I had trouble with a couple of Lillian's messages. The message was there
but did not start until about a page down so that it appeared to be blank.
Christine
At 04:12 PM 18/07/98 -0700, you wrote:
>Dear Lillian, I've mentioned this before but.....upon opening your mail,
>nothing is there. I have to hit Reply To and then I see your message. Do
>you think anyone else is having this problem? I used to have to skip over
>your empty msgs (only a couple of times, cuz that drives me crazy. I have
>to know what your saying) until I hit the "reply to author" button and
>there you are. Anyone else having this problem? Or just me? The letter
>to the new ones on MOL must be read. It's to valuable to be missed. So I
>thought I would mention it once again. Thanks Vicci
>
>----------
>> From: LILLIAN JENNINGS <firefly@islc.net>
>> To: mol-cancer@lists.meds.com
>> Subject: [MOL] Re TO ALL MEMBERS FOR YOUR USE !
>> Date: Thursday, July 16, 1998 7:53 PM
>>
>
>
> DEAR FRIENDS OF MOL: I have taken the time to search the web and put
> togeather a comprehensive welcome and site locations to include,
>hospice,
> financial, books, medical dic., legal; etc. to help you respond to new
> queries. Please review and if you see any changes that need to be
>made or
> additions to be added send me the info. and I will insert and resend
>to all
> molers. Molers may want to save this to a floppy disk as not to
>overload
> their hard drives. Thanks your friend, Lillian
>
> WELCOME TO YOUR MOL CANCER FORUM
>
> Here you will meet a wonderful caring group of indiv individuals who
>are
> cancering or who are loved ones and friends that are advocates for
>those
> cancering. Individuals in this group are not in the medical
>professional
> field. Therefore,we do not endorse a treatment, drug or product. Our
> people combined do have many year's of accumulated knowledge and
> expierence, who come from all walks in life and are able to lend
>tremendous
> assistance to help you through this journey.
>
> There are a few matters of importance to address.
> It is the general assumption of the group that one can use alternative
> treatments (with your doctors permission) in conjunction with
>traditional
> therapy.
> We feel that an individual who has had testing and is returning to the
> doctor should take someone with them as an extra set of ears.
> It must be remembered that this is a most stressful time for you. We
>also
> agree that a second or even a third opinion is healthy. One needs to
>shop
> for the right doctor for them; as each of us are so different not only
>in
> personality; but our bodies react differently.
> You should be seeking nothing but the best doctors and hospital,
>remember
> this is your life and you want to be in control. The best way to be
>in
> control is to acquire all the information needed for your particular
> cancer; so that you and your doctor can descide the best treatment for
>you.
>
> We find stress is our worse enemy, it is so important to remove
>yourself
> from stressful situations and non positive thinkers.
> There are so many new drugs and treatments our there for most cancers
>that
> lend hope to all.
> Be prepared for you doctors visits with questions. Should the doctor
> interrupt you while you are questioning explain that you have more
> questions. Make sure the doctor speaks to you in lay terms and that
>he is
> positive also.
> Too often the doctor will give a gloomy statistical report, thus
>taking
> hope away from the patient and we find so many people who far out live
>the
> guess of any doctor. Last; but never least make sure that you eat
>healthy
> and that you keep your immune system built up.
> Again, we are here for you, we are a place of compassionate comfort, a
> place you can rant and rave knowing that we too have done that. A
>place of
> shelter; whereas all of us know what you are going through. Your
>friends
> of the MOL CANCER FORUM
>
> TRADITIONAL SITES
> National Cancer Institute http://rex.nci.nih.gov
> Univ of Penn http://cancer.med.upenn.edu
> Cancer Notes on the Net http://www.cancernews.com
> Medicine On Line http://www.meds.com
> MD Anderson http://www.mdanderson.org
> Mem. Sloan-Kettering http://www.mskcc.org
>
> Alternative Medicine
>
> www.canceranswers.com
> 85% CancerAnswers - Alternative Treatments
> 84% Cancer Information -Alternative Treatments
>
> www.chiro.org
> 84% CANCER TREATMENTS/ ALTERNATIVE
> 84% Alternative Remedies for Cancer and other diseases.
>
> www.meds.com
> 84% Re: Alternative cancer treatments [00299]
> 83% 5. Internet Resources on Cancer
>
> BOOKS "50 Esential Things to Do When
>the
> Doctor
> Says it is Cancer",
>Greg
> Anderson
> On Line Medical Dic. omd@www.graylab.ac.uk
>
> National Association for Home Care
> c/o Consumer Guide
> P.O. Box 14241
> Washington, DC 20003
> (202)547-7424
> (202)547-3540 FAX
> Web site: http://www.nahc.org/
> Trade association providing referrals to home or hospice care.
>
> The Oley Foundation
> 214 Hun Memorial, A-23
> Albany Medical Center
> Albany, NY 12208-3478
> (518)262-5079
> (800)776-OLEY
> E-mail: mailto:taylor@ccgateway.amc.edu
> Web site: http://www.wizvax.net/oleyfdn
> Support for home enteral and/or parental nutrition therapy.
>
> Olsten HealthCare
> 175 Broadhollow Road
> Melville, NY 11747
> (516)844-7800
> (800)66-NURSE
> Web site: http://www.olsten.com/
> Provides home health care services including chemotherapy, nutrition
>and
> hydration therapies, pain management, physical therapy, and general
>nursing
> services.
