[MOL] Re: [04611] Medicine On Line


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[MOL] Re:



Dear Susan,
 You wrote
 
 
---
 
>For all my brave talk, I am feeling lonely and sad and
>discouraged. There is that feeling, right under my sternum that
>feels cold, scared, hot, broken and hurt all at the same time,
>with every breath in and every breath out. 
 
Yes, I know.  Not being able to take a deep breath.  Fearing that life has changed so much that you will never take in a deep, satisfying, (naive, damn it), breath.
 
 My life will never be
>the same. 
 
I know-the caregivers think of this every waking moment, don't we?  We are gaining strength for what is ahead.  And this is true for everyone that Bob has touched.
 
My daughter's life will never be the same.
 
This is true- having just lost my mother prematurely (well, to me anyway!) I can say this is life-changing.  And sad, and tragic.  But nonetheless, the truth, and something to examine.
 
 Will my days
>ever seem normal again.  
 
Normal is a broad term-------happy, fulfilling, yes-someday
 
Will I ever be able to be around my
>friends the way I used to be around them.  
 
Probably not, but it does not mean that they are no longer your friends or that you cannot be around them.. Life is all about change and adapting to what it hurls at us.  With a diagnosis of cancer the whole family's life is never the same.
 
 
 
 
Will I ever be able to
>answer questions regarding our welfare without wanting to cry. 
 
Yes, because you have shown here you are a survivor. 
 
 I
>will never again have my companion with me in the innocence and
>ignorance of health.  
 
Beautifully put, but not necessarily a negative.  This can forge a bond between you others envy. A challenge can give you  something other only wish for.
 
And we will never again assume a future like
>we once did. Will I ever be able to look into my families eyes
>without pain and fear and future grief and loneliness clouding
>them over. 
 
It does not seem like it now, but, yes, when the time comes (and it may be a LONG time away)you will get through this pain.  I feel it gives way to a deep peace that only working through the pain can give.  I know that is no consolation, now, but it is a promise.
 
 Will a beautiful day ever be beautiful for me again,
>without the contamination of Bob's cancer coloring it a strange,
>colorless, temperatureless  gray. Sorta like slow frames in a
>dingy, soundless, old, out of time black and white gone speckly,
>shuddering film. 
 
Yes, it is there in all it's splendor waiting for you, Bob, and your children.
 
 
 How can I be a happy good mom. I know it sounds
>like I think Bob will die. And I know none of us know the day of
>our death. But cancer brings it home in a way that is what I now
>deal with, and other potential  realities do not affect how I
>perceive this one.  
 
Yes, I think eneyone on this board relates to this sentiment.  Being a young and early traveler on the path, I bow to my elders.
 
And it sounds like I am not appreciating the
>moment I have now with Bob. Well, I don't. It is not a happy
>time. It is bittersweet and poignant. 
 
Is bittersweet and poignant not without some very honest and revealing moments you may never have otherwise?
 
 And I fear not appreciating
>it in comparison to not even having what I have now in the
>future. I do not like my life. And I have a commitment that
>forces me to stay here. Why keep trying. I won't apologize for
>writing this, MOL tells me they are there for me no matter what.
>This is one of the whats. (And now I want to say I'm sorry for
>being a downer.) 
 
Don't ever apologize for venting.  We should ask Bob C. to put that in our bylaws!!  Keep trying for YOURSELF, Bob and your family.
 
 
I love you and am there for you
 
Sally
 
PS Please don't take this as arguementative...going thru your letter point by point.  I am just trying to look at all the angles of a very difficult situation and give you some of my deepest thoughts