving several vehicles & it put
15
> people in E.R. - all very serious- 2 died. They had to send a volunteer
for
> food for the staff - no time for lunch. She was DRAINED when she got home
-
> then had to take a shot.
> I'm worried sick about her!!!!
> Will write page 2 later. The saga will continueLOL
> THINK WELL, Val
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