Just a quick observation to tag on to the end of your email below to
Jean...I think once we get any older than about 30, we begin to resent
change. A way to deal with change is to compartmentalize. You had a very
successful career in a male oriented field (translate:strong woman) so
people expect you to face this journey with the same strength and aplomb!
Not that I am excusing your family's behavior, but I see, especially in your
case, where they expect the competent and capable woman to handle another
boulder in the road. So just keep being strong!
Sally
-----Original Message-----
From: ken naehring <blessu@worldnet.att.net>
To: mol-cancer <mol-cancer@lists.meds.com>
Date: Sunday, April 26, 1998 11:40 PM
Subject: Re: [MOL] Jean
>Jean, please don't let the cancering journey that Annie is on and the
>situation with your mom become so stressful for you. Funny, but I have
>found with my own family; from my husband to my parents to my brother that
>basically I am on my own. That is not all bad because then I don't have to
>deal with their reactions to each thing I am going through, plus they
aren't
>getting stressed over all this. I think they were quick to
compartmentalize
>my cancering journey and now they don't ask much and don't respond to
much..
>In fact there are times I ask for them to remember that I am on the
>cancering journey and not 100% as I was prior to last November... and still
>they don't seem to...!!!
>
>For the most part I am really glad of that and I try to keep our lives
>pretty normal to their eyes. The mol forum is where I share my true
>feelings and let out the details of what I am dealing with at the time.
>Like tomorrow I get my PET scan and my husband knows that and knows I won't
>be home until about the time he is getting home from work and he knows that
>the dog can't be in my lap tomorrow night... Other than that I don't think
>he actually understands what all of this 6 month testing has been about.
He
>also doesn't understand the intensity of the headaches I have been having
>for the past 3-4 weeks...
>
>You are so needed to be able to help Annie and your mom, but you also have
>your own family and life to enjoy and we sure don't want to see you come
>down with a toxic stress type disease. So my friend...find peace in the
>journey that you are on with loved ones, but don't fill with toxic
>stress.... God Bless you and Annie and your mom... Love, Carla
>
>P.S. If you come up with a journal guide online...let me know... sounds
>like a good site to have and find...
>-----Original Message-----
>From: Jean Johnson <tiggeroo@tidalwave.net>
>To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
>Date: Sunday, April 26, 1998 8:42 PM
>Subject: Re: [MOL] Onc-Chemo-3
>
>
>>Hi Ruth,
>>
>>I'm the one whose:
>>sister-in-law, Annie, is undergoing chemo for endometrial cancer, stage
>>3a
>>mother-in-law just had second biopsy (came out clear) after 1st biopsy
>>showed a lump
>>mother is going for second biopsy on May 9th because doctors found two
>>large masses in her breast during 1st biopsy & ultrasound
>>whose working hard on learning a better way to deal with stress like the
>>above (before I end up sick, too)
>>I know, it can really get confusing sometimes.
>>-Jean
>>
>>Ruth Devine wrote:
>>>
>>> Hi Jean,
>>> Thanks for caring! I'm getting my Jeans mixed up. Is it your Mom that
>>> going for biopsy?
>>> Ruth
>>>
>>> ----------
>>> >
>>> > Ruth,
>>> > I'm sorry to hear your chemo didn't go any better and that you had so
>>> > many blunders from that nurse. I'm glad you're feeling better now,
>>> > though.
>>> >
>>> > -Jean
>>> > On Sat, 25 Apr 98 09:54:48 PDT "Ruth Devine" <drruth@onlinemac.com>
>>> > writes:
>>> > >Hi Bob,
>>> > >We must be on the schedule for chemo and sounds like same treatment.
>>> > >I had
>>> > >my 3rd treatment on the 14th. Sorry I haven't kept up with reponses,
>>> > >but
>>> > >have tried to read mail and saved to go back and reply. I lost at
>>> > >least
>>> > >one days messages though.
>>> > >This last treatment seemed to take more out of me for about a week.
>>> > >Started feeling better on Wednesday, then came back stronger than I
>>> > >have
>>> > >before. There really wasn't anything in particular more severe,
>>> > >probably
>>> > >more fatique and a general yukky feeling.
