Dear Jenny
Thank you for coming to our discussion forum. You will find many here
who are knowledgable, willing and loving and will provide you with much
information or at least suggestions where you can find some answers to
your questions.
My wife also had a carcinoma of an unkown primary. The only clinic that
has a research and medical opinion about this rare disease is MD
Anderson in TExas. 1-800-345-6324. I believe at that time when Barb was
diagnosed that Dr. Abruzzesse was the head onocologist. That may have
changed.
For much more information about the disease pls call the National Cancer
Institute at 1-800-4cancer and they will provide you with written
information about the disease, various types of treatments and side
effects and pls ask them to provide you with names of comprehensive
hospitals in your area to seek 2nd opinions.
Pls do come back and ask whatever else you may need to know. Good Luck
and God Bless
marty auslander
Litmind@aol.com wrote:
>
> Dear Marty
>
> I am new to this and I assume one writes you letters or questions. I thought
> perhaps this was a type of cancer chat room but I guess not.
>
> A dear friend of mine has just been diagnosed with Adenocarcinoma with it
> appearing in mulitple lpaces in the liver. At this point the primary site is
> unknown. Theyhave checked the colon, stomach, gall bladder, pancreas,
> ovaries, lung s and breasts. Everything so far is showing negative except
> they are certain there are multiple tumors in the liver that did not originate
> there. We have an appointment this Friday, July 17, 198 with an oncologist.
> I have been trying to find some data and or web sites to help us formulate
> questions for this doctor. I am getting nowhere fast. I don't think I have
> enough information at this point. Can you offer any suggestions for questions
> that we should be sure to ask on this visit or can you suggest web sites and
> other data that I can quickly get my hands on. I thank you in advance for any
> assistance you can provide. Please respond ASAP.
>
> Thank You
>
> Jenny
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