Dear Jeanne, Oh thank you so much for giving us an update on your darling
Elise. We all rejoice with you and what an angel she must be. .I have been
thinking of you both and praying and wondering, yet afraid to distrub you
while you two were going through this. Yes, please do keep us informed.
Your friend, Lillian
-----Original Message-----
From: Grebes111@aol.com <Grebes111@aol.com>
To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
Date: Tuesday, February 03, 1998 8:20 AM
Subject: [MOL] Re: Little One : -) & other stuff
> Well last time I posted I said I would give more frequent updates and
as
>well I have a few pieces of info that others might find helpful. First,
Elise
>is still amazing everyone. This week she began her last week of radiation.
I
>don't know where the six weeks went. Still has minimal side effects and is
>even showing some great improvements. The discomfort in her throat has
>subsided and her swallowing reflex is returning. The doctors gave the okay
>for trying to teach her how to eat again. It's slow going, but an
incredible
>step. Once she can eat on a regular basis, they can start thinking about
>removing the feeding tube. Not only that, but they are going to do a final
>scope and if all goes well, they will remove the trach in 3 weeks. I can't
>wait to hear her voice again. And to keep adding to the list of good
things,
>all of a sudden she is trying to mouth words and has started trying to walk
>again. It's almost like overnight she became so much of what she used to
be.
>And so many of her personality traits are starting to return and she is
doing
>things that any18 month old would do. Neurologically, we still haven't
seen
>the expected effects of the radiation or tumor. I know the effects can be
>kind of delayed, but when you go on a day by day basis, these last few have
>given so much pleasure. I don't think I'm being unrealistic, but you can't
>help but get a renewed sense of hope.
> FYI - shark cartilage - There was a notice in People magazine that a
>hospital in NJ (Hackensack, I think) is doing a trial on shark cartilage.
>They are looking for people with breast cancer or brain tumors who have
been
>treated with more conventional methods and not gotten the desired results.
>I'll try to track down the number to call and post tomorrow.
> Also, there is a conference in San Francisco in April, sponsored by the
>National Brain Tumor Foundation that is dedicated to those with brain
tumors
>(one track for adults and another track for children) and their caregivers.
>Wish I had brought all this info with me, but once again I will post the
>details tomorrow. Hope everyone has a great day!!! Jeanne
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