Ron,
I wish I could speak as eloquently and truthful as you do. I for one have
never interpeted your posts as negative, only realistically. I do think
however, that the decisions you have made are maybe more informed that you
give yourself credit for. It must not be easy to trust as you do, and that in
itself is a decision you chose to make. If you'll accept this one piece of
advice (and I hope what I say here you truly understand) - no matter what it
takes, find someone who can help you with your research or somehow find the
strength to go to one more site before you turn your computer off. When I
first started researching brain tumors, I came up with literally thousands of
sites. Since October, I've been methodically checking them off the list and
looking for new ones. You never know which one may hold the key for you.In
addition to all the shark cartilage stuff, Tues I stumbled upon another site
from Duke University Medical center that is doing very specific research and
treatment on ependymoma's. This to, maybe another option for Elise. It
literally took me months to get to that site, but I'm there now and that is
all that matters. It sure is mounds of information and it is so difficult to
separate the good from the bad and the real hopes from the false hopes. Your
fortunate to have a support group you can trust and I hope you all find the
strength to get one more piece of information......
I wish you a happy day and sweet dreams at night.
Jeanne
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