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Here you will meet a wonderful caring group of individuals who are
cancering or who are loved ones and friends being advocates
for those cancering. Individuals in this group are not in the medical
professional field. Therefore,we do not endorse a treatment, drug
or product. Our people combined do have many year's of accumulated
knowledge and expierence, who come from all walks in life and are able
to lend tremendous assistance to help you walk through this journey.
There are a few matters of importance to address.
It is the general assumption of the group that one can use alternative
treatments (with your doctors permission) in conjunction with traditional
therapy.
We feel that an individual who has had testing and is returning to
the doctor should take someone with them as an extra set of ears.
It must be remembered that this is a most stressful time for you.
We also agree that a second or even a third opinion is healthy. One
needs to shop for the right doctor for them; as each of us are so different
not only in personality; but our bodies react differently.
You should be seeking nothing but the best doctors and hospital, remember
this is your life and you want to be in control. The best way to
be in control is to acquire all the information needed for your particular
cancer; so that you and your doctor can descide the best treatment for
you.
We find stress is our worse enemy, it is so important to remove yourself
from stressful situations and non positive thinkers.
There are so many new drugs and treatments our there for most cancers
that lend hope to all.
Be prepared for you doctors visits with questions. Should the
doctor interrupt you while you are questioning explain that you have more
questions. Make sure the doctor speaks to you in lay terms and that
he is positive also.
Too often the doctor will give a gloomy statistical report, thus taking
hope away from the patient and we find so many people who far out live
the guess of any doctor. Last; but never least make sure that you
eat healthy and that you keep your immune system built up.
Again, we are here for you, we are a place of compassionate comfort,
a place you can rant and rave knowing that we too have done that.
A place of shelter; whereas all of us know what you are going through.
Your friends of the MOL CANCER FORUM
TRADITIONAL SITES
National Cancer Institute http://rex.nci.nih.gov
Univ of Penn
http://cancer.med.upenn.edu
Cancer Notes on the Net http://www.cancernews.com
Medicine On Line
http://www.meds.com
MD Anderson
http://www.mdanderson.org
Mem. Sloan-Kettering
http://www.mskcc.org
Alternative Medicine
www.canceranswers.com
85% CancerAnswers - Alternative
Treatments
84% Cancer Information -Alternative
Treatments
www.chiro.org
84% CANCER TREATMENTS/ ALTERNATIVE
84% Alternative Remedies for Cancer
and other diseases.
www.meds.com
84% Re: Alternative cancer treatments
[00299]
83% 5. Internet Resources on Cancer
MEDICAL DICTIONARIES
BOOKS
"50 Esential Things to Do When the Doctor
Says it is Cancer", Greg Anderson
HOME HEALTH CARE
National Association for Home Care
c/o Consumer Guide
P.O. Box 14241
Washington, DC 20003
(202)547-7424
(202)547-3540 FAX
Web site: http://www.nahc.org/
Trade association providing referrals to home or hospice care.
The Oley Foundation
214 Hun Memorial, A-23
Albany Medical Center
Albany, NY 12208-3478
(518)262-5079
(800)776-OLEY
E-mail: mailto:taylor@ccgateway.amc.edu
Web site: http://www.wizvax.net/oleyfdn
Support for home enteral and/or parental nutrition therapy.
Olsten HealthCare
175 Broadhollow Road
Melville, NY 11747
(516)844-7800
(800)66-NURSE
Web site: http://www.olsten.com/
Provides home health care services including chemotherapy, nutrition
and hydration therapies, pain management, physical therapy, and general
nursing services.
Visiting Nurse Association of America National Office
3801 East Florida Avenue, Suite 900
Denver, CO 80210
(888)866-8773
(303)753-0218
Provides skilled nursing and assisted living services.
Amherst H. Wilder Foundation
919 Lafond Avenue
St. Paul, MN 55104
(612)642-4000
(612)642-4068 FAX
Web site: http://www.wilder.org/
Provides assisted living and nursing home care services for the
elderly in the Minneapolis area.
Childrens' Hospice
2202 Mt. Vernon Ave., Suite 3C
Alexandria, VA 22301
(703)684-0330
(703)684-0226 FAX
E-mail: mailto:chiorg@aol.com
Web site: http://www.chionline.org/
Provides information and referral services,counseling, support groups,
education, and research aimed at improving hospice care for children.
