Dear Gina,
GSwan82375@aol.com
Yes, I know you will have many suggestions from many here. these are
just some more for you to consider.
If it were us, and we have, we went to the five top hospitals in this
country for help directly: MD Anderson in Texas, sloan Kettering In New
York, Mayo Clinic in Minnesota, UCLA, USC AND STANFORD UNIVERSITY in
California. All 5 are the tops on the National Cancer Institutes list of
comprehensive hospitals. Go direct, talk to the doctors who are
administering genetics or immune therapy. They may be administering
treatment that is protocal and not clinical trials. Lots of calling to
do, but you may not be disappointed. We went and were impressed.
Also you may wish to contact Dr. Hans Nieper in Hanover Germany as he
has great success rate in oncology and Dr. Rob Nagourney who is a well
known technician oncologist in Long Beach with this protocal FDA
approved treatments. They are all exceptional and brilliant physicians.
If you wish phone numbers, I believe I can get them for you.
God Bless
marty
GSwan82375 wrote:
>
> To Marty and others,
>
> I am very interested in all the latest information you can give on Gene
> Therapy. My dad is very interested in this clinical trial and should be
> hearing something today from the clinic that does this in New Orleans. All
> he's waiting for is the ok. He was supposed to hear from them last week but
> for some strange reason they never return his calls. The doctors there are
> supposed to go over his medical records today and get back with my dad.
> So.... Now all we can do is wait. If dad doesn't hear anything by Monday he
> is going to start chemo. New Orleans was his last chance at Gene therapy for
> mesothelioma. We are finding out the hard way that it is not easy getting
> into clinical trials and I am really surprised that they do not return phone
> calls especially to people who's lives are on the line. I just don't
> understand it. This is all such a big nightmare. I just don't know what else
> to do for dad. I have even called there myself and that is how I found out
> the doctors were not going to meet last Thursday to go over files of
> qualifying patience. I just hated telling my father. I could hear the
> sadness in his voice and the disappointment of knowing he had to wait another
> week. What else can we do? Does anyone have any suggestions? You all here
> have good ideas. Any help would be greatly appreciated.
> Thanks,
> Gina
> -
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