Sally, you are right my friend. I felt it in my heart as I read your
words... They are used to me doing anything and everything with no fear and
without needing help.... So this is just what they have come to expect from
me..... Have you always been so capable? I have a feeling that you have
and that is why you are able to pick up on that so easily....
I hope that the weekend went smoothly for Charlie and he is building his
strength.. I would love to ask if you went out for awhile and took a break,
but I already know the answer to that...don't I?
Love you Sally and love to Charlie... Carla
-----Original Message-----
From: Charlie T <charliet@flash.net>
To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
Date: Monday, April 27, 1998 1:36 AM
Subject: [MOL] ReCarla from Sally
>Just a quick observation to tag on to the end of your email below to
>Jean...I think once we get any older than about 30, we begin to resent
>change. A way to deal with change is to compartmentalize. You had a very
>successful career in a male oriented field (translate:strong woman) so
>people expect you to face this journey with the same strength and aplomb!
>Not that I am excusing your family's behavior, but I see, especially in
your
>case, where they expect the competent and capable woman to handle another
>boulder in the road. So just keep being strong!
>
>Sally
>-----Original Message-----
>From: ken naehring <blessu@worldnet.att.net>
>To: mol-cancer <mol-cancer@lists.meds.com>
>Date: Sunday, April 26, 1998 11:40 PM
>Subject: Re: [MOL] Jean
>
>
>>Jean, please don't let the cancering journey that Annie is on and the
>>situation with your mom become so stressful for you. Funny, but I have
>>found with my own family; from my husband to my parents to my brother that
>>basically I am on my own. That is not all bad because then I don't have
to
>>deal with their reactions to each thing I am going through, plus they
>aren't
>>getting stressed over all this. I think they were quick to
>compartmentalize
>>my cancering journey and now they don't ask much and don't respond to
>much..
>>In fact there are times I ask for them to remember that I am on the
>>cancering journey and not 100% as I was prior to last November... and
still
>>they don't seem to...!!!
>>
>>For the most part I am really glad of that and I try to keep our lives
>>pretty normal to their eyes. The mol forum is where I share my true
>>feelings and let out the details of what I am dealing with at the time.
>>Like tomorrow I get my PET scan and my husband knows that and knows I
won't
>>be home until about the time he is getting home from work and he knows
that
>>the dog can't be in my lap tomorrow night... Other than that I don't
think
>>he actually understands what all of this 6 month testing has been about.
>He
>>also doesn't understand the intensity of the headaches I have been having
>>for the past 3-4 weeks...
>>
>>You are so needed to be able to help Annie and your mom, but you also have
>>your own family and life to enjoy and we sure don't want to see you come
>>down with a toxic stress type disease. So my friend...find peace in the
>>journey that you are on with loved ones, but don't fill with toxic
>>stress.... God Bless you and Annie and your mom... Love, Carla
>>
>>P.S. If you come up with a journal guide online...let me know... sounds
>>like a good site to have and find...
>>-----Original Message-----
>>From: Jean Johnson <tiggeroo@tidalwave.net>
>>To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
>>Date: Sunday, April 26, 1998 8:42 PM
>>Subject: Re: [MOL] Onc-Chemo-3
>>
>>
>>>Hi Ruth,
>>>
>>>I'm the one whose:
>>>sister-in-law, Annie, is undergoing chemo for endometrial cancer, stage
>>>3a
>>>mother-in-law just had second biopsy (came out clear) after 1st biopsy
>>>showed a lump
>>>mother is going for second biopsy on May 9th because doctors found two
>>>large masses in her breast during 1st biopsy & ultrasound
>>>whose working hard on learning a better way to deal with stress like the
>>>above (before I end up sick, too)
>>>I know, it can really get confusing sometimes.
>>>-Jean
>>>
>>>Ruth Devine wrote:
>>>>
>>>> Hi Jean,
>>>> Thanks for caring! I'm getting my Jeans mixed up. Is it your Mom that
>>>> going for biopsy?
>>>> Ruth
>>>>
>>>> ----------
>>>> >
>>>> > Ruth,
>>>> > I'm sorry to hear your chemo didn't go any better and that you had so
>>>> > many blunders from that nurse. I'm glad you're feeling better now,
>>>> > though.
>>>> >
>>>> > -Jean
>>>> > On Sat, 25 Apr 98 09:54:48 PDT "Ruth Devine" <drruth@onlinemac.com>
>>>> > writes:
>>>> > >Hi Bob,
>>>> > >We must be on the schedule for chemo and sounds like same treatment.
>>>> > >I had
>>>> > >my 3rd treatment on the 14th. Sorry I haven't kept up with
reponses,
>>>> > >but
>>>> > >have tried to read mail and saved to go back and reply. I lost at
>>>> > >least
>>>> > >one days messages though.
>>>> > >This last treatment seemed to take more out of me for about a week.
