Re: [MOL] To Sylvia [04259] Medicine On Line


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Re: [MOL] To Sylvia



Dear Sylvia

You are truly a wonderful person. My heart goes out to you and I wish to
support you spiritually in helping Lizabeth.  When news is bad we tend to
believe that all is bad.  That is just not so.  Try to focus her on what she
has now like a wonderful caregiver as you.  Interest her in things or
hobbies she has done in the past.  Not necessarily physically but show her
something beautiful you have or someone else has done.  She needs to see
beauty, feel beauty, think beauty.
Then she will begin to feel the love that surrounds her but the ugliness of
cancer has blotted that out.  That is why you need to change how she feels.
It will also make you feel better.   Darlene


>Dear Sylvia,
>
>I am familiar with the conventional treatments that you describe
>especially cisplatin. This treatment has been in existence for some time
>and has been proven to be very successful in many or most cases and
>there is no reason to believe that it will not be so in Lizabeths case.
>
>As for the boosters she is on, she is probably on blood boosters to help
>keep her blood counts up after her chemotherapy treatments which is
>typical protocal after conventional treatment for most.
>
>If Lizabeth is crying  more than the normal or if this is a continuous
>trait then I would suggest she and the ones that surround her that are
>bereaving need to address that these emotions have to be overcome. That
>is not to say some crying is not necessary, but in order to start a
>wellness program, the survivor and the caregivers that surround her need
>to have a positive attitude. Even the most rarest of cancers, and I
>speak from direct experience as Barbs was very rare to the point of 2%,
>that cancer can be beaten. It starts with an attitude to ride out the
>negative emotions, and one of those means are to begin reading those
>books that I have described in other messages here, that bring very
>positive emotions and feelings that she and you together can be
>determined to beat this cancer. I know you are that is why you are here.
>The other that I would recommend, I mean a suggestions, is to seek a
>good psychiatrist or psychoneurroimmunoligist on staff that will show
>her how to meditate and utilize guided imagery and understand where her
>disease is so that the ability of the mind can help in overcoming or
>destroying the areas of disease. it all starts with negative emotions,
>then at some point we need to address and then begin positive attitudes
>with positive beliefs and emotions so that we can support whatever the
>chemotherapy is trying to do. We can't just let the chemo do its job
>without believing that that we can't help it. The chemo is a friend not
>an enemy and we have to address that belief that the chemo is there to
>destry cells and not cause us more illness. yes, chemo at some point
>creates side effects, but the intensity of the chemo also destroys
>cancer cells. Those side effects in time, some more quickly than others,
>will subside, the ends justifies the means by the treatment. Then in
>time we need to get her into a good support group and continue reading
>the positive books and then comes nutrition and exercise, and
>spirituality..All those come in time, with your good help and God
>willing ours. you are a great caregiver Sylvia...pls continue what you
>do..Lizabeth will be fine, God willing
>
>God Bless and hope this comforts somewhat. Just know we are here for you
>and will continue to support.
>
>Your very humble friend
>marty
>
>
>
>Sylvia Boehme wrote:
>> 
>> Martin Auslander wrote:
>> >
>> > Dear Sylvia,
>> >
>> > If you dont mind, I will do some research on the internet and pass on
>> >
>> > much information that I receive to you. I am certain there will be more
>> >
>> > friends here that will help as well. Pls tell Lizabeth, help is on the
>> >
>> > way. By the way, would you remind me what treatment is she on and will
>> >
>> > they change now?
>> >
>> > God Bless
>> >
>> > your friend
>> >
>> > marty
>> >
>> > Sylvia Boehme wrote:
>> >
>> > >
>> >
>> > > Subject: Lizabeth Update
>> >
>> > > Date: Mon, 23 Mar 1998 12:13:17 -0600
>> >
>> > > From: Sylvia Lynn Boehme <sboehme@hondo.k12.tx.us>
>> >
>> > > Organization: Hondo ISD
>> >
>> > > To: mol-cabcer@lists.meds.com
>> >
>> > >
>> >
>> > > Dear All,
>> >
>> > > I just got back from my week with my son and came home to very poor
>> >
>> > > news.  I haven't been to see Lizabeth yet, but received a phone call
>> >
>> > > from one of our mutual friends...the CT news was not good.
>> >
>> > >
>> >
>> > > Evidently Lizabeth's tumors have grown and there are even more spots on
>> >
>> > > her lungs than there were when she first had the test in December.
>> >
>> > >
>> >
>> > > For all of you newcomers to MOL, Lizabeth is a 50 year old (non-smoker)
>> >
>> > > diagnosed with Adrenalcortical Carcinoma...a real bad dude!  If any of
>> >
>> > > you newcomers have any additional information on this type of C, please
>> >
>> > > let me hear from you so that I may pass this along to Lizabeth.
>> >
>> > >
>> >
>> > > I will see her tomorrow night and will let you all know how she is
>> >
>> > > doing.Please keep her in your prayers.
>> >
>> > > Lizabeth's friend-sylvia
>> 
>> Dearest Marty,
>> 
>> I still haven't gotten to see her personally...her husband called me
>> last night and said that she didn't want to see anybody and that he was
>> really worried about her...I am probably going to just go over to her
>> house and grab her and hold her and let her cry for a little
>> while...then we will get down to business.
>> 
>> The chemo she was on included cisplacin (is that correct) and another
>> drug "mitotane or midotane" (I have all of these written down at home,
>> but I'm at school.  Anyway she also goes in for "boosters".  I don't
>> know what (if any) the plans are for changes.
>> 
>> Thanks so much for your caring and your research.  I have found so very
>> little regarding this horrible type of cancer (not that they all aren't
>> horrible).  Evidently there are few (if any) clinical trials going on
>> because it is so rare.  ANYTHING you find will be wonderful.
>> 
>> Keeping you and your lovely wife always in my heart.
>> Lizabeth's friend - sylvia
>> 
>> -
>>
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BOB & DARLENE

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