Choice in Dying
1035 30th Street NW
Washington, DC 20007
(202)338-9790
(202)338-0242 FAX
Web site:http://www.choices.org/
Advocacy organization for end-of-life rights;provides legal counseling
and information on end-of-life decisions.
National Association for Home Care
c/o Consumer Guide
P.O. Box 14241
Washington, DC 20003
(202)547-7424
(202)547-3540 FAX
Web site: http://www.nahc.org/
Trade association that provides referrals to local hospice organizations.
Hospice Education Institute/Hospicelink
190 Westbrook Road
Essex, CT 06426
(860)767-1620
(800)331-1620
(860)767-2746 FAX
E-mail: mailto:hospiceall@aol.com
Provides information and referral services,education, advice and assistance
regarding hospice and palliative care.
National Hospice Organization
1901 N. Moore Street, Suite 901
Arlington, VA 22209
(703)243-5900
(800)658-8898
(703)525-5762 FAX
E-mail: mailto:drsno@cais.com
Web site: http://www.nho.org/
Provides information and referrals to local hospitals, patient advocacy
and professional education.
National Institute for Jewish Hospice
8723 Alden Drive, Suite 219
Los Angeles, CA 90048
(310)854-3036
(213)HOSPICE
(800)446-4448
Provides free telephone counseling and referrals; trains professionals
in the art of helping the Jewish terminally ill.
RESOURCES/ LEGAL
Americans with Disabilities Act
U.S. Equal Employment Opportunity Commission
Office of Legal Council
1801 L Street NW
Washington, DC 20507
(202)663-4503
Provides information and legal assistance regarding discrimination
due to illness or disability
Family Medical leave Act
U.S. Department of Labor
Wage & Hour Division
200 Constitution Avenue NW
Washington, DC 20210
(202)219-8412
Provides information on employment rights during medical leave due
to illness
Support Services: Finance & Insurance
American Association of Health Plans
Membership Department
129 20th Street NW, Suite 600
Washington, DC 20036
(202)778-3200
Web site: http://www.aahp.org/
Insurance industry trade association that will provide information
on insurance and health care issues.
Blue Cross and Blue Shield Association
675 North St. Claire Street
Chicago, IL 60601
(312)440-6000
Department of Health and Human Services
Inspector General Hotline
Office of the Inspector General
P.O. Box 23489
Washington, DC 20026
(800)368-5779
U.S. government hotline for complaints regarding Medicare or Medicaid;
provides assistance with issues of entitlements, benefits, insurance, and
community resources.
Disabled American Veterans
807 Main Avenue SW
Washington, DC 20024
(202)554-3501
(202)554-3581 FAX
Web site: http://www.dav.org/
Provides assistance with health benefits for U.S. veterans.
Hill-Burton Free Hospital Care
5600 Fishers Lane, Room 7-47
Rockville, MD 20857
(800)683-0742 Hotline
(301)594-5999 FAX
Web site: http://www.hrsa.dhhs.gov/bhrd/dfcr/dfcrmain.htm
U.S. government program that can arrange for cost-assisted care for
disadvantaged individuals at certain medical facilities or hospitals.
National Insurance Consumer Hotline
1001 Pennsylvania Avenue, NW
Washington, DC 20004
(800)942-4242
Provides assistance in finding insurance coverage, information on insurance
issues and a consumer complaint service.
SUPPORT SERVICE TRAVEL
Support Services: Hair Loss
Look Good, Feel Better
The American Cancer Society
(800)395-LOOK
Teaches women who have undergone cancer treatment how to improve appearance
through cosmetics, wigs, scarfs, etc.
Y-ME WIG
212 West Van Buren Street, 4th Floor
Chicago, IL 60607
(800)221-2141
(312)294-8598 FAX
Web site: http://www.y-me.org/
Provides donated wigs free of charge.
JoanRubins@aol.com wrote:
I've never used the computer this way before; therefore, I don't know who I'm
writing to--or whether this is the way to get information.My mother had surgery for oat cell carcenoma and chemotherapy 12 yrs ago and
had been fine until last summer. At that time she was diagnosed with basal
cell carcinoma and had surgery on the other lung. Now, 11 months later, she
is undergoing 7 weeks of radiation because there is a spread with interferes
with breathing. It finishes today, but she feels no difference (she is 83).Does this mean it may be in the trachea? What are the options? Any
suggestions?
Thank you. Joan Rubinstein
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