>-----Original Message-----
>From: Charlie T <charliet@flash.net>
>To: MOL Mailing List <mol-cancer@lists.meds.com>
>Date: Sunday, March 29, 1998 10:37 AM
>Subject: [MOL] Update on Charlie
>
>
>:
>:I wish I could report that he is feeling better, but the mucosis
>is getting
>:worse and worse. If it begins to block his airway we are to go
>to the ER.
>:He wakes up choking, but is able to (so far) clear it by pulling
>it out of
>:mouth with tissue. Without saliva he can't spit it out the way
>you or I
>:would.
>: I should buy stock in Kimberly Clark- he uses at least 3
>:boxes a day. And it's so sad to hear him gag over and over.
>Sometimes he
>:throws up, so then we're back to the old dilemma of weight
>gain/loss.
>:
>:They sure know how to kill cancer, it seems, but nothing they
>have suggested
>:or prescribed has helped this mucosis a bit. We are just told
>to live with
>:it. Charlie is getting very discouraged and he told me he's
>beginning to
>:feel depressed mentally and physically. I really feel sorry for
>him. I
>:suggested a support group other than the online one. The
>problem is, I
>:think he simply does not have the energy to get dressed and go
>to a meeting.
>:
>:We will be going in for a CT scan April 1 (only Charlie would
>have a CT scan
>:April Fool's Day!!), meet w/ a surgeon to hear what she thinks
>of the scan
>:on April 2, and then an appt w/ med onco April 3. By then, I
>guess we'll
>:have a pretty good idea of how this protocol worked.
>:
>:Will let everyone know when we hear an interpretation of the CT
>scan
>:
>:Love,
>:
>:Sally
>:
>
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