>
> Visiting Nurse Association of America National Office
> 3801 East Florida Avenue, Suite 900
> Denver, CO 80210
> (888)866-8773
> (303)753-0218
> Provides skilled nursing and assisted living services.
>
> Amherst H. Wilder Foundation
> 919 Lafond Avenue
> St. Paul, MN 55104
> (612)642-4000
> (612)642-4068 FAX
> Web site: http://www.wilder.org/
> Provides assisted living and nursing home care services for the
>elderly in
> the Minneapolis area.
>
> Childrens' Hospice
> 2202 Mt. Vernon Ave., Suite 3C
> Alexandria, VA 22301
> (703)684-0330
> (703)684-0226 FAX
> E-mail: mailto:chiorg@aol.com
> Web site: http://www.chionline.org/
> Provides information and referral services,counseling, support groups,
> education, and research aimed at improving hospice care for children.
>
> Choice in Dying
> 1035 30th Street NW
> Washington, DC 20007
> (202)338-9790
> (202)338-0242 FAX
> Web site:http://www.choices.org/
> Advocacy organization for end-of-life rights;provides legal counseling
>and
> information on end-of-life decisions.
>
> National Association for Home Care
> c/o Consumer Guide
> P.O. Box 14241
> Washington, DC 20003
> (202)547-7424
> (202)547-3540 FAX
> Web site: http://www.nahc.org/
> Trade association that provides referrals to local hospice
>organizations.
>
> Hospice Education Institute/Hospicelink
> 190 Westbrook Road
> Essex, CT 06426
> (860)767-1620
> (800)331-1620
> (860)767-2746 FAX
> E-mail: mailto:hospiceall@aol.com
> Provides information and referral services,education, advice and
>assistance
> regarding hospice and palliative care.
>
> National Hospice Organization
> 1901 N. Moore Street, Suite 901
> Arlington, VA 22209
> (703)243-5900
> (800)658-8898
> (703)525-5762 FAX
> E-mail: mailto:drsno@cais.com
> Web site: http://www.nho.org/
> Provides information and referrals to local hospitals, patient
>advocacy and
> professional education.
>
> National Institute for Jewish Hospice
> 8723 Alden Drive, Suite 219
> Los Angeles, CA 90048
> (310)854-3036
> (213)HOSPICE
> (800)446-4448
> Provides free telephone counseling and referrals; trains professionals
>in
> the art of helping the Jewish terminally ill.
>
> RESOURCES/ LEGAL
> Americans with Disabilities Act
> U.S. Equal Employment Opportunity Commission
> Office of Legal Council
> 1801 L Street NW
> Washington, DC 20507
> (202)663-4503
> Provides information and legal assistance regarding discrimination due
>to
> illness or disability
>
> Family Medical leave Act
> U.S. Department of Labor
> Wage & Hour Division
> 200 Constitution Avenue NW
> Washington, DC 20210
> (202)219-8412
> Provides information on employment rights during medical leave due to
> illness.
>
> Resources: Support Services: Finance & Insurance
>
>American Association of Health Plans
>Membership Department
>129 20th Street NW, Suite 600
>Washington, DC 20036
>(202)778-3200
>Web site: http://www.aahp.org/
>Insurance industry trade association that will provide information on
>insurance
>and health care issues.
>
>Blue Cross and Blue Shield Association
>675 North St. Claire Street
>Chicago, IL 60601
>(312)440-6000
>
>Department of Health and Human Services
>Inspector General Hotline
>Office of the Inspector General
>P.O. Box 23489
>Washington, DC 20026
>(800)368-5779
>U.S. government hotline for complaints regarding Medicare or Medicaid;
>provides
>assistance with issues of entitlements, benefits, insurance, and community
>resources.
>
>Disabled American Veterans
>807 Main Avenue SW
>Washington, DC 20024
>(202)554-3501
>(202)554-3581 FAX
>Web site: http://www.dav.org/
>Provides assistance with health benefits for U.S. veterans.
>
>Hill-Burton Free Hospital Care
>5600 Fishers Lane, Room 7-47
>Rockville, MD 20857
>(800)683-0742 Hotline
>(301)594-5999 FAX
>Web site: http://www.hrsa.dhhs.gov/bhrd/dfcr/dfcrmain.htm
>U.S. government program that can arrange for cost-assisted care for
>disadvantaged individuals at certain medical facilities or hospitals.
>
>National Insurance Consumer Hotline
>1001 Pennsylvania Avenue, NW
>Washington, DC 20004
>(800)942-4242
>Provides assistance in finding insurance coverage, information on insurance
>issues and a consumer complaint service.
>
>Resources: Support Services: Hair Loss
>
>Look Good, Feel Better
>The American Cancer Society
>(800)395-LOOK
>Teaches women who have undergone cancer treatment how to improve appearance
>through cosmetics, wigs, scarfs, etc.
>
>Y-ME WIG
>212 West Van Buren Street, 4th Floor
>Chicago, IL 60607
>(800)221-2141
>(312)294-8598 FAX
>Web site: http://www.y-me.org/
>Provides donated wigs free of charge.
>
>
>
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