Mike,
It sounds like your wife is a real fighter and that's what it will take for
her to beat this awful disease. As long as she has total faith in her
dr.(s) they should be able to help a lot. My husband has small cell lung
cancer. They did a CT scan right before his 4th session of chemo which
showed great reduction in the masses but they chose to go ahead and complete
six sessions of chemo (shoot them little buggers to hell, I think) which he
has now completed. He is scheduled for another CT scan tomorrow to see what
has happened since the last. His onc. (a fantastic woman from Johns
Hopkins) is hoping to keep him in remission for up to a year (per her, no
one has walked away from what he has permanently). Now with Marty's news on
the new drugs that may be coming our way, that may be enough time to
actually give him a cure!! He has metasticised into the lymphs and bone
marrow but I'm still looking at these new drugs as something that might get
us out of this battle with cancer permanently.
Your family sounds fantastic and very brave. This must be very hard on all
of you. If you're interested, I've got some Web sites for children whose
parents have cancer and would be happy to pass them on to you if you think
they might help.
God bless and please keep us up to date on what's happening!!
your friend
cindy
-----Original Message-----
From: Michael Donlin <"WPGATE::VAXES::MDONLIN"@is.ssd.k12.wa.us>
To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
Date: Monday, May 04, 1998 6:51 AM
Subject: [MOL] fibrosarcoma - Reply
>Hi,
>
>This is Mike Donlin. We got your reply to the first message I
>sent out a few days ago.
>Here's a down and dirty on my wife: She was diagnosed with a
>tumor in late Janusry of this year. After a couple of biopsies,
>it was pretty much determined that it was a synoviall sarcoma in
>her thorasic cavity - with a 6-7cm tumor sitting on top of her
>right lung. They used a lot of high tech words lke "rare",
>"hot", "agressive", etc....And talked lots of chemo an dpossible
>surgery - if the chemo worked.
>
>My wife is a fighter and the first thing she did was to form
>her "ealing Board" - a group of about 2 dozen friends who she
>thoght of as "healers" These people have been cooking,
>cleaning, spending the night with her in the oncology ward,
>running erands,....whatever it takes to help our family get
>through this all.
>
>In the meantime, she's completed 4 one-week sessions of
>adriomycin and ifasfomide - every third week. She's due for her
>5th session starting the Moday after Mother's Day.
>
>We also have a lot of people praying for her. She drinks her
>Noni every day. She had out oldest buzz her bald when a lot of
>her hair was falling out. She mets with her Healing Board
>regularly. She has a very positive attitude.
>
>She has not had a lot of really bad side effects from the
>chemo. There is nausea after about the 3rd or 4th day in the
>hospital and for a couple days afterwards. She is bald! And
>she tires more quickly than usual. But she's not hadthe mouth
>sores; she eats almost everything; she's not been too terribly
>sick with secondary infections (after a bad sinus infection
>after round 1). In short, the prayers, positive attitude, Noni,
>etc. are helping in their way as much as the chemo in its way.
>
>At this point, her tumor has shrunk a LOT! She was hoping that
>she'd not have to continue with the chemo, but the doc told her
>not to wus out now! So she'll go for #5...and probably have
>surgery not too long after.
>
>For this, you now know that we have 2 kids. Our oldest is 18, a
>star athlete and all around nice guy. Our daughter is a 1e4
>year old beauty. She's the one who is dong the research
>project. Her area of particlar interest is meds and other
>treatments which are not FDA approved, but which may be
>available in other parts of the world. We also have another
>child - a 4 year old boy. ( And a 91 year old grandma and a 6
>month old puppy.) (Timing is everything!)
>
>Interestingly enough, in the time since my wife was diagnosed,
>one of my daughters friends (age 15) was daignosed with a very
>rare liver cancer, another friend of ours has a very rare kidney
>cancer and my boss's boss has a rare form of leukemia. Cancer
>has become a way of life.
>
>I'm sure that you and my wife shared notes, you'd find a lot
>more commonalities than this short reply can give.
>Our best to you. Our son's football team had a slogan for this
>past fall's season: "Whatever it Takes." That's where we are at
>again. It's another "Whatever It Takes" situation.
>
>Aloha,
>
>Mike
>
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