Dear Carla:
Warm fuzzies are always nice to receive. I want you to know how good it
feels to share the warmth with others. Darlene
At 08:02 PM 3/28/98 -0500, you wrote:
>Darlene, there are times when I open a message as I just did your and feel
>the biggest spread of warmth pass through my body and a smile for on my lips
>and in my eyes... Thank you for bringing me one of those moments.
>
>I too wish that I had alot more information about lung cancer as you
>mentioned in your post to Cheryl and I. Then again at this point I would
>rather focus on being positive and praying that there will be treatments
>found that will help until cures are found. I believe Darlene that in
>beauty there is a peace for your spirit and out of a moment of peace there
>is an increase in courage and strength.
>
>When I was young I took ballet, toe, jazz, tap and some other forms of
>dance. I now have dreams about the way that my body, mind and soul felt
>when I danced and what a beautiful moment that is for me. I am thinking
>about installing mirrors and a ballet bar and sound system in my house for
>ballet stretches, toning and most importantly for the beauty of the time
>spent doing it. Heaven knows I will have to overlook the body in the pink
>TuTu! LOL! I will just have to close my eyes until l get used to an
>elephant ballerina! But that is one of the wonderful things that cancer has
>done, it has shown me how to look deeper inside where I know a beautiful
>woman lives in my heart and soul...
>
>May God Bless you and thanks for caring and sharing... Carla
>-----Original Message-----
>From: DARLENE NEILSEN <wren@goldrush.com>
>To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
>Date: Saturday, March 28, 1998 7:40 PM
>Subject: Re: [MOL] To Sylvia
>
>
>>Dear Sylvia
>>
>>You are truly a wonderful person. My heart goes out to you and I wish to
>>support you spiritually in helping Lizabeth. When news is bad we tend to
>>believe that all is bad. That is just not so. Try to focus her on what
>she
>>has now like a wonderful caregiver as you. Interest her in things or
>>hobbies she has done in the past. Not necessarily physically but show her
>>something beautiful you have or someone else has done. She needs to see
>>beauty, feel beauty, think beauty.
>>Then she will begin to feel the love that surrounds her but the ugliness of
>>cancer has blotted that out. That is why you need to change how she feels.
>>It will also make you feel better. Darlene
>>
>>
>>>Dear Sylvia,
>>>
>>>I am familiar with the conventional treatments that you describe
>>>especially cisplatin. This treatment has been in existence for some time
>>>and has been proven to be very successful in many or most cases and
>>>there is no reason to believe that it will not be so in Lizabeths case.
>>>
>>>As for the boosters she is on, she is probably on blood boosters to help
>>>keep her blood counts up after her chemotherapy treatments which is
>>>typical protocal after conventional treatment for most.
>>>
>>>If Lizabeth is crying more than the normal or if this is a continuous
>>>trait then I would suggest she and the ones that surround her that are
>>>bereaving need to address that these emotions have to be overcome. That
>>>is not to say some crying is not necessary, but in order to start a
>>>wellness program, the survivor and the caregivers that surround her need
>>>to have a positive attitude. Even the most rarest of cancers, and I
>>>speak from direct experience as Barbs was very rare to the point of 2%,
>>>that cancer can be beaten. It starts with an attitude to ride out the
>>>negative emotions, and one of those means are to begin reading those
>>>books that I have described in other messages here, that bring very
>>>positive emotions and feelings that she and you together can be
>>>determined to beat this cancer. I know you are that is why you are here.
>>>The other that I would recommend, I mean a suggestions, is to seek a
>>>good psychiatrist or psychoneurroimmunoligist on staff that will show
>>>her how to meditate and utilize guided imagery and understand where her
>>>disease is so that the ability of the mind can help in overcoming or
>>>destroying the areas of disease. it all starts with negative emotions,
>>>then at some point we need to address and then begin positive attitudes
>>>with positive beliefs and emotions so that we can support whatever the
>>>chemotherapy is trying to do. We can't just let the chemo do its job
>>>without believing that that we can't help it. The chemo is a friend not
>>>an enemy and we have to address that belief that the chemo is there to
>>>destry cells and not cause us more illness. yes, chemo at some point
>>>creates side effects, but the intensity of the chemo also destroys
>>>cancer cells. Those side effects in time, some more quickly than others,
>>>will subside, the ends justifies the means by the treatment. Then in
>>>time we need to get her into a good support group and continue reading
>>>the positive books and then comes nutrition and exercise, and
>>>spirituality..All those come in time, with your good help and God
>>>willing ours. you are a great caregiver Sylvia...pls continue what you
>>>do..Lizabeth will be fine, God willing
>>>
>>>God Bless and hope this comforts somewhat. Just know we are here for you
>>>and will continue to support.
