James, I have enclosed a list of sites that we use for informational
purposes. I would suggest you call NCI and M.D. Anderson Hos.; as they will
give you a good response.
We encourage you to continue to seek the answers both you and your wife
deserves. Knowledge will give you both some control that is so important to
treatment; etc. Alot of time has lapsed and should be a matter of concern.
It is ashame one has to push and shove to get what they are deserving of
(answers) and what they have paid for. Good luck, Lillian.
-----Original Message-----
From: james kissinger <jkissing@uvic.ca>
To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
Date: Thursday, March 12, 1998 2:15 AM
Subject: [MOL] adenocarcinoma, cups
>Time for another post.(sorry if it gets posted twice)
>
>Well I posted to this group my wife's case history, in aid of finding a
>treatment and a primary site for her adenocarcinoma about a month ago. We
>got one response from what I now realize was a doctor. (and Marty-thanks)
>So who am I but the patient's husband and I sugested where to look as was
>give by the responded (which I didn't know the identity of at the time) and
>I didn't get a tweek at all from our GP and the onclogist at the local
>clinic in her report to our family doctor was that "they had not come to
>terms and are still in a state of denial" amen.
>
>I have been reading a statement "Management Policy" from the regional
>cancer agency on "Management of patients with Primary Unknown Tumours" 1.
>introduction starts with Patients having a careful clincal history, full
>physical examination, inclucing pelvic and rectal exam, plus a chest
>radiogragh(xray I guess?) does not identify the primary site. 2. Biopsy
>considerations (no primary no considerations_my abrevated synopsis)
>3. Tumour Markers and Pathology- mentions a ct scan that we had asked for
>and not got yet. Mentions lots of other good diagnostic work which we had
>to ask about again and we got back that "they had been able to tell that
>the cells are "Poor to Moderately well defined" better than what?
>
>This policy goes on for several more pages none of which I can say pertains
>to my wife so far.
>
>But the glowing hope is we go to another large treatment center at the end
>of this month, now three months after the first diagnosis (is this a
>average time?)
>
>One consideration I have is that they are beliving their own statistics and
>not giving it a good shot or am I missreading the situation here?
>
>Or is it I who have to change and live from day to day and my wife seems to
>feel that may be the future.
>
>Its getting late, anyhow lots of unresolved questions.
>Thanks...
>james
>
>
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(On the Home Page of Medicine On Line (MOL) go to
Medline. This is a service of the National Library of Medicine which
provides literature searches in the medical journals. When you enter the
name of the cancer it will return articiles from the
last 3 years. The cancer links contains patient files. The Medicine
On Line Cancer Services are listed there including some quite good
international sites.)
