Dear Donna,
Oops, I forgot to ask. What is the one question that you asked me
that I failed to reply? Please ask again.
-----Original Message-----
From: Donna Jennings [mailto:firefly@islc.net]
Sent: Monday, June 15, 1998 8:47 PM
To: mol-cancer@lists.meds.com
Subject: [MOL] Re:BEN
<< File: ATT00184.html >> I have sent you allot of information in
regards to cancer and the type cancer
your daughter has and yet you have not responded to the one question I
had. It
appears that you come and go, come and go. I do not mean to offend
you in
anyway; but I had already sent you the information on where they are
studding
shark cartilage, all the trials, all the cancer sites; etc. John has
sent you
allot of information, and so has Marty. Stanford is excellent; but if
you want
to be double checking and that is very good, then go to oconolink and
some of
the other sites. Oconolink for a fee will do a diagnosis for you.
Everyone is
different and everyone reacts differently, since we are not in the
medical
field, we can only give opinions and that's just what they are
opinions,
period. We may suggest; but we can not endorse any product or
treatment. I
hope this has helped you.
John wrote:
> Dear Ben,
>
> The University of California system has a number of National Cancer
> Institute (NCI) supported Cancer Centers. There are three cancer
centers
> at La Jolla, two in LA, and one in Orange. Let me know the nearest
to
> you and I'll send you the details. They tend to be connected to a
> network of cancer specialists and up to date on all the latest
> treatments. It also would be advisable to get second and even
third
> opinions. One of the keys to success in this is having trust and
faith
> in the primary oncologist.
>
> You can also speak with a representative of the NCI by calling
> 1-800-4CANCER. Be sure to have them mail you information about
cancer in
> general, diet, and information concerning Synovial sarcoma. They
will
> also advise you about the latest treatments and clinical trials for
this
> cancer, where they are being offered and how to contact them. The
NCI
> also has a web site that is worth the visit at
http://rex.nci.nih.gov
>
> Ben, no one likes to see their child with this disease. Just know
that
> it is not the same as it was years ago. Treatments have improved as
has
> the survival rate. I am a living example as are many others on this
web
> site. The important thing is to have hope, keep faith with your God
and
> learn as much as you can about Mevis' cancer so that you will be in
a
> better position to be her advocate. Let me know when you are ready
for
> more places to go for information...I do not wish to overwelm you
right
> now.
>
> You and your daughter will be in my prayers.
> God Bless.
> John
>
> Ben Lee wrote:
> >
> > Thanks John. Yes, there is someone with cancer that I wish to
help.
> > It is my daughter, Mavis (age 31). She has liver cancer,
synovial
> > sarcoma. About 10 days ago, she had 40% of her liver removed.
Now
> > she is recovering. Waiting to see an oncologist next week. The
> > surgeon thought chemo is needed. We are under the care of
Stanford
> > Health Services, associated with Stanford University. Any help
would
> > be appreciated.
> >
>
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