>>> > >I know you had questioned the protocol of administering the different
>>> > >drugs. I had to go to another office in another town of my onc for
>>> > >this
>>> > >treatment. Much bigger facility and as you had said "all the bells
>>> > >and
>>> > >whistles". The rooms were more private, however, with the biggest
>>> > >seating
>>> > >five, I think. My daughter was with me, so we took a private room
>>> > >with a
>>> > >comfy recliner, tv and vcr.
>>> > >The nurse caring for me seemed to be making several blunders ( she
was
>>> > >very
>>> > >busy, but no excuse). I always have a fear when the IV bag is empty,
>>> > >so I
>>> > >started ringing when the bag was getting low. She didn't get there
>>> > >and air
>>> > >got in my IV line. She said she had a magical way the get rid of it,
>>> > >which
>>> > >did not work.
>>> > >She also told me she had a different way of mixing the taxol, leaving
>>> > >it
>>> > >thicker and more sticky? The taxol was going too slow, so she would
>>> > >open
>>> > >the drip and it would cause severe pain in my arm. She ended up
>>> > >putting
>>> > >the IV in three different places.
>>> > >She also forgot to give me one of the drugs, something that
>>> > >counteracts the
>>> > >side effects of the taxol, until almost the end. Instead of putting
>>> > >it
>>> > >through the drip, she injected it directly into the IV site.
>>> > >I don't know if it was just all in my head that her blunders caused
me
>>> > >to
>>> > >feel worse, or if she did not follow proper protocol which did affect
>>> > >my
>>> > >reactions.
>>> > >Next time I will take my wellness journal to document each event.
The
>>> > >doctor was too busy to see me, so I will have many questions for him
>>> > >on my
>>> > >next visit.
>>> > >I am just thankful that I feel so much better now. Hope you are
>>> > >feeling
>>> > >just as well and sorry to hear of your other family medical problems.
>>> > >Stay in touch!
>>> > >Ruth
>>> > >
>>> > >----------
>>> > >> Good morning all,
>>> > >> Yesterday I had my three week appt with my oncologist as well
>>> > >as my
>>> > >three
>>> > >> week treatment of Taxol-Carboplatin. I am happy to announce that
>>> > >everything is
>>> > >> fine.
>>> > >>
>>> > >> This was to have had the potential of being my last
treatment.
>>> > >Initially
>>> > >> we would
>>> > >> be making appts for MRIs,etc. But because of the nature of my
>>> > >> cancer,(metastized
>>> > >> adenocarcinoma of unknown primary with malignant pleural effussion)
>>> > >My Onc
>>> > >> elected to schedual me for two more post graduate treatments of
>>> > >Chemo. He
>>> > >felt
>>> > >> the Chemo had a definite positive effect on the fluid
>>> > >build-up,(there has
>>> > >been
>>> > >> no
>>> > >> fluid build-up.yeaaaaaaa!!!!)
>>> > >>
>>> > >> He also felt that at this time the MRI to check the 1 cm
>>> > >metasticy
>>> > >at
>>> > >> the base
>>> > >> of my spine, might also be a waste of time.I agreed. So we will
>>> > >stick
>>> > >with the
>>> > >> chemo
>>> > >> for two more sessions and take it from there.
>>> > >>
>>> > >> I am administered my chemo in the friendly confines of my
>>> > >> ONCs,facility.
>>> > >> This room has all the bells and whistles and confortablly
>>> > >accomodates
>>> > >> approxmately
>>> > >> ten customers.
>>> > >>
>>> > >> Myself being the junior member at yesterdays sitting, I do
>>> > >have
>>> > >one
>>> > >> question
>>> > >> to ask. Is it normal for me with my limited dance-card punchings to
>>> > >have
>>> > >had
>>> > >> full
>>> > >> control of the television remote control?? Keep in mind ,that
before
>>> > >you
>>> > >reply
>>> > >> , I had
>>> > >> control of the remote for the full 5 hours!!!!
>>> > >>
>>> > >> Now I ask you , Is this Guiness Record material???
>>> > >>
>>> > >> My thoughts and prayers are with you all for health and
>>> > >happiness.
>>> > >>
>>> > >>
>>> > >> Nice Talking With You
>>> > >> Bob g
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
>>> > >>
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