Cindy Crowe wrote:
>
> Jim and I saw his onc. today to get a summary of the CT and Bone Scans
> and MRI he's had done recently. Basically, he's eaten up with
> cancer. As I have said before, based on my own research, what his
> onc.'s told us and at a meeting with some of the top physicians at MD
> Anderson which I was privileged to be able to attend for the MAX
> Foundation, there is no cure for small cell lung cancer, none of them
> have ever heard or had a patient who has beaten this thing and
> remission in sclc does not mean cancer free. As you can tell, I'm
> upset right now, not at any of you my dear friends but for some of the
> happy, happy rhetoric and false hope given to certain people who
> frequent our doors. I was almost starting to believe it myself until
> I got slapped up side of the head today.
>
> Besides the lung, all lymphs, and bone marrow, Jim now has cancer in
> his spine, in his spinal fluid and on his bones. While his dr. has
> always said she is not God and cannot give you an exact time of when a
> person will die, she can utilize the data she has with people who have
> gone through what Jim has gone through in the past and what is
> happening in the present and come up with an estimate. She always
> makes you ask her for that time frame as she does not want to dash
> hopes unless the patient insists on that information. I, for one,
> have always wanted to know that time frame as a guide to where we are
> and how Jim is doing, so today we insisted she give us her expertise
> opinion. She told us that based on the data she has, Jim's cancer has
> exploded throughout his body. She said if he continues on his present
> course, he could have as little as 6 weeks to live. She said if
> things go really well, he might make it for up to 4 months but
> definately won't be here at Christmas with us. They have stopped the
> radiation as of today but will check him next week and see if they
> want to put him through another few treatments. She has put the
> decision as to whether or not to start up a second round of chemo back
> in Jim's court. She said that with his type of cancer, they had very
> little success with second rounds of chemo and he would have to decide
> if going through having poison poured into his body again would be
> worth the extra week or two it might buy him.
>
> A copy of all of his records have been sent to one of the top
> oncologists at MD Anderson that I've met before and he concurs with
> everything she's said including no cure and estimated life span left.
> He also told me on the phone today after I faxed him the latest info,
> that he was not aware of any clinical trials going on right now that
> would help him plus the possible one or two that might be interesting
> to try (anything for science), that Jim would not be eligible for.
>
> Anyway, based on the above, I'm going to become fairly inactive on the
> board as my priorities have changed greatly.. From time to time I
> will scan some of the messages but will not be answering any. If you
> need to get ahold of me, send it to my direct email address shown
> below (either will work) and don't have "MOL" in the subject as that
> throws the message into my MOL folder and I probably won't notice it.
> Also, please let me know on the big things going on, i.e. how
> Charlie's doing.
>
> I have enjoyed knowing each and every one of you and will probably be
> back in a few months for those broad shoulders that all of you have,
> in the past, offered to me. God bless you.
>
> I love every one of you!!!
>
> cindy crowe
> ccrowe@msn.com
> cindyc@themaxfoundation.org
>
> Until There
> Is A Cure
> [Image]
Dear Cindy,
My heart goes out to you. I have a feeling I will be in a similar
situation not long from now. I will pray for you both.
Love and God Bless,
Mary
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