>>>> > >Started feeling better on Wednesday, then came back stronger than I
>>>> > >have
>>>> > >before. There really wasn't anything in particular more severe,
>>>> > >probably
>>>> > >more fatique and a general yukky feeling.
>>>> > >I know you had questioned the protocol of administering the
different
>>>> > >drugs. I had to go to another office in another town of my onc for
>>>> > >this
>>>> > >treatment. Much bigger facility and as you had said "all the bells
>>>> > >and
>>>> > >whistles". The rooms were more private, however, with the biggest
>>>> > >seating
>>>> > >five, I think. My daughter was with me, so we took a private room
>>>> > >with a
>>>> > >comfy recliner, tv and vcr.
>>>> > >The nurse caring for me seemed to be making several blunders ( she
>was
>>>> > >very
>>>> > >busy, but no excuse). I always have a fear when the IV bag is
empty,
>>>> > >so I
>>>> > >started ringing when the bag was getting low. She didn't get there
>>>> > >and air
>>>> > >got in my IV line. She said she had a magical way the get rid of
it,
>>>> > >which
>>>> > >did not work.
>>>> > >She also told me she had a different way of mixing the taxol,
leaving
>>>> > >it
>>>> > >thicker and more sticky? The taxol was going too slow, so she would
>>>> > >open
>>>> > >the drip and it would cause severe pain in my arm. She ended up
>>>> > >putting
>>>> > >the IV in three different places.
>>>> > >She also forgot to give me one of the drugs, something that
>>>> > >counteracts the
>>>> > >side effects of the taxol, until almost the end. Instead of putting
>>>> > >it
>>>> > >through the drip, she injected it directly into the IV site.
>>>> > >I don't know if it was just all in my head that her blunders caused
>me
>>>> > >to
>>>> > >feel worse, or if she did not follow proper protocol which did
affect
>>>> > >my
>>>> > >reactions.
>>>> > >Next time I will take my wellness journal to document each event.
>The
>>>> > >doctor was too busy to see me, so I will have many questions for him
>>>> > >on my
>>>> > >next visit.
>>>> > >I am just thankful that I feel so much better now. Hope you are
>>>> > >feeling
>>>> > >just as well and sorry to hear of your other family medical
problems.
>>>> > >Stay in touch!
>>>> > >Ruth
>>>> > >
>>>> > >----------
>>>> > >> Good morning all,
>>>> > >> Yesterday I had my three week appt with my oncologist as well
>>>> > >as my
>>>> > >three
>>>> > >> week treatment of Taxol-Carboplatin. I am happy to announce that
>>>> > >everything is
>>>> > >> fine.
>>>> > >>
>>>> > >> This was to have had the potential of being my last
>treatment.
>>>> > >Initially
>>>> > >> we would
>>>> > >> be making appts for MRIs,etc. But because of the nature of my
>>>> > >> cancer,(metastized
>>>> > >> adenocarcinoma of unknown primary with malignant pleural
effussion)
>>>> > >My Onc
>>>> > >> elected to schedual me for two more post graduate treatments of
>>>> > >Chemo. He
>>>> > >felt
>>>> > >> the Chemo had a definite positive effect on the fluid
>>>> > >build-up,(there has
>>>> > >been
>>>> > >> no
>>>> > >> fluid build-up.yeaaaaaaa!!!!)
>>>> > >>
>>>> > >> He also felt that at this time the MRI to check the 1 cm
>>>> > >metasticy
>>>> > >at
>>>> > >> the base
>>>> > >> of my spine, might also be a waste of time.I agreed. So we will
>>>> > >stick
>>>> > >with the
>>>> > >> chemo
>>>> > >> for two more sessions and take it from there.
>>>> > >>
>>>> > >> I am administered my chemo in the friendly confines of my
>>>> > >> ONCs,facility.
>>>> > >> This room has all the bells and whistles and confortablly
>>>> > >accomodates
>>>> > >> approxmately
>>>> > >> ten customers.
>>>> > >>
>>>> > >> Myself being the junior member at yesterdays sitting, I
do
>>>> > >have
>>>> > >one
>>>> > >> question
>>>> > >> to ask. Is it normal for me with my limited dance-card punchings
to
>>>> > >have
>>>> > >had
>>>> > >> full
>>>> > >> control of the television remote control?? Keep in mind ,that
>before
>>>> > >you
>>>> > >reply
>>>> > >> , I had
>>>> > >> control of the remote for the full 5 hours!!!!
>>>> > >>
>>>> > >> Now I ask you , Is this Guiness Record material???
>>>> > >>
>>>> > >> My thoughts and prayers are with you all for health and
>>>> > >happiness.
>>>> > >>
>>>> > >>
>>>> > >> Nice Talking With You
>>>> > >> Bob g
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> > >>
>>>> >
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