>>>
>>>Your very humble friend
>>>marty
>>>
>>>
>>>
>>>Sylvia Boehme wrote:
>>>>
>>>> Martin Auslander wrote:
>>>> >
>>>> > Dear Sylvia,
>>>> >
>>>> > If you dont mind, I will do some research on the internet and pass on
>>>> >
>>>> > much information that I receive to you. I am certain there will be
>more
>>>> >
>>>> > friends here that will help as well. Pls tell Lizabeth, help is on the
>>>> >
>>>> > way. By the way, would you remind me what treatment is she on and will
>>>> >
>>>> > they change now?
>>>> >
>>>> > God Bless
>>>> >
>>>> > your friend
>>>> >
>>>> > marty
>>>> >
>>>> > Sylvia Boehme wrote:
>>>> >
>>>> > >
>>>> >
>>>> > > Subject: Lizabeth Update
>>>> >
>>>> > > Date: Mon, 23 Mar 1998 12:13:17 -0600
>>>> >
>>>> > > From: Sylvia Lynn Boehme <sboehme@hondo.k12.tx.us>
>>>> >
>>>> > > Organization: Hondo ISD
>>>> >
>>>> > > To: mol-cabcer@lists.meds.com
>>>> >
>>>> > >
>>>> >
>>>> > > Dear All,
>>>> >
>>>> > > I just got back from my week with my son and came home to very poor
>>>> >
>>>> > > news. I haven't been to see Lizabeth yet, but received a phone call
>>>> >
>>>> > > from one of our mutual friends...the CT news was not good.
>>>> >
>>>> > >
>>>> >
>>>> > > Evidently Lizabeth's tumors have grown and there are even more spots
>on
>>>> >
>>>> > > her lungs than there were when she first had the test in December.
>>>> >
>>>> > >
>>>> >
>>>> > > For all of you newcomers to MOL, Lizabeth is a 50 year old
>(non-smoker)
>>>> >
>>>> > > diagnosed with Adrenalcortical Carcinoma...a real bad dude! If any
>of
>>>> >
>>>> > > you newcomers have any additional information on this type of C,
>please
>>>> >
>>>> > > let me hear from you so that I may pass this along to Lizabeth.
>>>> >
>>>> > >
>>>> >
>>>> > > I will see her tomorrow night and will let you all know how she is
>>>> >
>>>> > > doing.Please keep her in your prayers.
>>>> >
>>>> > > Lizabeth's friend-sylvia
>>>>
>>>> Dearest Marty,
>>>>
>>>> I still haven't gotten to see her personally...her husband called me
>>>> last night and said that she didn't want to see anybody and that he was
>>>> really worried about her...I am probably going to just go over to her
>>>> house and grab her and hold her and let her cry for a little
>>>> while...then we will get down to business.
>>>>
>>>> The chemo she was on included cisplacin (is that correct) and another
>>>> drug "mitotane or midotane" (I have all of these written down at home,
>>>> but I'm at school. Anyway she also goes in for "boosters". I don't
>>>> know what (if any) the plans are for changes.
>>>>
>>>> Thanks so much for your caring and your research. I have found so very
>>>> little regarding this horrible type of cancer (not that they all aren't
>>>> horrible). Evidently there are few (if any) clinical trials going on
>>>> because it is so rare. ANYTHING you find will be wonderful.
>>>>
>>>> Keeping you and your lovely wife always in my heart.
>>>> Lizabeth's friend - sylvia
>>>>
>>>> -
>>>>
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>>BOB & DARLENE
>>
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