Darlene, there are times when I open a message as I just did your and feel
the biggest spread of warmth pass through my body and a smile for on my lips
and in my eyes... Thank you for bringing me one of those moments.
I too wish that I had alot more information about lung cancer as you
mentioned in your post to Cheryl and I. Then again at this point I would
rather focus on being positive and praying that there will be treatments
found that will help until cures are found. I believe Darlene that in
beauty there is a peace for your spirit and out of a moment of peace there
is an increase in courage and strength.
When I was young I took ballet, toe, jazz, tap and some other forms of
dance. I now have dreams about the way that my body, mind and soul felt
when I danced and what a beautiful moment that is for me. I am thinking
about installing mirrors and a ballet bar and sound system in my house for
ballet stretches, toning and most importantly for the beauty of the time
spent doing it. Heaven knows I will have to overlook the body in the pink
TuTu! LOL! I will just have to close my eyes until l get used to an
elephant ballerina! But that is one of the wonderful things that cancer has
done, it has shown me how to look deeper inside where I know a beautiful
woman lives in my heart and soul...
May God Bless you and thanks for caring and sharing... Carla
-----Original Message-----
From: DARLENE NEILSEN <wren@goldrush.com>
To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
Date: Saturday, March 28, 1998 7:40 PM
Subject: Re: [MOL] To Sylvia
>Dear Sylvia
>
>You are truly a wonderful person. My heart goes out to you and I wish to
>support you spiritually in helping Lizabeth. When news is bad we tend to
>believe that all is bad. That is just not so. Try to focus her on what
she
>has now like a wonderful caregiver as you. Interest her in things or
>hobbies she has done in the past. Not necessarily physically but show her
>something beautiful you have or someone else has done. She needs to see
>beauty, feel beauty, think beauty.
>Then she will begin to feel the love that surrounds her but the ugliness of
>cancer has blotted that out. That is why you need to change how she feels.
>It will also make you feel better. Darlene
>
>
>>Dear Sylvia,
>>
>>I am familiar with the conventional treatments that you describe
>>especially cisplatin. This treatment has been in existence for some time
>>and has been proven to be very successful in many or most cases and
>>there is no reason to believe that it will not be so in Lizabeths case.
>>
>>As for the boosters she is on, she is probably on blood boosters to help
>>keep her blood counts up after her chemotherapy treatments which is
>>typical protocal after conventional treatment for most.
>>
>>If Lizabeth is crying more than the normal or if this is a continuous
>>trait then I would suggest she and the ones that surround her that are
>>bereaving need to address that these emotions have to be overcome. That
>>is not to say some crying is not necessary, but in order to start a
>>wellness program, the survivor and the caregivers that surround her need
>>to have a positive attitude. Even the most rarest of cancers, and I
>>speak from direct experience as Barbs was very rare to the point of 2%,
>>that cancer can be beaten. It starts with an attitude to ride out the
>>negative emotions, and one of those means are to begin reading those
>>books that I have described in other messages here, that bring very
>>positive emotions and feelings that she and you together can be
>>determined to beat this cancer. I know you are that is why you are here.
>>The other that I would recommend, I mean a suggestions, is to seek a
>>good psychiatrist or psychoneurroimmunoligist on staff that will show
>>her how to meditate and utilize guided imagery and understand where her
>>disease is so that the ability of the mind can help in overcoming or
>>destroying the areas of disease. it all starts with negative emotions,
>>then at some point we need to address and then begin positive attitudes
>>with positive beliefs and emotions so that we can support whatever the
>>chemotherapy is trying to do. We can't just let the chemo do its job
>>without believing that that we can't help it. The chemo is a friend not
>>an enemy and we have to address that belief that the chemo is there to
>>destry cells and not cause us more illness. yes, chemo at some point
>>creates side effects, but the intensity of the chemo also destroys
>>cancer cells. Those side effects in time, some more quickly than others,
>>will subside, the ends justifies the means by the treatment. Then in
>>time we need to get her into a good support group and continue reading
>>the positive books and then comes nutrition and exercise, and
>>spirituality..All those come in time, with your good help and God
>>willing ours. you are a great caregiver Sylvia...pls continue what you
>>do..Lizabeth will be fine, God willing
>>
>>God Bless and hope this comforts somewhat. Just know we are here for you
>>and will continue to support.
>>
>>Your very humble friend
>>marty
>>
>>
>>
>>Sylvia Boehme wrote:
>>>
>>> Martin Auslander wrote:
>>> >
>>> > Dear Sylvia,
>>> >
>>> > If you dont mind, I will do some research on the internet and pass on
>>> >
>>> > much information that I receive to you. I am certain there will be
more
>>> >
>>> > friends here that will help as well. Pls tell Lizabeth, help is on the
>>> >
>>> > way. By the way, would you remind me what treatment is she on and will
>>> >
>>> > they change now?
>>> >
>>> > God Bless
>>> >
>>> > your friend
>>> >
>>> > marty
>>> >
>>> > Sylvia Boehme wrote:
>>> >
>>> > >
>>> >
>>> > > Subject: Lizabeth Update
>>> >
>>> > > Date: Mon, 23 Mar 1998 12:13:17 -0600
>>> >
>>> > > From: Sylvia Lynn Boehme <sboehme@hondo.k12.tx.us>
>>> >
>>> > > Organization: Hondo ISD
>>> >
>>> > > To: mol-cabcer@lists.meds.com
>>> >
>>> > >
>>> >
>>> > > Dear All,
>>> >
>>> > > I just got back from my week with my son and came home to very poor
>>> >
>>> > > news. I haven't been to see Lizabeth yet, but received a phone call
>>> >
>>> > > from one of our mutual friends...the CT news was not good.
>>> >
>>> > >
>>> >
>>> > > Evidently Lizabeth's tumors have grown and there are even more spots
on
>>> >
>>> > > her lungs than there were when she first had the test in December.
>>> >
>>> > >
>>> >
>>> > > For all of you newcomers to MOL, Lizabeth is a 50 year old
(non-smoker)
>>> >
>>> > > diagnosed with Adrenalcortical Carcinoma...a real bad dude! If any
of
>>> >
>>> > > you newcomers have any additional information on this type of C,
please
>>> >
>>> > > let me hear from you so that I may pass this along to Lizabeth.
>>> >
>>> > >
>>> >
>>> > > I will see her tomorrow night and will let you all know how she is
>>> >
>>> > > doing.Please keep her in your prayers.
>>> >
>>> > > Lizabeth's friend-sylvia
>>>
>>> Dearest Marty,
>>>
>>> I still haven't gotten to see her personally...her husband called me
>>> last night and said that she didn't want to see anybody and that he was
>>> really worried about her...I am probably going to just go over to her
>>> house and grab her and hold her and let her cry for a little
>>> while...then we will get down to business.
>>>
>>> The chemo she was on included cisplacin (is that correct) and another
>>> drug "mitotane or midotane" (I have all of these written down at home,
>>> but I'm at school. Anyway she also goes in for "boosters". I don't
>>> know what (if any) the plans are for changes.
>>>
>>> Thanks so much for your caring and your research. I have found so very
>>> little regarding this horrible type of cancer (not that they all aren't
>>> horrible). Evidently there are few (if any) clinical trials going on
>>> because it is so rare. ANYTHING you find will be wonderful.
>>>
>>> Keeping you and your lovely wife always in my heart.
>>> Lizabeth's friend - sylvia
>>>
>>> -
>>>
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>BOB & DARLENE
>
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