Thank you Lillian for your response. I am
positive most of the time but there is always that little voice lurking. I
have recently gone back to work per diem, but an taking the summer off. I
felt like a real person again while working. I will be too busy this
summer with my grandchildren to worry about anything and I am grateful for my
remission and consider it a miracle but it is hard to be up all the
time.
Gail, I am a breast cancer survivor and
I know very little about colon cancer, other that what I have read on the
net. Pls. understand that everyone's body reacts differently to the
treatments and you may not of even had the same treatment. Also that
one might have been a fast growing cancer and the other slow. We
simply must just take one day at a time. If we worry about yesterday,
and worry about tomorrow then we don't have a today. Trust me, if you
get a reoccurrence and you are really in tuned to what your body tells you,
you will know its back. I first had uterine cancer and the physical
exhaustion told me something was seriously wrong, when I again experienced
the same physical exhaustion I knew it was cancer again, breast this
time. I just put it all out of my head and each morning when I awake
that's enough for me to be thankful for. Your friend, Lillian
GAIL ESTES wrote:
Dear
Lillian,Would you mind telling me about your
colon cancer. I was diagnosed as Stage IV in Feb of 1995. In Sept
of 95, I underwent another surgery for a take down of my colostomy and
they could not find any evidence of the cancer that had seeded into the
omentum. I also had 1 year of chemo (5fu and Leucovorin). Except
for some fluid in my pelvis in 96 which proved to be benign on testing,
I have remained cancer free since then, although I do worry about a
recurrence. That is why I joined this list. I wanted to find
other's who are at the same place I am. I was a little upset when I read
the post about Melissa's mother and her recurrence after 41/2
years.Thank youGail
-----Original
Message----- From: Lillian <firefly@islc.net>
To: mol-cancer@lists.meds.com
<mol-cancer@lists.meds.com>
Date: Monday, June 22,
1998 11:57 PM Subject: Re: [MOL] Colon cancer and my
motherMelisa: If you call the NCI they will
send you all the lititure you need and request their questions and
answer sheet. I got it from them for my cancer and the
questions were really good. Another thing to know, a doctor
will give a patient from three to 5 mins. to state what is wrong
with them, then the doctor will interrupt and take over leaving the
patient with half there list un answered. I went to see a
Doctor who had given me virtually no information on my cancer and I
had a long list of questions. In discuss he said, Oh I see you
have a long list for me"; but I forced the answers out of
him. Just last week when I was at my favorite doctors, I
started to complain about this and that that hurts and he
interrupted me and I politely told him I wasn't through. He
laughed and took it very well. One has to at least act as
though they know what they are talking about with doctors, more
preferably to know what they are talking about. You would be
amazed at mistakes, poor judgment; etc. Ex. Most people
who have to have a lung removed have one or two ribs broken; but not
one of our molers who went around shopping for doctors, she has a
four inch scar under her arm, with no ribs broken. That
certainly lessened a pain or two, I would say. Take care, your
friend, Lillian NCI
1-800 4-cancer P.S. What are those yellow arrow tabs with blue
in the middle that say span mean, and why am I getting them from
your message only, pls. advise , curious.
Don & Melissa Alexander wrote:
Thnak you. Either myself or my
mom's best friend go with her. They tend to blank out when
they hear bad news. She does not want to come in to
Seattle for her treatments, but I have no reason to believe her
Everett, WA based Dr's do not know their business. It is
so hard when you don't know all of the questions to ask or the
options to ask about.Melissa
-----Original
Message----- From:
owner-mol-cancer@lists.meds.com [mailto:owner-mol-cancer@lists.meds.com]On
Behalf Of Lillian Sent: Monday, June
22, 1998 6:25 PM To:
mol-cancer@lists.meds.com Subject: Re: [MOL]
Colon cancer and my mother
We are sorry to
hear about your mother; however as Dana has so well put, there
are many new drugs and treatments that affords us all hope on
this journey. Pls. call the NCI @ 1-800-4-cancer, they can
send you a listing of the best treatments centers nearest
you. Someone should go to the doctors with your mother and
to treatments and be with your mother after treatments.
This affords a second set of ear's and patient support.
Your friend, Lillian
JDHOVS@aol.com wrote:
Melissa, There will be many
people who will guide you as to what institutions you can
contact for help. I am no doctor, but know that no one
can put a time limit on life. Being in the liver is not
a death sentence, my dad also has some activity there.
There are many noted cases of people who have turned around
. The one problem with the liver is that it controlls
toxins. As you know to much is obviously not good for
the body. when the liver is diseaed the patient will
also start to slurr there words. It can take a toll on the
body. Now this doesn't mean that they cannot respond to
chemo, it sometmes takes a little longer. My dad is on
Gemzar now. He's been on several, we will find out the
affects of this chemo after one more treatment. And if
the news is not good, we will pursue another chemo
untill we get it right. My prayers are with you. If i
can help just call out. Dana
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