>Hi Lillian, How are you? I finally feel like things are starting to get
>into a routine. It's a demanding one, but at least it's a routine. The
>more I think about requesting messages and notes for Elise, the more I
>think it is a perfect gift. So I went to go find the mol line - and I
>can't! I have no idea how I originally found it and no idea what the
>address is...what's the address? Since I am anxious to get a request
>posted - would you mind doing it for me? Here's what I'd like to say:
>
>"To all my mol friends: It's been so long since I've had a chance to drop
>back in on the mol line. Things have been pretty crazy for me, but I have
>thought of you all so often. Lillian has been kind enough to keep me
>posted on all of you and what's been going on. My name is Jeanne, and my
>best friends daughter was diagnosed with ependymoma (brain stem) last
>October. She was 16 months old when she was diagnosed. She went through
>extensive surgery, with some serious side effects. A well planned course
>of chemo and bone marrow transplant, was quickly cut short after 2 months
>because the one tumor was so agrressive and quickly became 5 tumors spread
>throughout her brain. Options were dwindling, but courage and spirit were
>not. Elise's mom & dad (Dave and Sara) made the difficult decision to
>pursue a 6 week course of full brain radiation. In one so young, this type
>of radiation can have life altering side effects. But not seeing any other
>options, Elise went through this very difficult treatment.
>
>Over the last several months, everyone reached low points at one time or
>another. Everyone but Elise. No matter how bad a day it was or how
>terribly sick she was, she always found a reason to give us a smile at just
>the right time. And as much as the adults were supposed to be the ones
>providing the support, comfort and solace, this little girl always managed
>to give more than we gave her. Elise became everyones inspiration,
>everyones reason to search out one other doctor or medicine, everyones
>reason to some how hang in there. She did, and we did. it's not over yet,
>but she has taught us all so well - how the power of spirit, courage and
>positive attitude can make a difference.
>
> Elise will be turning 2 on June 16th. She continues to amaze the doctors-
>regaining her strength, learning to walk and talk again and most of all
>returning to her old self. Dave & Sara know how much support and guidance
>my mol friends have provided. I'd like to ask your help one more time.
>I'd really appreciate if some of you could take a few moments and send
>Elise, Dave and Sara a birthday greeting, a happy wish or an inspirational
>thought. Everyone on the mol line has one thing in common. Cancer has
>touched our lives in a cruel and unforgiving way. But the cancer can't
>take away the love and support that goes around here. Please send me your
>greeting for Elise at grebes111@aol.com. I'll print all these out and put
>them in a scrap book and make that Elise's birthday present. Your notes
>can be long, short, funny or whatever - tell them a little bit about
>yourself and how you've managed to get through your own difficult times. I
>think these notes will show Dave, Sara and Elise - that there really is a
>very caring world out there. And what could be more inpsirational than
>that. Thanks for taking the time to read this and everything you've done.
>I wish you all well and I'll keep you posted on "the present". "
>
>If this is too "sappy" (this must be my word for the week) than go ahead
>and change it or if you think it is too long. If you wouldn't mind not
>showing my other e-mail address (jmesick@delmar) I'd really appreciate it -
>everything should just go to my personal address grebes111@aol.com. Thanks
>for helping me out Lillian, as always I appreciate it. Take care......
>
>Jeanne
>
>
>
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